the need to refocus

[Guest guest]

I started my scd diet while on prednisone. I did very very well for 4 months. SCD helped erase the side effects of coming off that wicked drug. Only 2 weeks off of the prednisone while doing scd alone, I started a flare. After 2 months of a very bad flare and losing alot more weight...my dr. ordered a colonoscopy. Having uc for 4 years, the test showed the same status, left sided colitis, not any better, not any worse. We decided to start remicaid. After I got this news I know I got slightly depressed!

I decided after the colonoscopy...and decided that when I left for a las vegas trip that I was going to go off scd . I figured that if I was so sick on it, I couldn't get any sicker. while on our vacation my condition did get worse. I pooped my pants twice, and had to stay one day in the hotel, going and going and going..... Luckily after that things did get better. I made it home on the taxi, plane and car rides feeling just fine-whew.... Fast forward another week later. This is where I get confused. I have been eating a normal sad diet, with the exception of any high fiber, gassy foods, and dairy( except scd dairy) I've been eating very little vegtables..but everything else. This past week, I have stopped bleeding, and have had very normal stools and movements. What does this mean? Why would it all of a sudden act better? More vitamin D from the hot

desert sun???

I want to go back on scd, I truely believe in the scientific basis of it. BUt I am scared, and even more confused. There is no pattern to my UC! I think the best answer would be to go back on scd now that I am retaining some food, have gained alittle weight back over the 2 weeks....and take it slow from the beginning, with hopes of really being out of a flare? wouldn't that be something. So, I may have had a mini vacation off of scd, but I know this sad diet is what got me to uc in the first place.... I am starting the remicaid next week. I know that it will help me heal, I could really kick this uc in the rear doing it while on scd. Don't you think? Thanks for all the inspiring letters recently that have helped me gain more focus in coming back from my falling off the wagon. I have really enjoyed the smore's camping this weekend, but I know

that if I ever want to enjoy my health in the long run and not have a multitude of health problems.....I need scd. Thanks for listening as I battle this uc..and the emotional crap that goes along with it.

sandy

uc since 2004

scd since nov 2007 off scd 2 weeks