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Dear sisters

While I have been quiet in this list for some time, I must let you know my

good news and the lessons my experience has for us all.

As I wrote earlier, I went to a gynaecologist after mild peeing

difficulties. An ultrasound showed an enlarged kidney and a uterus with

fibroids at about 12 weeks. I t was said that the pressure from the

enlarged uterus was obstructing my ureters and causing backflow of urine and

consequent threat to my kidneys.

Three gynies told me I needed a hysterectomy to protect my kidneys. Only no

4 suggested looking inside my bladder and kidneys to confirm whether there

was indeed any obstruction.

Well, today, I had the cystoscopy and renal pylogram and yeay! - no

obstruction. Hence, no need to remove my uterus or otherwise deal with the

fibroids surgically.

It just shows that we must question, question, question and seek further

opinions until satisfied with the answers. I don't mean stubbornly holding

on to a view because that is what we might like regardless of the real

situation, but making very sure the facts are tracked down.

I kept going for 2nd opinions because all 3 gynies I had seen gave me quite

different perspectives and views despite the fact they were all recommending

hysterectomy.

I feel very feisty and strong after my experience. I also had a clerk at

the clinic very put out because I insisted on READING everything they were

asking me to sign. She wasn't used to such chutzpah! I think it's

important that collectively we make sure they do get used to it!

My next task is to keep watch of the fibroids and get good advice on my HRT

which has probably been responsible for the failure of my fibroids to shrink

after menopause.

My GP has mentioned Livial (tibolone) as a synthetic hormone which does not

feed fibroids but does all the other good things. But it has only been on

the market here in OZ for 12 months, so I am not at all sure about that.

I am currently on what is called bio-identical HRT, specially prescribed (by

a doctor) and compounded according to my blood profile and symptoms. The

regular doctors are very scathing about it but I feel very good on it and

have been reducing the oestrogen content since I knew I had fibroids. I

could simply have another ultrasound in 6 months and see how the fibroids

are going.

Perhaps I should go to a reproductive endocrinologist for advice? Any

suggestions?

Regards

Vivienne

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In a message dated 6/27/02 6:03:09 AM US Mountain Standard Time,

porzsoltv@... writes:

> I am currently on what is called bio-identical HRT, specially prescribed (by

> a doctor) and compounded according to my blood profile and symptoms. The

> regular doctors are very scathing

Vivienne:

First of all, congratulations. Secondly, this bio-identical HRT is

prescribed by a 'doctor' but the 'regular doctors' don't like it. So, what

kind of doctor prescribed it? A naturopath?

Cheryl

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Not a naturopath, Cheryl, a regular GP. Have a look at Dr (The Liver

Cleansing Diet) Cabot's web-site (I don't have the address in my head). By

writing to Cabot or her site, you might be able to track down doctors in the

US who use this. Cabot is very commercial and full of 'hype' though. But

the bio-identical HRT works for me.

I have to say that I have little confidence in either of the two doctors

here in Sydney who have prescribed this to me and I haven't used them for

general medical advice.

They never enquired about fibroids or other contra-ndications. My GP says

that this stuff isn't standardised or tested, but I don't know how much of

this is blind prejudice.

Regards

Vivienne

Sydney

Re: Yippee!

> In a message dated 6/27/02 6:03:09 AM US Mountain Standard Time,

> porzsoltv@... writes:

>

>

> > I am currently on what is called bio-identical HRT, specially prescribed

(by

> > a doctor) and compounded according to my blood profile and symptoms.

The

> > regular doctors are very scathing

>

> Vivienne:

> First of all, congratulations. Secondly, this bio-identical HRT is

> prescribed by a 'doctor' but the 'regular doctors' don't like it. So,

what

> kind of doctor prescribed it? A naturopath?

> Cheryl

>

>

>

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