Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 In a message dated 5/14/02 2:24:21 PM US Mountain Standard Time, malgretout@... writes: > I do not know who you are seeing at the Mayo,however I have heard,and this > is only hearsay,that the > Mayo is pro-hysterectomy. > Bonnie: Well, who knows what grapevine hearsay comes from! If they were pro-hysterectomy, why would they have docs who specialize in fibroids and other things that some would say would require a hysterectomy? Actually, the woman at the appointment desk made reference to him removing fibroids. I'll see soon enough. . . Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 In a message dated 5/14/02 4:20:41 PM US Mountain Standard Time, malgretout@... writes: > Forwarned is fore-armed. > Best of Luck > But hearsay is just that, hearsay. Not a warning. It could be based on gossip. It could be old procedure. There are too many unknowns to pay attention to hearsay, I think. Bonne chance to you, too.(I don't know if you're in french-speaking Canada.) Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 I do not know who you are seeing at the Mayo,however I have heard,and this is only hearsay,that the Mayo is pro-hysterectomy. Bonnie SiCanto@... wrote: > Someone on the list replied that they had had a fine needle biopsy to > determine whether or not their fibroid was malignant. I saw my gyn today. > According to her, fine needle biopsys are only done on the breast. I also > read something on the web about a transcervical core biopsy. She didn't seem > to know what that was. But we've all learned that just because a doctor says > something doesn't mean that it is true. Any comments? How about you UAE > people? What kinds of tests are you getting to make sure there is no cancer > in your fibroids before you get them embolized? > > The radiologist recommended a hysterectomy because the size of my uterus is > increasing " rapidly " . I told my doctor that I knew women who had had > rapidly growing fibroids removed and they turned out to be benign. Anyway, > I'm going to see a fibroid specialist at the Mayo Clinic this coming Monday. > Hopefully, he can help even if that means referring me to an endocrinologist > or gyn oncologist. . . . > > My doctor also said that she didn't believe in mymectomies because they took > too long and were too bloody. I think lack of expertise might have something > to do with that. > Cheryl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 Cheryl: Forwarned is fore-armed. Best of Luck Bonnie SiCanto@... wrote: > In a message dated 5/14/02 2:24:21 PM US Mountain Standard Time, > malgretout@... writes: > > > I do not know who you are seeing at the Mayo,however I have heard,and this > > is only hearsay,that the > > Mayo is pro-hysterectomy. > > > > Bonnie: > > Well, who knows what grapevine hearsay comes from! If they were > pro-hysterectomy, why would they have docs who specialize in fibroids and > other things that some would say would require a hysterectomy? Actually, the > woman at the appointment desk made reference to him removing fibroids. I'll > see soon enough. . . > Cheryl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 > My doctor also said that she didn't believe in mymectomies because >they took too long and were too bloody. I think lack of expertise >might have something to do with that. > Cheryl > ***************** I agree with you -- she may lack not only expertise but also experience with other doctors who can perform them successfully. Good luck, bonne chance, viel Glueck! Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Cheryl: One takes things the way they want.In any event I'm sure you are well-educated about hysterectomy,about dealing with doctors etc.,etc. Merci pour la " bonne chance " I do live in French Canada,I am not French Canadian however.I have solved my fibroid situation,I believe,but too much luck is not possible. Bonnie SiCanto@... wrote: > In a message dated 5/14/02 4:20:41 PM US Mountain Standard Time, > malgretout@... writes: > > > Forwarned is fore-armed. > > Best of Luck > > > > But hearsay is just that, hearsay. Not a warning. It could be based on > gossip. It could be old procedure. There are too many unknowns to pay > attention to hearsay, I think. > Bonne chance to you, too.(I don't know if you're in french-speaking Canada.) > Cheryl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2002 Report Share Posted May 16, 2002 In a message dated 5/15/02 12:45:43 AM US Mountain Standard Time, lmoschel@... writes: > > I think the most common tests to check for cancer before > embolization are MRI and endometrial biopsy. At least that's what > I'm having done. Ellen: Well, I'll find out about this on Monday. What kind of fibroids do you have(intramural, submucosal or subserosal)? Can UAE be done on intramural? Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Dear Group I joined you yesterday....what a releif to have found you! I also have fibroids. They wanted to remove them when I was pregnant with our son 24yrs ago! Since then we went on tto have 2 more children. Well need I say more...now they are going crazy!I am 47 years old...and one is pressing on the wall of the uterus and the uterus is 60% larger then it should be! I have just begun to do some research. I have had a cat scan and mon is a biobsy...but not of the fibroid the wall. The Dr is concerned this has a remote chance of being cancer., no symtoms. So need I tell you all what she has recommended total hystromecty! If anyone has any feedback I would greatly appreciate it Thanks again Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I'm 38 and had UAE a month ago for treatment of 3 fibroids (6.9x6.4cm, 5.5x4.9cm, 2.9x4.2cm - 2 are intermural, one subserosal). I would recommend that you look into that treatment or into myomectomy. Unless you have a compelling reason for a hysterectomy (like cancer), consider other options before making your decision. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Dear Dean Thank you for your quick response. Today the nurse told me that they may be degerating!!!!How do they degenerate and grow at the same time! as I have heard ...this is very confusing. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 In a message dated 5/17/02 5:04:20 PM US Mountain Standard Time, deving@... writes: > have assured me > that they are not, and will never become malignant. If this is not the > case, I certainly would like to know!!! > Miriam: The way I understand it, it is difficult to distinguish between fibroids and uterine smooth muscle cancerous tumors. About 1% of discovered uterine growths turn out to be cancerous. Therefore, the assumption is made that the growth is fibroid unless it is growing rapidly. (Although, my doctor has also told me that both fibroids and sarcomas can grow slowly or rapidly.) Anyone else have any comments? Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I'm somewhat confused here by the mention of cancer and biopsies. Every doctor I've seen in relation to my fibroids - three in the Los Angeles area, as well as my brother-in-law, who is at Hackensack Hospital, have assured me that they are not, and will never become malignant. If this is not the case, I certainly would like to know!!! Miriam Re: Uterine Sarcoma Test? >I think that doctors use cancer to try to scare you into doing what >they want - hysterectomy! From what I've read it is not unusual for >the fibroids to grow more rapidly as we approach menopause, as our >hormones are fluctuatin wildly. > > > > >> Dear Group >> I joined you yesterday....what a releif to have found you! >> I also have fibroids. They wanted to remove them when I was >pregnant with our >> son 24yrs ago! Since then we went on tto have 2 more children. >> Well need I say more...now they are going crazy!I am 47 years >old...and one >> is pressing on the wall of the uterus and the uterus is 60% larger >then it >> should be! >> I have just begun to do some research. I have had a cat scan and >mon is a >> biobsy...but not of the fibroid the wall. The Dr is concerned this >has a >> remote chance of being cancer., no symtoms. So need I tell you all >what she >> has recommended total hystromecty! >> If anyone has any feedback I would greatly appreciate it >> Thanks again >> Barbara > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 There is NO way to tell if fibroids are cancerous unless they are biopsied. A coworker had a myomectomy and they pulled out 5 huge fibroids. A week later she had to return back to the hospital for a complete hysterectomy because her fibroids were malignant. Scary huh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 In a message dated 5/18/02 12:12:09 AM US Mountain Standard Time, proud2bnappie@... writes: > There is NO way to tell if fibroids are cancerous unless they are biopsied. > > Unless we check with numerous physicians and researchers, I don't think there is any way we can be so sure. . . . You're making a generalization. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 > Dear Dean > Thank you for your quick response. Today the nurse told me that > they may be degerating!!!!How do they degenerate and grow at the > same time! as I have heard ...this is very confusing. > Barbara Doesn't make sense, does it? Yet this is exactly what fibroids will typically do. When they grow too quickly they frequently will outgrow their blood supply and then just as rapidly degenerate (die). But degenerating fibroids is actually good news! They will shrink and can eventually get small enough to stop causing you any problems. If you have lots of them and they are all degenerating, then chances are your hormones are slowing down closing in on menopause. This is also a good thing. Menopause is the savior of the fibroid suffer because they almost always stop growing and usually shrink and you don't have to have surgery, take any drugs or worry about them any more. Also, note Carla's message about Cancer. She said it much better than I did. DeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 I am pregnant, 33 weeks and having a fibroid size of 11x11x12 cm. It block the delivery canal and therefore it seems to be that the bay has to become delivered with c-section. I am having a big belly and I need a lot of iron and sometimes I feeling a hard pain there where the fibroid is. Then I have to lay down. That are the problems I suffered as far as now. Hope that helps Sui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 In a message dated 5/21/02 9:17:31 PM US Mountain Standard Time, LeonV89943@... writes: > I also went up to the Dr's office to get the final > report of the cat scan. They say that the rapid fibroid grow is an > indication > of sarcoma., Barbara: As someone else on this list said to me, " You are benign until proven otherwise. " My doctor told me that their rapid growth makes sarcoma a concern. He recommended a hysterectomy. However, I asked for an MRI and a PET scan. ( I'll have to look up cat scan. I'm not sure what that is.) He didn't offer any of these tests. He said he would do whatever I wanted. So, I suggested these. Another doctor in this group is a gyn oncologist and he does trans-cervical biopsies and fine needle biopsies. I have an appointment with him on June 7 to talk about this. The doctor I'm seeing now didn't suggest this either. I know I'll feel better if I do as much as I can to determine the possibility of cancer instead of just saying yes to a hysterectomy. Cheryl p.s. good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 vDear Cheryl The transcervical biopsy is on thursday and we will see from there. It is like shifting through a maze. Can I ask you how old you are? P.S. good luck to you too! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 In a message dated 5/22/02 3:02:40 PM US Mountain Standard Time, LeonV89943@... writes: > The transcervical biopsy is on thursday and we will see from there. It is > like shifting through a maze. Can I ask you how old you are? > P.S. good luck to you too! > Hi, Barbara: I'm 55 1/2. Still menstruating. My endometrial biopsy came back benign. I'm getting an MRI next week. The following week I meet with a gynecological oncologist at Mayo Clinic. Hopefully, he'll evaluate me and tell me I don't have cancer. Let me know what your biopsy experience is like. This doc does that technique, too. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 > Here's a question - what are the implications of becoming pregnant > when one has large fibroids? I have a 9 cm fibroid, a 3x5 cm > fibroid and several smaller ones, and the last MRI said my uterus > is 16 cm (no idea if that is long, wide or diameter!) They are all > in the walls - not inside, sorry I don't know the medical term for > that right now. My confirming dr. appt. is not until next week, > but right now my head is reeling and I would love any input until I > can get to the doctor. The odd thing is that all of my doctors had > told me that with the condition of my uterus (fibroids, and scar > tissue from two prior myomectomies) it would be impossible for me > to get pregnant. And on top of it, I'm just about 45 years old! > > Miriam Several women have conceived and carried to term with large fibroids. Carla, the moderator here comes to mind. Of course, you probably already know that fibroids can keep you from conceiving - although intramural (in the walls) are less likely to do that than submucosal. I had a fibroid similar in size to your larger one that kept me from conceiving for years - long before it was even large enough to feel. Fibroids can also cause miscarraiges if you do conceive because they can steal the blood supply from the baby. Or they can simply grow along with the baby, or grow too fast and die while you're pregnant. That can sometimes be painful but usually not dangerous. You don't mention if you have been trying, or if you have had prior pregnancies before the fibroids - but if you have already been trying I would guess the fibroids might be stopping you from getting pregnant. You don't mention whether you are seeing a general OB/GYN or a fertility specialist but you may want to consider the latter. Also, an HSG can give you a better idea of whether the fibroids are blocking the fallopian tubes or preventing implantaion. If you do get pregnant it will likely be high-risk because of the fibroids and the prior surgeries so make sure you get a really good doctor. Don't give up hope, the fibroids and your age are of course two stikes against you but they just mean you need a really good doctor. Best of Luck, DeAnn P.S. A normal uterus that has never been pregnant is approximately 2x4x6cm, if it has been pregnant it's 4x6x9cm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Dear Miriam Wow...amazing how things can change!!!!! I wish you all the luck!! |Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Congratulations Miriam! I am happy to hear you are pregnant after 2 myomectomies. I just had my second myo in March. Were you trying to get pregnant after the first myo? How long between the 2nd myo? Thanks Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 > DeAnn- > Thank you for your reply. I did have one pregnancy that I carried > to term almost 14 years ago, which is when I discovered that I had > fibroids. Having been told many times by doctors that it would be > nearly impossible for me to get pregnant, I hadn't even bothered > with birth control for the last 10 years! BUT... lo and behold.. > yesterday, I found out I am pregnant! At 44... with fibroids...and > a teenager. > Miriam Congratulations, Miriam!!! That's so great. Don't get too stressed about carrying a child with fibroids - lots of women here have done it and almost all of the time everything works out fine - after all, if someone can carry septuplets almost to term, you can probably carry one baby and three fibroids : ) DeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Deanna - No, I was neither planning nor trying to get pregnant, then or now, at least not in the sense of seeking medical help for it. On the other hand, I haven't used birth control for years because I had been told so many times that it was just about impossible for me to conceive. I had my first myo in '93, and my second in '96. I took Mifepristone to shrink fibroids in January 2001, but by the end of 2001, they had grown with a vengeance. Miriam Re: Re: Uterine Sarcoma Test? > Congratulations Miriam! I am happy to hear you are pregnant after 2 > myomectomies. I just had my second myo in March. Were you trying to get > pregnant after the first myo? How long between the 2nd myo? Thanks Deanna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Thanks, Deann :-) I would be interested in some of the experiences of women over 40 who carried pregnancies to term with large fibroids. It would be helpful to have some idea what to anticipate. Miriam Quote Link to comment Share on other sites More sharing options...
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