Re: [SPAM] Prednisone taper and SCD

[Guest guest]

Dear Christy,

I too had a very hard time getting off the Prednisone. It also comes in 1mg tabs. Try and decrease even slower. I would get sick everytime I hit 10mg. It was like my magic sick number. At 15mg I started decreasing 1mg every 2weeks. It takes longer but I found a big difference. Good luck!

CD 10yrs

Humira 40mg /week

SCD on and off 4months

[sPAM] Prednisone taper and SCD

I'm sorry if this topic has been covered before (I found a bit in the archives, but I'd like to learn more). How can I do the diet while I'm on prednisone?I thought the diet was working well, as I was feeling fine while I was tapering off of prednisone (from 40 mg down to 3.75 over a couple of months). But I started having recurring symptoms (joint pain, erythema nodosum, some D) when I went below about 10 mg. I think the steroids must have been masking my symptoms, as I was probably eating more advanced foods than I should have (nut butter, nut flour, SCD beans, occasional raw veggies/fruits).I went back to the Intro diet, but it wasn't helping quickly enough, so I also upped the prednisone (back to 30 mg), so now I am basically back to square one. I can't do the Intro diet for the whole time until I get off prednisone, as that could take 2 months. So what should I eat? Do I need to stay at the Pecanbread Stage 1 foods until I'm all the way off of prednisone? Or is Stage 2 OK? Or should I go back to the Intro again when I reach the very low doses of prednisone?Finally, what if the prednisone itself contains illegal ingredients? (lactose monohydrate, starch, etc.)Thanks for your help!ChristySeattle, WACrohn's 9 yrsSCD almost 3 mos.Asacol, prednisone (still trying to get off of steroids)

[Guest guest]

Ironically, have had troubles below 10mg as well. It seems to bea pattern….MarkCD 3 yrsSCD 3 monthSurgery 6 days ago From:BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of and DaveSent: Wednesday, June 04, 2008 5:14 PMTo: BTVC-SCD Subject: Re: [sPAM] Prednisone taper and SCD DearChristy, Itoo had a very hard time getting off the Prednisone. It also comes in 1mg tabs.Try and decrease even slower. I would get sick everytime I hit 10mg. It waslike my magic sick number. At 15mg I started decreasing 1mg every 2weeks. Ittakes longer but I found a big difference. Good luck! CD10yrsHumira40mg /weekSCDon and off 4monthsThis message and any attachments may contain confidential information or trade secrets of SMI. SMI will take legal action against any person who improperly uses or discloses SMI's confidential information or trade secrets. If you have received this message in error, please notify the sender immediately and delete and destroy this message and its attachments.

[Guest guest]

At 04:53 PM 6/4/2008, you wrote:

Ironically, have had troubles

below 10mg as well. It seems to be a pattern….

Here is something I saved from my early days on the Long Island List

which may be helpful for those trying to wean off prednisone:

To those trying a slow prednisone wean,

Since Ben is 9, he sees a pediatric GI who follows an extremely

conservative prednisone weaning schedule that maybe some of you

" older " folks would be interested in. I think this

schedule is typical for kids but I don't know about adults. Of

course, check with your doctor first. It starts when you get down

to 20 mg.

two weeks - alternate 20mg/15mg every other day

two weeks - alternate 20 mg/10mg every other day

two weeks - alternate 20 mg/5mg every other day

two weeks - alternate 20 mg/0 mg every other day

two weeks - 15 mg every other day

two weeks - 10 mg every other day

two weeks - 5 mg every other day

two weeks - 2.5 mg every other day

Be well, Caryl

mom of Ben, Crohn's 1 year, SCD 3 weeks

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Marilyn!

I'm not sure if it was you that posted this schedule before, but it was

what I used as a guide for my own taper. My Doc thought I was crazy (he

wanted me to go 10mg at a time) but after 4 months of his way not

working, I have tried my way of 2.5 a week and am now down to 2.5 daily

and am gonna try to go off tommorow for the first time since early Jan.

Granted I have have started Imuran, but I was never able to go below

20mg before without being miserable.

Wish me Luck!!

[Guest guest]

At 09:12 PM 6/5/2008, you wrote:

Wish me Luck!!

,

<fingers crosses> <toes crossed> <eyes

crossed>

Yes, I think I have posted that suggestion before... it seems to be a

good one. I truly hope it works for you!

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund