Re: Tammy

[Guest guest]

<<<Since we

are a military family, we rarely receive the best of

care or advice, but

definitely never consistent care. >>>>

Hi Tammy,

I can certainly relate to that. We are a Navy family

stationed in CT. I must say that the care my son has

gotten since we've been here is terrific, but when we

were out West it was awful. Our 6 1/2 year old son is

severe to profound and we are trying to see if he

qualifys for a cochlear implant. This is a great list

and I have learned so much from all the people on

here. Also, the owner of this list is part of a

military family and can really explain things if you

ever have questions about any of the processes. She

really helped me out when we were going thru the

military for our sons personal FM. Where are you all

stationed? Take care,

--- TKWOOD1988@... wrote:

> Leon,

> You have my interest now. I have a daughter with

> Klippel Trenaunay Weber

> Syndrome. She is 9 years old. We are lucky in that

> at this time only her

> left leg is affected. Our 2 year old daughter is

> s/pro. deaf. Since neither

> of these conditions run either family, I have often

> wondered if there was any

> kind of connection. It always seemed in left field

> to me as well. Since we

> are a military family, we rarely receive the best of

> care or advice, but

> definitely never consistent care. Thanks for the

> website info. I am going

> to check it out to see if there is a connection

> between the two. The medical

> side we deal with have no idea what Klippel

> Trenaunay is nor can explain the

> deafness in our 2 yr. old.

> Thanks again.

> Tammy

>

=====

Our Family Page:

http://johansenfamily.homestead.com/

My new Christmas Page I started:

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__________________________________________________

[Guest guest]

> are a military family, we rarely receive the best of

> care or advice,

You had to bring this up today? JD had 2 appointments today. One at 9 and

one at 10:40. We should have been out of there by 11:30 at the latest. Well,

things being as they are, it took us till 3:30. All we were doing was

getting a cast changed and having a 10 minute consult with the geneticist.

I'm keeping this short, but I am very frustrated right now.

Kay

[Guest guest]

3:30?? That is ridiculous!!! Did you file a complaint

with the CO of the hospital?? I dont know how it works

in the AF but here you file a complaint with the

clinic you were seen in and then you send one to the

CO of the hospital. That is unbelievable Kay!!

--- Listen-Up! wrote:

> > are a military family, we rarely receive the best

> of

> > care or advice,

>

> You had to bring this up today? JD had 2

> appointments today. One at 9 and

> one at 10:40. We should have been out of there by

> 11:30 at the latest. Well,

> things being as they are, it took us till 3:30. All

> we were doing was

> getting a cast changed and having a 10 minute

> consult with the geneticist.

> I'm keeping this short, but I am very frustrated

> right now.

>

> Kay

>

>

=====

Our Family Page:

http://johansenfamily.homestead.com/

My new Christmas Page I started:

http://johansenfamilychristmas.homestead.com

__________________________________________________

[Guest guest]

> 3:30?? That is ridiculous!!! Did you file a complaint

> with the CO of the hospital??

Unfortunately, I don't think it would do much good. The Ortho clinic was

behind by 2 hours because of a trauma case that came in and tied up the

orthopedic team. They couldn't see JD in time for the new cast to be

completed before our appointment in genetics so they told us to go to

genetics then come back. Seems that the Orthopedics clinic is closed between

11 & 1 for lunch and rounds. We did get to go on back when they opened

again, but then we had to wait for the cast to come off, wait for x-rays,

wait to go back to the casing room, wait for the doc to read the x-rays,

wait for the tech to come in, wait for someone to critique her cast (a

student-eek!), wait for the doc to talk to us. At least JD got to have lunch

with his dad in JD's favorite place to eat - the chow hall (there's no

accounting for some people's tastes). ;-)

The main problem with a lot of what goes on (or doesn't - as the case may

be) is that this AF med center is one of the trauma centers for the city.

Since the city hasn't pay the AF for their services for years (they had

contracted to reimburse the AF for their services), much of the trauma in

the city goes to Big Willy or BAMC (the Army med center). In a city as large

as San , that's a lot of trauma. When something ties up the surgeons

for hours, delays happen.

Oh well.

Hugs,

Kay

[Guest guest]

I am with you on the medical care. We live in an outlying community and have

one hospital for the military. We go through the hurry up and wait over and

over again. It is most frustrating when you have a 2 year old who isn't

patient to begin with but you also can't take other siblings. Talk about

babysitting costs...

And student doctors...argh...a nightmare. My oldest daughter has a vascular

disorder. When we lived at Hood, they always wanted us to go to BAMC so they

could " teach " the students. The students would see her and ask me what they

were supposed to do. At the very end, the doc would come in and ask me how

they did. HMMmmmm....

Tammy

[Guest guest]

Hi ,

We are currently stationed in Kitzingen Germany. The army just made some

changes with my husbands job. So we may have to move in January. We don't

know yet but this sure gets old. The girls and I have only been here 7

months. We were supposed to be here until next July. Now who knows.

We are trying to get champus to provide us with an fm system for home. The

hospital managed to get one for their clinic. We are going to use it until

we can get one. Hopefully, the approval will go through.

I know how some people feel about all the little costs here and there. We

have to pay for the ear molds, the boots for the fm system, any thing else

that is extra because otherwise we would have to wait for the approval

constantly. Anyway, I am happy to do it but it does nickel and dime you to

death.

Take care.

Tammy

[Guest guest]

hi. at 19 after my dad passed away i gained from like 190 all the way

up to like 255 in just 3 months and i didnt even know i had gained

weight until i went to go try on clothes for school. i didnt lose the

weight until i was about 24 or 25 and that was in 2001. so right now

i am the smallest i have ever been. i was a size 26 and now i am at

16. i want to try to get to be at 150 or 160 but i am losing so

slowly now as compared before. right now i am at 187. i did get at

178 but i gained it back. that is great that you lost 80 pounds also.

it has been so hard. i just feel like a failure cause i havent been

able to lose the rest of my weight and plus i havent finished school.

i am going to try to do that though. all we can do is keep trying.

also it seems like when i lost it before i was more determined than i

am now. we just have to keep trying and stay positive. talk to u later

good luck with your weight loss

tammy

In weightlossbuddies2 , Gena Grunwald <auroragg@m...>

wrote:

> Tammy,

> I didn't get to reply to your first post but I wanted to be sure to

> this time. I too have lost 80 pounds and yes honey, we have lost a

lot

> of weight! I actually had lost 89 but like you gained some back

last

> year. I was 284, got down to 195 and right now am about 204. I know

> what you mean by things happening and sidetracking you. For me it

> started with an ankle problem last spring, then my daughter left

for

> the army and I got very depressed, totally lost my motivation. In

> August I got sick, had bronchitis and couldn't do the treadmill for

3

> weeks, then the other ankle started bothering me briefly. I did

what my

> chiro told me to do for the right one on my left and it is fine

now.

> Anyway, life gets in the way sometimes. What's done is done. Just

shake

> it off, get up, regroup and refocus. How to get remotivated? Just

look

> at pictures of you 80 pounds ago. I don't know about you but I was

> pretty miserable. I hurt all the time, couldn't breath, couldn't

even

> fit into the plus size clothes at Walmart, my blood pressure was

> borderline, cholesterol was over 300. I had just watched my dad

suffer

> and die a very slow, horrible death from obesity. I knew I had to

lose

> the weight or wind up like him. That is how I view my weight loss,

life

> or death. It's not just to look better, it's to live. We lost 80, I

> believe we can lose the rest! Are ya with me girl? C'mon!!!! We can

do

> this!!!! How much are you right now? I'm 204 or so. I'm hoping to

be

> 190 by March 29 (b-day) and 175 by July 9th (20th ann) and then

another

> 10-15 the rest of the year.

> Just get back to basics. Don't focus on the numbers as much as

the

> behaviors and habits. Portion control, getting enough water,

getting

> some exercise everyday. I have made it my goal to do something,

even if

> it is just 10 min everyday. It adds up! And a lot of times, once I

get

> started I usually wind up doing more. That's why I am shooting for

the

> at least 10 min.

> Again, like I said, just think about how you felt at 80 lbs ago.

I

> never want to feel that way again!

>

> Gena

> On Thursday, January 16, 2003, at 02:51 PM, krypto_babe wrote:

>

> > ---

> > thanks. i am going to try to get back on the right path. you are

> > right. i can always go back to school next semester it isnt that

far

> > away. i can go back in may. i just get depressed sometimes and

scared

> > thinking what if i cant lose anymore. but you are right 80 pounds

is

> > alot. as long as i dont keep gaining i will be ok. thanks for

> > cheering me up. how much do you have to lose? thanks everyone that

> > wrote me back. we can do it if we set our minds to it. it just

gets

> > frustrating but as long as we dont give up we might be able to

make

> > it. talk to u all later

> > tammy:)

> >

>

>

>

[Guest guest]

Well said, Gena.

Life happens... and give yourself credit the good stuff you did.

Then smack yourself and jump back onto the the way you want to do

things.

It's SOOOO easy to focus on our failures and not our successes.

We're used to looking at ourselves as weak... but everytime you do

something good, take some credit. Brag to us about it! Every step

brings you closer to where you want to be.

Now get back to work!

> > > Tammy,

> > > I knew I remembered you! I remember you talking about your

dad. I'm

> > so

> > > glad to hear you are doing better, doing fantastic that is! Do

not,

> > do

> > > you hear me, DO NOT think for a second you are a failure! Look

at

> > pic's

> > > of before you lost the weight and what you look like now. You

have

> > gone

> > > through a very rough time and come out fighting. I know you

will

> > lose

> > > the rest. Just apply what you did to lose the first weight,

you can

> > do

> > > it just like I know I will do it. You are young and still have

a

> > lot of

> > > years ahead of you. I know a lot of people who are older then

me

> > (37)

> > > and just going back to school. It is good to make plans but,

just

> > > because they fall through or don't get done when you hope does

not

> > mean

> > > you are a failure. It just means it will take longer. You will

do

> > > it!!!!!

> > > Hugs,

> > > Gena

> > > >

> > >

> > >

> > >