Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Diane, please don't apologize for expressing your honest disappointment! I am scheduled for UAE one week from today, and as many positive postings about the procedure as I have seen, I believe it's also important for me to be realistic and know that things aren't always sunshine and roses! I'm hoping for an excellent outcome, but I am also trying to be realistic and know that with any medical procedure there's always a chance that for whatever reason it won't work. I'm not dwelling on it, but I will cross that bridge IF I come to it. I'm sorry to hear your procedure wasn't successful, but thank you for sharing your experience. Diane Estes wrote: I have been in this group since Dec., had UAE in Jan. I have not had very good results, just went to a new gyn who said I'm full of fibroids, and the one they targeted (7cm.) is probably not much smaller. I tend to agree, I haven't gotten much relief, other than no potty trips at night. I'm still bloated, enlarged uterus, and other symtoms. The gyn said (and this makes sense)when you shrink the fibroid in UAE, its like shaving part of it away, but the volume of it doesn't change that much. Its not that I have great faith in these docs, its just that I don't feel that much better, and my tummy is still the same size as before. I guess I was hoping things would change more dramatically. Also, I've been bleeding for almost 2 months straight now, and my last period was so painful, and heavy it was worse than any period before UAE. SOrry about this, but I'm pretty disappointed, and needed to " talk " . Thanks Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 > I have been in this group since Dec., had UAE in Jan. I have not had > very good results, just went to a new gyn who said I'm full of fibroids, > and the one they targeted (7cm.) is probably not much smaller. I tend > to agree, I haven't gotten much relief, other than no potty trips at > night. I'm still bloated, enlarged uterus, and other symtoms. The gyn > said (and this makes sense)when you shrink the fibroid in UAE, its like > shaving part of it away, but the volume of it doesn't change that much. > Its not that I have great faith in these docs, its just that I don't > feel that much better, and my tummy is still the same size as before. I > guess I was hoping things would change more dramatically. Also, I've > been bleeding for almost 2 months straight now, and my last period was > so painful, and heavy it was worse than any period before UAE. SOrry > about this, but I'm pretty disappointed, and needed to " talk " . Thanks > Diane Hi Diane, I'm sorry to hear about your problems. I'm new to this group and have been just quietly reading the posts for a few months now. I too had the fibroid embolization procedure. It was done back in Nov. of 2000. Mine was a failure also. None of the fibroids shrunk and in fact I do believe they are starting to grow again as my symptoms have worsened. (I have five fibroids, one of which rests against my bladder, another against my anal canal) Oh joy!!!!! The only alternative left for me is a hysterectomy which I refuse to have. Lately though I have been reading up on this drug that was recently FDA approved.(Mifepristone) It's supposed to dramatically shrink fibroids, with very little side effects. I just put a phone call in to my gyno, and she will get back to me. I'm praying this is for real and would be a great alternative to any kind of surgery. If you go to google(search engine) and type in the name of the drug you can read for yourself all about it. Let's hope this is for real. Good luck to you. Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 I don't understand the statment " the one they targeted " . Didn't the IR embolize both arteries? UAE does not treat individual fibroids, it cuts off the blood that feeds ALL of the fibroids, unless of course both arteries were not properly embolized. > I have been in this group since Dec., had UAE in Jan. I have not had > very good results, just went to a new gyn who said I'm full of fibroids, > and the one they targeted (7cm.) is probably not much smaller. I tend > to agree, I haven't gotten much relief, other than no potty trips at > night. I'm still bloated, enlarged uterus, and other symtoms. The gyn > said (and this makes sense)when you shrink the fibroid in UAE, its like > shaving part of it away, but the volume of it doesn't change that much. > Its not that I have great faith in these docs, its just that I don't > feel that much better, and my tummy is still the same size as before. I > guess I was hoping things would change more dramatically. Also, I've > been bleeding for almost 2 months straight now, and my last period was > so painful, and heavy it was worse than any period before UAE. SOrry > about this, but I'm pretty disappointed, and needed to " talk " . Thanks > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Pamela- Where did you read that Mifepristone was recently approved for use in shrinking fibroids? Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 http://www.feminist.org/rrights/fibroidfacts.asp Hope this helps. > Pamela- > Where did you read that Mifepristone was recently approved for use in > shrinking fibroids? > > Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Here is one more site you can check out. http://www.feminist.org/gateway/ru486one.html - In uterinefibroids@y..., " Miriam Goodman " <deving@e...> wrote: > Pamela- > Where did you read that Mifepristone was recently approved for use in > shrinking fibroids? > > Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Pamela, Thank you so much for the info. and websites. I think I will call my doc about the RU486. I wish you the very best, and if I learn anymore, I will post. Thanks! sheloves2play wrote: > > > > I have been in this group since Dec., had UAE in Jan. I have not > had > > very good results, just went to a new gyn who said I'm full of > fibroids, > > and the one they targeted (7cm.) is probably not much smaller. I > tend > > to agree, I haven't gotten much relief, other than no potty trips at > > night. I'm still bloated, enlarged uterus, and other symtoms. The > gyn > > said (and this makes sense)when you shrink the fibroid in UAE, its > like > > shaving part of it away, but the volume of it doesn't change that > much. > > Its not that I have great faith in these docs, its just that I don't > > feel that much better, and my tummy is still the same size as > before. I > > guess I was hoping things would change more dramatically. Also, > I've > > been bleeding for almost 2 months straight now, and my last period > was > > so painful, and heavy it was worse than any period before UAE. > SOrry > > about this, but I'm pretty disappointed, and needed to " talk " . > Thanks > > Diane > > Hi Diane, > > I'm sorry to hear about your problems. I'm new to this group and have > been just quietly reading the posts for a few months now. I too had > the fibroid embolization procedure. It was done back in Nov. of > 2000. Mine was a failure also. None of the fibroids shrunk and in > fact I do believe they are starting to grow again as my symptoms have > worsened. (I have five fibroids, one of which rests against my > bladder, another against my anal canal) Oh joy!!!!! > > The only alternative left for me is a hysterectomy which I refuse to > have. Lately though I have been reading up on this drug that was > recently FDA approved.(Mifepristone) It's supposed to dramatically > shrink fibroids, with very little side effects. I just put a phone > call in to my gyno, and she will get back to me. I'm praying this is > for real and would be a great alternative to any kind of surgery. If > you go to google(search engine) and type in the name of the drug you > can read for yourself all about it. Let's hope this is for real. > Good luck to you. > > Pamela > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Unfortunately, as the site you reference points out mifepristone is not yet approved for fibroid treatment. There are several women in this group who have taken part in the mifepristone studies and have had shrinkage. -- In uterinefibroids@y..., " sheloves2play " <sheloves2play@y...> wrote: > http://www.feminist.org/rrights/fibroidfacts.asp > > Hope this helps. > > > > > Pamela- > > Where did you read that Mifepristone was recently approved for use > in > > shrinking fibroids? > > > > Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 thank you...but all this means is that your doctor can prescribe it to terminate pregnancy but not to shrink fibriods, unfortunately. I was one of the women who participated in the study using mifepristone to shrink fibroids. Re: Can I vent? > http://www.feminist.org/rrights/fibroidfacts.asp > > Hope this helps. > > > > > Pamela- > > Where did you read that Mifepristone was recently approved for use > in > > shrinking fibroids? > > > > Miriam > > > > Quote Link to comment Share on other sites More sharing options...
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