LVAS question

[Guest guest]

Hi,

Could someone help us.

My daughter 7 was diagnosed with LVAS 6 mths ago and now the doctor has

changed his opinion, because some Professor told him it wasn't showing

enlarged vestibular ducts on the Cat scan.

Chrissy's first loss was noticed Sept. last year. Right - steep slope

upwards from the lower registers. Left - mild flat line.

Feb. this year. Right - similar. Left - steep slope downwards from lower

register. Her chart looked like a cross. X

(We think the change was from the small aeroplane ride in Jan.)

All year they have lost bits and pieces. BUT ----

Oct. this year - Right - flatened out suddenly to the profound range. Left -

stayed similar.

(We noticed the loss the day after a trampoline accident)

Chrissy's hearing seems to fit exactly the LVAS syndrome, but what else can

we do to confirm it. The specialist has pretty much written her off until

she needs a Cochlea implant and suggests Chrissy has SENSITIVE EARS. (His

wording)

Would anyone who knows this syndrome, know what do we look for now.

Do we get an MRI and if so How do we convince the specialist she needs one

to proof it.

Sorry for being so long-winded.

Searching Mum,

[Guest guest]

In a message dated 12/8/00 8:12:16 AM Eastern Standard Time,

searle@... writes:

<< We think the change was from the small aeroplane ride in Jan.) >>

,

I can't help too much because we too are just now trying to

diagnose/interpret a change in my 3 year old son's hearing. Right ear

significantly changed to the severe range flat across. But, we go in small

airplanes quite a lot since my husband has his private pilot's license and I

wanted to know if you could elaborate on the above statement. I, too have

been concerned about the noise levels of the small plane engine but other

than putting on head sets don't know if there is anything else I can do.

And, can a one time plane ride cause this change?

Tammy Norman

[Guest guest]

Sent: Tuesday, December 12, 2000 8:55 AM

Subject: Re: LVAS question

Dear Tammy,

You asked a question about your son flying in a small aeroplane.

I can't tell you whether it would effect your son's hearing under normal

circumstances. You would need to find out if your son's loss is from LVAS

or not.

LVAS, such as my daughter has is a genetic problem in which a bump to her

head, even minor, or a change in presure, such as an aeroplane ride could

destroy more hearing. This is due to the toxins being forced back into her

ear and damaging more nerves in her cochlea.

The plane ride Chrissy had in January was not just a joy flight. We were in

a 4 seater plane involved in an aero competition and went through many G

force turns and quick decents etc. It would not be the noise of the plane

but the presure.

I hope this helps with your question.

[Guest guest]

Tammy,

Sorry meant to say in my previous answer. With LVAS, YES a once off

plane ride could definately make such a difference.

[Guest guest]

> Tammy,

> Sorry meant to say in my previous answer. With LVAS, YES a once off

> plane ride could definately make such a difference.

>

>

: Did your dr. recommend not flying with LVA? Our doctor said he

didn't think it was a problem, but we have decided not to because it

seemed a prudent precaution, not only to avoid more hearing loss but

also to not develop a perilymph fistula.

F

[Guest guest]

Thanks for your reply. This makes me feel somewhat better. We will

still pursue the LVAS question though. Don't think has this but not

sure.

Thanks

Tammy Norman