Weezie's PCP appointment (LONG winded)

[Guest guest]

It turned out to be a long hard session. My PCP is an awesome man

that has ms himself so he knows much better what we deal with on a

daily basis. Besides his ears listen well and he understands and

speaks English. He also didn't sleep during his classes. Don't be

shocked but he and I are on first name basis as we are of the same

age group and have a friendship as well as Dr-Patient relationship.

Can't ask for better in my book. Bill is a keeper!

I had to stop the neurontin immediately as I had started allergic

reactions that I had not realized were happening.They were mild but

would have gotten worse he thought if I hadn't gone in then. Knew it

was not working correctly but thought it was a tolerance thing.I had

called the neuro's office Friday but never got a reply after giving

the symptoms to his nurse. Bill was not impressed either.

I had more concerns about the neuro conduct too. For almost two

months I was not able to obtain MRI + LP results after he assured me

that he would call personally when they were all in. Never happened.

Well in four weeks there was no communication at all. I called down

there as I was not about to travel the 75 miles one way to get these.

The girl

who took the call on a Friday told me she'd remind him that I needed

those and so did my PCP. What she did not say was the office was

shutting down for a two week vacation. The answering service told

patients to go to the ER in that area if you had problems. When I

finally got thru to a receptionist she was going to make sure I got

reports the next day as neuro still was not in and she was not sure

why he had not responded before they were gone. Bill needed the info

to do his part to treat me.That idiot had the receptionist call me to

say all tests were normal and that he was signing off my case. He

didn't think MS was part of the picture. Isn't that against the Hippa

laws? I thought so.

We while I was with Bill he called the neuro and put him on the

speaker phone so hubby and I could hear.When Bill asked why there was

not contrast on the spinal mri and why the lumbar was not done he was

told it was not needed.(Most of my spinal pain is in that area) He

said the thoracic had no problems either. How did the scoliosis I was

born with disappear? Bill asked him how the two buldging discs went

away too. Neuoro hadn't seen those either. Nor had he seen the

calsified(sp?) tendon/ligament bundle which is scar tissue from a

injury in 1996. Now on to the C-spine. which the phone reports said

were normal. These showed arrowing of disc space C4-5 and C56, both

discs are bulging plus ventral encroachment on the canal.

Encroachment on the left is larger than right from more spurring.

There we some other tests because of the mini-stroke I had in late

April. I won't bore you with those answers which had Bill angry

too.Bill questioned why no meds were given to me for the ms. Again

neuro stated he was not at all sure I had it but really had no idea

what else could be wrong so didn't put me on anything other the the

neuronten.Bill told him quite plainly that none of the doctors in

this office would ever send patients to his office again also that he

was withdrawing his own case.

For now I'm on hold again while Bill and two others in his office

locate another neuro for me as well as himself.I really hope we can

locate one we both like. Meanwhile he wants me to stop my massage

therapy and PT for a couple of weeks to give my body some rest from

the stress of this. He also give me a scrip for Valium for the stress

and fudging tight muscles happening now.

Now I'll bet you're sorry I put it all in here. Guess I needed to

vent more than I knew. I'll get thru this just as I have before.In

the mean time I could use a few extra prayers here if any of you are

willing that we will find a neurolygist that works for both of us.

Weezie

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> Aha!  It was Bacchi!  If I'm spelling it right.  LOL

> How did yesterday go?

> Challis

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