Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Jodi I've always felt connected to you - now I know why we know ourselves so well and can't figure this out and can't feel good and stay that way!!! you are singing my song and I think we're trying the same stuff - GI doc will let me know what tests are next I think MRCP sounds better then ERCP so I'll request if i have a choice - he's still overlooking my pillcam footage anyway - you're not alone and I too have had good moments- so much better than the past 7 months - even talking walks etc as you mentioned - we will get there!!!! keep the faith eileen 3 months scd > > Hi Sheila... > > This kind of applies to this thread so I will continue in this one. > > I want to take enzymes for my current situation to help me with > breaking down animal fats and fats in general. Certain fruits, > veggies can also bother my whole bilary/pancreatic situation (not sure > exactly- pointing towards bile sludge or something am getting more tests) > > I also have high candida levels. I feel the yeast gets better and > then some days it is very bad. > > I am trying to figure out a regimen and which problem to combat first- > fats or yeast??? > > I have responded very well to the S. Boulardii > Yesterday, I added Lyosan later in the day (S. Boulardii in AM Lyosan > at PM) I was very gassy after Lyosan. This morning I woke up and had > no D! The Lyosan has really helped with the BM's considerably it's > amazing sometimes I have problems if I stop and try to resume taking > it but mostly I think it is responsible for such good BM's. It is > usually so much better when I take it. I find the S. Boulardii helps > on a level where I don't feel so much discomfort, nausea and like an > abdominal burning that is hard for me to explain. I do get more > pressure sometimes in RUQ after the probiotics. > > I eventually want to try DG and Candizyme. > > Which one do you think I should try first? > How do you think I should try it? > Do you think when I try something new in general on those days I > shouldn't take a probiotic? How will I know if I am feeling bad from > not taking probiotic or something new? > > I just find it very confusing figuring my body out and reading it. It > is like somehow I am so connected to my body yet so disconnected in > the sense I HAVE ABSOLUTELY no idea what is going on. All my > investigation work sometimes brings me to the point of maybe I > shouldn't take supplements all together. > > I just don't know. > > Jodi > SCD 6 months > Crohn's/Colitis > > > Digest Gold and Candizyme have some enzymes in common with varying > > levels of each. For example both have Protease, amylase, lactase. > > Candizyme has lysozyme and Hemicellulase, DG does not. Lysozyme can > > break down the polysaccharide walls of microbes. > > > > Yeast enzymes are taken between meals on an empty stomach and are > > formulated to target yeast. > > > > Are you taking the Digest Gold (DG) with meals to aid in digestion? > > > > You may get some yeast die off with Digest gold if taken between > > meals. How much DG are you taking/day? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hey Eileen, Thanks first of all it's good to know that we are all figuring this dance out together. I think a lot of us are very confused. Some are faster than others. I am thankful as I too was able to get up this morning go to the farmers market then go to whole foods come home AND cook and I even managed to speak to my mother in law!! All in one day and I walked the whole way. Not even thinking about a bathroom! I'm not saying I deserve a metal but I could -never- do this pre-SCD unless I was hopped up on a lot of Prednisone for months and months on end! About the ERCP. I learned from Kim M. that the procedure is EXTREMELY dangerous and it is super important to go to a doctor that really knows what he/she is doing- most of the ERCP people that know are in Minnisota if I am not mistaken there is one guy in NYC- I am still looking into it. If it isn't done properly it can cause SERIOUS side effects like chronic Pancreatitis. My GI does not do them and he said one of woman who ended up being his patient was in the hospital for 7 months because of a botched ERCP she couldn't stop vomiting. Very scary... So, doctors usually only do it if blood tests really show elevated enzyme levels and so on. MRCP is pretty harmless it's just an MRI with Gadalinium. Please be careful and don't rush into an ERCP. But, maybe you already know all of this. Just felt the need to caution you. Jodi SCD 6 months Crohn's/Colitis > > Jodi I've always felt connected to you - now I know why we know > ourselves so well and can't figure this out > and can't feel good and stay that way!!! you are singing my song and > I think we're trying the same stuff - GI doc will let me know what > tests are next I think MRCP sounds better then ERCP so I'll request > if i have a choice - he's still overlooking my pillcam footage > anyway - you're not alone and I too have had good moments- so much > better than the past 7 months - even talking walks etc as you > mentioned - we will get there!!!! keep the faith > eileen 3 months scd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 oh no I didn't know - thanks for the warning re ERCP - no thanks! i can't wait to speak to doc to see what he sees and what he suggests next or continue - because i am gaiing and improving - maybe the nausea will just fade and fadeand go the heck away forever!!! AMEN to that!!! 7 months stinks -but compared to most i have it easy :-) had a bunch of energy too - i think the weather helps (except with this hot hand issue still) seeing rheumotologist wed always somethign - but i hope our peobiotics really help us both - they seem to be :-) eileen scd3 months > > > > Jodi I've always felt connected to you - now I know why we know > > ourselves so well and can't figure this out > > and can't feel good and stay that way!!! you are singing my song and > > I think we're trying the same stuff - GI doc will let me know what > > tests are next I think MRCP sounds better then ERCP so I'll request > > if i have a choice - he's still overlooking my pillcam footage > > anyway - you're not alone and I too have had good moments- so much > > better than the past 7 months - even talking walks etc as you > > mentioned - we will get there!!!! keep the faith > > eileen 3 months scd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Hi Jodi, > > Hi Sheila... > > This kind of applies to this thread so I will continue in this one. > > I want to take enzymes for my current situation to help me with > breaking down animal fats and fats in general. Certain fruits, > veggies can also bother my whole bilary/pancreatic situation (not sure> exactly- pointing towards bile sludge or something am getting more tests)> I also have high candida levels. I feel the yeast gets better and> then some days it is very bad.>>>> Part of this reaction is probably die off, the rest of it may be related to what foods you are eating. Are you keeping a food journal. I think a food journal is very helpful for most people starting out. I think it would be extremely beneficial to you since you are trying additional supplements with SCD (enzymes, probiotics etc..) You could record foods, especially new foods, time of day with supplements and your reactions (feeling good, bad bm's, fatigue etc...) <<<I am trying to figure out a regimen and which problem to combat first-> fats or yeast???>>>> These can go hand in hand. If you work on the fat problem, it hekps heal digestion, which improves your own immune system which will work on getting rid of yeast and promote a better microbial balance. If you work on yeast it allows you body to work on healing and your body should start producing more of the digestive enzymes it needs. One way to do this is to limit the amount of fats you have. If your digestive system is not up to par fats can slow down the healing process. Elaine said this is one of the reasons that the intro is very low fat - fats are difficult for an injured gut to digest. <<<I have responded very well to the S. Boulardii > Yesterday, I added Lyosan later in the day (S. Boulardii in AM Lyosan> at PM) I was very gassy after Lyosan.>>>> This morning I woke up and had > no D! The Lyosan has really helped with the BM's considerably it's > amazing sometimes I have problems if I stop and try to resume taking> it but mostly I think it is responsible for such good BM's. It is> usually so much better when I take it.>>>> Gas is common if you go suddenly from loose stools, diarrhea to formed stools. The body has to readjust quickly and gas can get trapped. <<<<I find the S. Boulardii helps > on a level where I don't feel so much discomfort, nausea and like an> abdominal burning that is hard for me to explain. I do get more > pressure sometimes in RUQ after the probiotics.>>> Some of this pressure may be in part from healing. I found that once solid stool started moving through my right side (after the entire colon was actively ulcerated) it hurt. That pain got worse before it started to improve, but then it steadily and rapidly improved and finally went away. <<<I eventually want to try DG and Candizyme. > Which one do you think I should try first?>>> If you still find yeast is an issue when you are ready, try the Candizyme (or other yeast enzyme). If yeast is not as much an issue at that time and you want to look at boosting digestion then a digestive enzyme, like Digest Gold (DG), may be best. I strongly suggest that for you, you start with a low dose of either. You'll probably have lots of die off and starting low will help minimize it. <<<How do you think I should try it? > Do you think when I try something new in general on those days I > shouldn't take a probiotic?>>> Keep everything else the same and only try one new thing over aperiod of 2-5 days (specific amount of time depends on your digestive schedule at that time). You should wait until you are aren't seeing a lot of changes (really good one day and then fatigued the next day). <<<<How will I know if I am feeling bad from> not taking probiotic or something new? > > I just find it very confusing figuring my body out and reading it. It > is like somehow I am so connected to my body yet so disconnected in > the sense I HAVE ABSOLUTELY no idea what is going on. All my > investigation work sometimes brings me to the point of maybe I > shouldn't take supplements all together. > > I just don't know. > > Jodi > SCD 6 months > Crohn's/Colitis>>> This is where a food journal will help you. It helps you see the forest from the trees ; ) Sheila, SCD Feb.2001, UC 23yrs, PCOD 22yrs mom of and Pecanbread Moderator > > > Digest Gold and Candizyme have some enzymes in common with varying > > levels of each. For example both have Protease, amylase, lactase. > > Candizyme has lysozyme and Hemicellulase, DG does not. Lysozyme can > > break down the polysaccharide walls of microbes. > > > > Yeast enzymes are taken between meals on an empty stomach and are > > formulated to target yeast. > > > > Are you taking the Digest Gold (DG) with meals to aid in digestion? > > > > You may get some yeast die off with Digest gold if taken between > > meals. How much DG are you taking/day? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Hey Sheila, Thanks for all of that invaluable advice! I will put it to good use! Jodi SCD 6 months Crohn's/Colitis Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.