Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Thanks for sharing Remy's story Christie, she's absolutely gorgeous! I think she's our first ever band/helmet free front page star!! You should be very proud, which I know you are!! I still remember reading your post the night before her casting wanting the group's opinions on her repositioning progress. I remember chking out her pictures and being blown away at her progress!! I was like " who needs a helmet????? " Debbie > > > Hi, > > > > Wow! I can't believe how much older Remy looks now than in her > > Front Page Star photo! She was 11 months old in that photo, and 25 > > months old now... > > > > Her plagio story begins before her birth. I was a total workaholic > > who was sidelined at home the last two months of my pregnancy with > > terrible sciatica... she was positioned weirdly in there, putting > > pressure on my sciatic nerve somehow. Although I was a first time > > mom, I had a scheduled c-section, which is very rare, owing to the > > doctors diagnosis of cephalic pelvic disproportion, and their > > estimate that she would be over 11 lbs!!! Remy was born by c- > > section weighing ONLY 9 1/2 lbs. Although I didn't know the name > > for it at the time, the back of her head was totally flat from ear > > to ear; it was very strange looking. Looking back on it, she was > > totally out of room in utero, and her head was totall squished! > > > > I returned to work 6 weeks after Remy was born. It was a very > > hectic and exhausting time for us, since my husband and I worked > > opposite shifts. We both were working overtime almost every day, > > and most Saturdays as well. This left us an hour and a half overlap > > at about 3am and 3pm. I was getting almost 6 hrs of sleep a night, > > and was getting about 4.5 hours each night. Needless to say, > > we were doing just about anything to get Remy to sleep at every > > opportunity! This included extensive time in the swing, bouncie > > seat and in our left arm (the one used when we bottle-fed her.) > > When she did sleep in the crib, outfitted with the hardest and > > safest mattress we could find, she always slept with her head > > slightly turned to her right. > > > > Although we brought up Remy's " brachy " as I now know it at every ped > > appt from 2 weeks on, it wasn't until her 2 month appt. that I > > started to notice an asymmetry (plagio) in her headshape as well. > > We consisently got the " round out on it's own " speech every time. I > > did not know what repositioning was, and certainly wasn't given any > > advice in that area by the ped. By the time Remy was 5 months old, > > I was almost in a panic about what I could see happening to her > > head. As strange as it sounds, I felt all the back time in the > > various devices, etc. was warranted as protection from SIDS... Remy > > had next to no tummy time the first months of her life. I felt > > helpless, since I couldn't envision a life without these devices > > with our current work schedules and exhaustion, nor did I know that > > there could be a life without dependency on these devices. I > > scheduled a special appt. with my ped to address this concern, and > > although she had previously stated that " it would round out on its > > own, " she now pronounced " Well, I guess that's just the shape of her > > head! " I thought to myselt, " Uh, no it's not! " > > > > I was so distressed by the time that Remy was 5 months, that I > > actually went online searching for information about head > > flattening.... and by some major stroke of luck, I found and joined > > this group. A little education went a long way, and so we started > > aggressive repo'ing immediately. In spite of our exhaustion, we > > were somehow able to dig deep and start a new life where Remy was > > never on her flat area except for diaper changes 24 hours a day. We > > documented steady progress every 2 weeks with top and side view > > photos. I can still remember looking at those first photos (the 5 > > mo. photos in the photos/before and after/repositioned album); I > > literally almost blacked out when I saw her headshape!! Over time, > > we saw a slow improvement. In spite of this progress, we still went > > through the motions of getting a referral to a specialist who we had > > to strong-arm a bit for a prescription. Right before Remy was to be > > casted at 8 months of age, we reassessed her repo progress... we > > decided that we would be happy with her headshape even if she didn't > > improved any more, and so we cancelled her helmet casting. We went > > on to see additional improvement in her flat area until about 12 > > months, which was about the time we announced that Remy was a " Repo > > graduate!! " Aggressive repositioning is a lifesytle, though, and we > > contined repo in small ways up until Remy was about 14 months old. > > Post repo graduation, I haven't seen any additional rounding out, > > but we have seen an elongation of her head and a decrease in size of > > the bulges over her ears which are important postive aesthetic > > changes, too! > > > > I want to thank the leadership of the group for giving the > > opportunity to be a Repositioning Moderator, which I have enjoyed > > immensely. I have found that I spend much more time collecting the > > wonderful repo tips and ideas that repo'ing parents share here at > > the group, than I ever did giving advice to others. You all > > absolutely amaze me with your resourcefulness, creative solutions, > > and determination when it comes to repositioning.... keep those > > great repo thoughts and photos coming! I also wanted to express my > > gratitude for the group's support for the repositioning treatment > > option... from my first post to the group, until now, I have seen > > nothing but support, encouragement, and excellent advice to repo'ing > > parents. > > > > Take care, > > > > Christie (Mom to Repo'd Remy) > > > > > > > > > > (wrote: > > > Hi All, > > > The Front Page Star for the next 2 weeks is Remy!! > > > Christie, > > > When you get a chance please share her story with us. > > > Thanks, > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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