Re: multiple diagnoses, etc.

January 3, 2008

n. You are such a wise inteligent lady! I have thought that as

well. Sure would be nice to just have 1 disease. The cardio said to me

he has a pt that took 9 mons to dx that had a rare muscle disease.Some

symptoms similiar and mine is taking longer BUT for the most part rare

diseases sometimes take awile to dx.Of course I know this but lets stop

beatn around these bushes and help the patients already! Geez.Who cares

what it takes just HELP. I have never heard of the contracture

disease.It sounds painful I will look it up.I have high high arches and

foot drop too!I have read some on RSD. What kinds of symptoms do you

have from RSD n? Thankyou for this post link lady! I dont know

what id do without you.

luv n hugz

cassy

multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting!). . .

http://www.mayoclinic.com/health/dupuytrens-contracture/DS00732/DSECTION=2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my " high

arches! " SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

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January 4, 2008

n:Do they high arches in your feet make it hard to walk? Have your arches always been high or has it happened along with the Dupuytren's Contracture? I have heard of that before but I didn't know it affected feet as well. The high arches is one of the problems Cassy has--isn't that true' Cassy? hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by our

medical care providers. It is extremely anxiety-provoking NOT to be told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to me, the

better I can adapt to it--or at least have a good crack at adapting to it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic Dystrophy,

which I have received superb medical care for. The thing that I have in my

feet and in my hands is called Dupuytren's Contracture, and if I can find

an informative link or perhaps a photo, I will send it. It is not the end of

my life, but definitely keeps me from reaching 10ths on the piano anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is pos

sible about what is really going on. I feel that way about most things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this happens

to the feet, as has also happened to me, it is often called Plantar Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/ DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my "high arches!" SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

Never miss a thing. Make Yahoo your homepage.

January 4, 2008

Didn't the doc's say "McArdle's Disease" to you Cassy? As a possibility that is. hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/ DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my "high

arches!" SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

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January 5, 2008

Hi Sharon. No.the docs didnt mention Mcardles Disease.I went home after

he said rare muscle disease and found that with the others. I got a ton

of book brochure packets from a md website. A huge pack! With so much

info. They are good size books too with lots of info. And they were

free and fed ex brought em.

hugz,cassy

Re: multiple diagnoses, etc.

Didn't the doc's say " McArdle's Disease " to you Cassy? As a possibility

that is.

hugs))

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in

no way are to be considered flaws or defects.

multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my " high

arches! " SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

____________ _________ _________ _________ _________ _________ _

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January 5, 2008

Yes. Sharon.thats true. My arches are extremly high and my feet kinda

jus flop. Its like there not attached to my ancle and leg. Weird hu?

They give me lots of problems. Cramping,pain,jerking. I cannot walk

anymore without feeling pain.

hugz,cassy

Re: multiple diagnoses, etc.

n:

Do they high arches in your feet make it hard to walk? Have your arches

always been high or has it happened along with the Dupuytren's

Contracture? I have heard of that before but I didn't know it affected

feet as well. The high arches is one of the problems Cassy has--isn't

that true' Cassy?

hugs))

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in

no way are to be considered flaws or defects.

multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my " high

arches! " SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

Never miss a thing. Make Yahoo your homepage.

#AOLMsgPart_2_465c5e1d-1fdc-4bdd-b051-d8d5ae622d38

________________________________________________________________________

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January 6, 2008

The MDA folks are very helpful. When my nephews were being diagnosed we were very thankful for them. My oldest nephew, Jeff, was living with me when he started having problems. He was about 20 I think. Maybe 19. His muscles started getting weak and sometimes his legs would give out and he would suddenly "squat". He didn't have insurance and the MDA paid for his testing including the muscle biopsy. Have you emailed Greg yet? He is expecting to hear from you. I did tell him McArdles had been mentioned because I thought it had. Greg has helped others like you. He said you could call him too. I don't know which phone number he would want you to have so all you need to do is ask him. He is a wonderful guy and I'm so proud of

him for dealing with his severe disabilities the way he has while keeping his good humor. If only I could keep my attitude as positive as Greg does.hugs)))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my "high

arches!" SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

____________ _________ _________ _________ _________ _________ _

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January 6, 2008

Sharon. You do keep your positive attitude!I think you are very strong

and you always have something encouraging to say. You are always so

comforting and understanding.In alot of ways you remind me of my

mom.:)Thats awesome they helpd your brother.I have learned a wealth of

info from the books.I did email Greg.He sounds very nice jus like his

sis.I remember last time I talked to him he was so helpful.I cant wait

to hear from him. If I do end up having a form of md then I think my

real dad may have had it.He was so ill and my mom said he was very

secretive about his illness.All she knows is what he told her and how

much pain he was always in. Whatever I have pain is 1 of my main

symptoms and it sure sucks.lol.Thanks so much Sharon!

luv n hugz,cassy

Re: multiple diagnoses, etc.

The MDA folks are very helpful. When my nephews were being diagnosed we

were very thankful for them. My oldest nephew, Jeff, was living with me

when he started having problems. He was about 20 I think. Maybe 19. His

muscles started getting weak and sometimes his legs would give out and

he would suddenly " squat " . He didn't have insurance and the MDA paid

for his testing including the muscle biopsy.

Have you emailed Greg yet? He is expecting to hear from you. I did tell

him McArdles had been mentioned because I thought it had. Greg has

helped others like you. He said you could call him too. I don't know

which phone number he would want you to have so all you need to do is

ask him. He is a wonderful guy and I'm so proud of

him for dealing with his severe disabilities the way he has while

keeping his good humor. If only I could keep my attitude as positive as

Greg does.

hugs)))

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in

no way are to be considered flaws or defects.

multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my " high

arches! " SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

____________ _________ _________ _________ _________ _________ _

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January 7, 2008

I think you remember this but just forgot it briefly but Greg and Jeff are my nephews. I am their aunt. I was only 9 when Jeff was born and 11 when Greg was born.hugs)))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my "high

arches!" SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

____________ _________ _________ _________ _________ _________ _

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January 7, 2008

Geezz. Im sorry! Duh! Lol. Im such a dork. My memory has been a little

off these days. I hape I didnt call him your brother on the email. I

will feel so stupid.lol.

hugz,cassy

Re: multiple diagnoses, etc.

I think you remember this but just forgot it briefly but Greg and Jeff

are my nephews. I am their aunt. I was only 9 when Jeff was born and 11

when Greg was born.

hugs)))

Sharon

This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in

no way are to be considered flaws or defects.

multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my " high

arches! " SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

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http://webmail. aol.com

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

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January 7, 2008

Don't feel stupid! Memory is overrated anyway. :)loveSharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. multiple diagnoses, etc.

Would it not be lovely if ONE major diagnosis just sort of VACCINATED

one

against any OTHER significant conditions.

Cassy, Akiba, Val, , all of us, are entitled to honest efforts by

our

medical care providers. It is extremely anxiety-provoking NOT to be

told

what the heck is going on.

No matter how grim the results might be, I always want the whole scoop!

I figure that the more I learn about it, the better it is explained to

me, the

better I can adapt to it--or at least have a good crack at adapting to

it.

This also helps the family members to know that it really IS something--

or many somethings, heaven forfend.

I have a relatively minor problem with my hands, most likely hereditary,

not the injury I had years ago which caused Reflex Sympathetic

Dystrophy,

which I have received superb medical care for. The thing that I have

in my

feet and in my hands is called Dupuytren's Contracture, and if I can

find

an informative link or perhaps a photo, I will send it. It is not the

end of

my life, but definitely keeps me from reaching 10ths on the piano

anymore!

But it is good to know WHAT it is, what it will and will NOT do to me.

I think that we all, you all, are entitled to be informed as much as is

pos

sible about what is really going on. I feel that way about most

things, but

this just does happen to be our own bodies!

Let me see if I can find a link for Dupuytren's Contracture; when this

happens

to the feet, as has also happened to me, it is often called Plantar

Fasciitis.

Here I go, off LINK-hunting (safer than Lynx-hunting! ). . .

http://www.mayoclin ic.com/health/ dupuytrens- contracture/

DS00732/DSECTION =2

The above is a rough description of the hand disorder; mine, oddly, OF

COURSE,

affects mostly my index finger and my thumb.

I also have it in my feet and the really stupid neurologuist whom I

had temporarily

after my original neurologist retired had commented on my "high

arches!" SURE!

I just have Dupuytren's Contracture in my feet as well. Kind of helps

to offset

the Foot Drop, though.

I just hope that each of you can get the fullest diagnosis, the best

treatment,

and SOON! That is my wish for this new year, 2008!

Meanwhile, we are all pulling for each of you!

Love,

n

#AOLMsgPart_ 2_bdac198a- ef93-4b4c- af15-fc72ff0d04d 7

____________ _________ _________ _________ _________ _________ _

More new features than ever. Check out the new AOL Mail ! -

http://webmail. aol.com

Never miss a thing. Make Yahoo your homepage.

#AOLMsgPart_ 2_be71438b- 4d0d-4c1f- a153-e4f0988de25 9

____________ _________ _________ _________ _________ _________ _

More new features than ever. Check out the new AOL Mail ! -

http://webmail. aol.com

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

#AOLMsgPart_ 2_940e54f1- 2eb3-43a6- 9465-2d69bdb1c03 a

____________ _________ _________ _________ _________ _________ _

More new features than ever. Check out the new AOL Mail ! -

http://webmail. aol.com

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

#AOLMsgPart_ 2_07d6d72b- 631c-4e4d- 866c-ff86003f62a 4

____________ _________ _________ _________ _________ _________ _

More new features than ever. Check out the new AOL Mail ! -

http://webmail. aol.com

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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