Re: SCD legal headache medicine

[Guest guest]

Hi Misty,

I would suggest Tylenol (acetaminophen). It'll have fillers (illegals) in it but it's easier on the gut than ibuprofen or any other NSAID.

Hope you feel better,

Kim H.

husband, , CD 1999

SCD 2002

SCD legal headache medicine

I just called the only compounding pharmacy in my area and she only compounds prescriptions. I have had a headache for 2 days. I did take ibuprofen from a bottle yesterday but know it's not legal. I'm back at work today and the headache is getting worse. Is there anything over the counter that is SCD-approved for headaches? I don't have allergy problems so I don't think that is the cause. After having my daughter 6.5 years ago, I started getting regular tension like headaches until I started SCD. This is the 3rd headache I've gotten since starting 6 months ago and it's a whopper.Thanks for your help,Misty Kimble - 31yoLouisianaCD - 2/07 - no medsSCD - 6 months

[Guest guest]

Thanks Kim. I HAVE to do something. I'll try the tylenol.

Misty Kimble

Subject: Re: SCD legal headache medicineTo: BTVC-SCD Date: Monday, July 14, 2008, 1:45 PM

Hi Misty,

I would suggest Tylenol (acetaminophen) . It'll have fillers (illegals) in it but it's easier on the gut than ibuprofen or any other NSAID.

Hope you feel better,

Kim H.

husband, , CD 1999

SCD 2002

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[Guest guest]

You're welcome. tolerates it fine but, as you know, everyone is different.

Do hope you feel better.

Kim

Re: SCD legal headache medicineTo: BTVC-SCD@yahoogroup s.comDate: Monday, July 14, 2008, 1:45 PM

Hi Misty,

I would suggest Tylenol (acetaminophen) . It'll have fillers (illegals) in it but it's easier on the gut than ibuprofen or any other NSAID.

Hope you feel better,

Kim H.

husband, , CD 1999

SCD 2002

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[Guest guest]

At 01:57 PM 7/14/2008, you wrote:

Thanks Kim. I HAVE to do

something. I'll try the tylenol.

Misty,

There is, as I'm sure you can appreciate, only so much one can do with

salmon oil and so forth as anti-inflammatories. I've been using both

acetaminophem and motrin for post surgical pain and I can tell you

honestly that the acetaminophen gives me less grief than the motrin /

ibuprofen. Even WITH the illegals. (I understand that for ASD kids,

it's the opposite.)

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I have compounded tylenol made up and sudafed

not sure of your prob - just read this one -but they can both be

compounded

eileen

>

>

> Subject: Re: SCD legal headache medicine

> To: BTVC-SCD

> Date: Monday, July 14, 2008, 1:45 PM

>

>

>

>

>

>

>

>

> Hi Misty,

> I would suggest Tylenol (acetaminophen) . It'll have fillers

(illegals) in it but it's easier on the gut than ibuprofen or any

other NSAID.

> Hope you feel better,

> Kim H.

> husband, , CD 1999

> SCD 2002

>

>

>  

>

>

>

> Recent Activity

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> .

>

[Guest guest]

just have doc write the script

eileen

>

> I just called the only compounding pharmacy in my area and she only

> compounds prescriptions. I have had a headache for 2 days. I did

take

> ibuprofen from a bottle yesterday but know it's not legal. I'm back

at

> work today and the headache is getting worse. Is there anything

over

> the counter that is SCD-approved for headaches? I don't have

allergy

> problems so I don't think that is the cause. After having my

daughter

> 6.5 years ago, I started getting regular tension like headaches

until I

> started SCD. This is the 3rd headache I've gotten since starting 6

> months ago and it's a whopper.

>

> Thanks for your help,

>

> Misty Kimble - 31yo

> Louisiana

> CD - 2/07 - no meds

> SCD - 6 months

>

[Guest guest]

Thanks Eileen. The only compounding pharmacy here requires a prescription so I'll have to go to a doctor, which isn't covered by my insurance. Only hospital stays are covered. If I react to the Tylenol, I'll have to do it for the occassional headaches I get.

Thanks again,

Misty Kimble

Subject: Re: SCD legal headache medicineTo: BTVC-SCD Date: Monday, July 14, 2008, 5:21 PM

I have compounded tylenol made up and sudafednot sure of your prob - just read this one -but they can both be compoundedeileen

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[Guest guest]

As my last post said, doctor visits aren't covered by my insurance. Only hospital stuff. If I don't react to the Tylenol, I'm not going to worry about it. I took the Tylenon 1.5 hours ago and it hasn't done anything for my headache. GRRRR

Thanks,

Misty Kimble

Subject: Re: SCD legal headache medicineTo: BTVC-SCD Date: Monday, July 14, 2008, 5:23 PM

just have doc write the scripteileen

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[Guest guest]

oh sorry to hear - ins stinks!! I pay $25 a month for the compounding

pharmacy as ins won't cover!

eileen

>

>

> Subject: Re: SCD legal headache medicine

> To: BTVC-SCD

> Date: Monday, July 14, 2008, 5:21 PM

>

>

>

>

>

>

> I have compounded tylenol made up and sudafed

> not sure of your prob - just read this one -but they can both be

> compounded

> eileen

>

>

>

> Recent Activity

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> Common arthritis

> myths debunked.

>

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> related to dogs.

> .

>

[Guest guest]

If I really need a painkiller, I use a suppository. It's not the

nicest thing, but then again, aren't we used to most things at this

time? <g>

Gitte

CD 30y

SCD 16 months

> Does anyone know if Tylenol Sinus would be OK? Sometimes those

are that's only thing that works for me. I have to take three

instead of two when they're really bad.

>

>

> Donna

> daughter undiagnosed Crohns

> SCD 8 weeks

>

> Misty Kimble wrote:

> As my last post said, doctor visits aren't

covered by my insurance. Only hospital stuff. If I don't react to the

Tylenol, I'm not going to worry about it. I took the Tylenon 1.5

hours ago and it hasn't done anything for my headache. GRRRR

>

> Thanks,

>

> Misty Kimble

>

[Guest guest]

Hi Donna:

I drink 9-12 cups of water daily so I don't think that's the issue. I don't normally have sinus problems, but my throat is very sore this morning. I just past the 6 month mark and had a small flare a couple weeks ago but now I think that was food induced and what I'm experiencing now is die off. ??? I'm not sure. I know I feel like I have the flu today along with the headache.

Thanks everyone for your replies!!!!

Misty Kimble

CD

SCD - 6 momths

Subject: Re: Re: SCD legal headache medicineTo: BTVC-SCD Date: Monday, July 14, 2008, 5:47 PM

I'm so sorry about your headache. Are you drinking lots of extra water?

Sometimes I get migraines when I let myself get dehydrated. By the time I reach that point the water won't make it disappear but it takes the edge off.

Does anyone know if Tylenol Sinus would be OK? Sometimes those are that's only thing that works for me. I have to take three instead of two when they're really bad.

Donna

daughter undiagnosed Crohns

SCD 8 weeks

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[Guest guest]

>

> Hi Donna:

>  

> I drink 9-12 cups of water daily so I don't think that's the issue. I don't

normally have

sinus problems, but my throat is very sore this morning. I just past the 6 month

mark and

had a small flare a couple weeks ago but now I think that was food induced and

what I'm

experiencing now is die off. ??? I'm not sure. I know I feel like I have the flu

today along

with the headache.

Well, then, maybe it is the flu. With the sore throat and all. A headache,

for me, can be a first indication of getting sick. And so can a sore throat.

Check your temperature.

Or it could be die-off.

Have some of the electrolyte drink.

Also, it's okay to take meds with die-off.

Mara

[Guest guest]

>

>

>

>

>

>

>

>

> Well, then, maybe it is the flu. With the sore throat and all. A headache,

> for me, can be a first indication of getting sick. And so can a sore throat.

> Check your temperature.

> I'm not running fever. My symptoms are headache, tense muscles in my next and

shoulders, sore throat, wierd upset stomach (doesn't feel the same as the CD

symptoms I

had before SCD), and my right hip feels like it's on fire (I have bursitis in

that hip). No

coughing, congention, or runny nose though I know you don't have to have that to

have

the flu.

>

> Or it could be die-off.

> It's so hard to tell. From reading previous posts, I know die off can give you

flu like

symptoms. I don't normally get sick like this though. When I get sick, it's

usually

bronchitis. I think that's from living in a smoking house the first 20 years of

my life and

smoking myself for 7 years because since I moved out of my mom's house 11 years

ago

and quit smoking, I only get bronchitis once or twice a year versus the 4 or 5

times I got it

when I lived there.

>

> Have some of the electrolyte drink.

> I'll try that when I get home from work this afternoon.

>

> Also, it's okay to take meds with die-off.

> Thanks!!!!! Your posts are always encouraging!!!

Thank you. ;->

Another thing I thought which will really help bring relief if it is

die-off is take long, long epsom salt baths. When I had horrific

die-off last year, this brought the most relief.

Also, (if it is die-off) just keep focusing on the fact that the worse

it gets, when it's over, you'll begin to feel levels better (at least until

the next flare hits. <g>) I remember walking around last summer

with such a feeling of well being and joie de vivre. Those toxins

are really toxic.

Unfortunately, then, at some point, I got the 3 month flare, but I

kept thinking it was 3 month die-off - so I was all - bring it on! -

I'll get through it and feel even better. Unfortunately 3 month flare

doesn't work quite the same at the resolution. It's more of a slow

climb out of symptoms, I find.

Anyway, hope you are better soon.

Mara

[Guest guest]

Another thing I thought which will really help bring relief if it isdie-off is take long, long epsom salt baths.

I bought some Epsom salt yesterday but didn't have time to take a bath!!! They are so very relaxing.

Thanks,

Misty

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[Guest guest]

I purchased some activated charcoal at lunch today. They didn't have a powder, but had capsules. Each capsule is 280mg. It says the only ingredients are activated charcoal and gelatin "Soloray guarantees it has added NO ingredients other thatn those listed on this label". So, that's good. How exactly should I take it, or how would YOU take it?

Thanks,

Misty Kimble

Subject: Re: SCD legal headache medicineTo: BTVC-SCD Date: Tuesday, July 15, 2008, 8:38 AM

Hey Misty..If it's a bad headache because of die-off I find that the activatedcharcoal water really helps a couple of times a day. Maybe you couldgive that a try too?JodiSCD 9 monthsCrohn's/Colitis

[Guest guest]

Hi Misty,

Open 2 capsules into cup (do a few cups like 4 cups at one time)

Boil some water

pore over charcoal. Be careful as the stuff poofs up and can get you

and everything dirty (don't do it in pretty clothes)

let it sit (at least an hour) and wait to see that the charcoal grains

go to the bottom and the water just stays dyed like a grey'ish color

and isn't black- meaning you can see through it.

and drink.

don't drink the mud at the end. I actually reuse the charcoal one

more time (same directions above)

The reason to do it this way is that the activated charcoal grains can

actually have a reverse effect and upset the mucosal lining. My

herbalist explained this to me. One time when I wasn't patient enough

I did drink it without letting it settle and it is in fact upsetting.

I am sure people will have different ways to take it. This really

works for me.

I make a few cups at a time and leave on counter and that way I have

it ready to drink whenever I need it.

Jodi

SCD 9 months

Crohn's/Colitis

>

> I purchased some activated charcoal at lunch today. They didn't have

a powder, but had capsules. Each capsule is 280mg. It says the only

ingredients are activated charcoal and gelatin " Soloray guarantees it

has added NO ingredients other thatn those listed on this label " . So,

that's good. How exactly should I take it, or how would YOU take it?

[Guest guest]

OHH.. after pouring water in cup MIX WITH SPOON so it doesn't stay

clumpy and floating in water!!

Also, throw the opened capsules away.

Sorry for forgetting this.

Jodi

SCD 9 months

Crohn's/Colitis

>

> Hi Misty,

>

> Open 2 capsules into cup (do a few cups like 4 cups at one time)

> Boil some water

> pore over charcoal. Be careful as the stuff poofs up and can get you

> and everything dirty (don't do it in pretty clothes)

> let it sit (at least an hour) and wait to see that the charcoal grains

> go to the bottom and the water just stays dyed like a grey'ish color

> and isn't black- meaning you can see through it.

> and drink.

> don't drink the mud at the end. I actually reuse the charcoal one

> more time (same directions above)

[Guest guest]

Thanks Jodi. Impatienty awaiting your response, I took a capsule though I will follow your instructions for next time.

How do you know when you need some?

How much do you normally drink at one time?

Thanks again!!!!

Misty Kimble

CD

SCD - 6 months

Hi Misty,

I make a few cups at a time and leave on counter and that way I haveit ready to drink whenever I need it.JodiSCD 9 monthsCrohn's/Colitis

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[Guest guest]

Hi Misty,

I'm sorry I know you are suffering with this massive headache of

yours:( not as attached to the hip with my mac although I am feeling a

little better today.

If I start feeling bad like my tummy starts aching or if I am having

an intense sugar crave or sugar high I drink it. I also drink it if I

feel very brain foggy and just mentally cluttered- not functioning

very well (sometimes I even find myself searching for a word or

stuttering this seems to also have to do with yeast surges) I drink it.

I will drink like up to 5-6 glasses of this during day. Sometimes

evening/night alone I will drink 3 glasses. I do this in bouts though

as it isn't an everyday thing for me. I would say every couple of

weeks I do this for a few days at a time. I do it according to how my

body feels (I know statements like this are annoying as it is hard to

pinpoint and understand what it is I am saying!)

It is important to note that charcoal flushes the system and with that

also depletes the body of minerals/nutrients. So on days it isn't bad

I might drink a glass in morning and a glass in evening.

Took a few glasses for this to help my headache (I too suffer from

headaches) but keep it going a couple of days. Don't take too close

to headache medication. Not sure if it can lessen effect of meds. I

will ask my herbalist next time.

Also, I find that chiropractic care and acupuncture have really helped

my headaches in the past. Just recently I resumed going to a chiro

and it was bliss for my head/shoulder/back.

I hope I will be able to go on Thur and not feel too faint.

Anyway HTH,

Jodi

SCD 9 months

Crohn's/Colitis

>

> Thanks Jodi. Impatienty awaiting your response, I took a capsule

though I will follow your instructions for next time.

>

> How do you know when you need some?

> How much do you normally drink at one time?

[Guest guest]

It's a slow day at work, that's the only reason I'm on here so much today. Usually I just get on a couple times a day at work.

Thanks for the detailed response. I will start trying it your way to see if it helps. I have intense sugar cravings and wind up toasting some chopped nuts and adding raisins until they're hot and then adding honey too. It's legal and satisfies my craving, but my gut doesn't like it. If the charcoal will help with that, I would be so happy.

I really can't afford to go a chiropractor or anything that's not mandatory. I haven't even gone to my GI since starting SCD to shove it in her face that I fixed myself with diet ALONE and she was wrong about diet not playing a role in Crohn's, but I just don't have the money to splurge to do that. My insurance only covers hospital stays and procedures.

Do you ever mix yours with anything like tea? I usually have a glass of hot tea before bed and was wondering if I could use the "charcoal water" to make my tea with.

Since it depletes your body, do you take anything extra when you drink it? (like the electrolyte drink or a multi vitamin)

Thanks!!!

Misty Kimble

Subject: Re: SCD legal headache medicineTo: BTVC-SCD Date: Tuesday, July 15, 2008, 2:49 PM

I'm sorry I know you are suffering with this massive headache ofyours:( not as attached to the hip with my mac although I am feeling alittle better today.If I start feeling bad like my tummy starts aching or if I am havingan intense sugar crave or sugar high I drink it. I also drink it if Ifeel very brain foggy and just mentally cluttered- not functioningvery well (sometimes I even find myself searching for a word orstuttering this seems to also have to do with yeast surges) I drink it.I will drink like up to 5-6 glasses of this during day. Sometimesevening/night alone I will drink 3 glasses. I do this in bouts thoughas it isn't an everyday thing for me. I would say every couple ofweeks I do this for a few days at a time. I do it according to how mybody feels (I know statements like this are annoying as it is hard topinpoint and understand what it is I am saying!)It is important to

note that charcoal flushes the system and with thatalso depletes the body of minerals/nutrients. So on days it isn't badI might drink a glass in morning and a glass in evening.Took a few glasses for this to help my headache (I too suffer fromheadaches) but keep it going a couple of days. Don't take too closeto headache medication. Not sure if it can lessen effect of meds. Iwill ask my herbalist next time.Also, I find that chiropractic care and acupuncture have really helpedmy headaches in the past. Just recently I resumed going to a chiroand it was bliss for my head/shoulder/ back.I hope I will be able to go on Thur and not feel too faint.Anyway HTH,JodiSCD 9 monthsCrohn's/Colitis>> Thanks Jodi. Impatienty awaiting

your response, I took a capsulethough I will follow your instructions for next time.> > How do you know when you need some?> How much do you normally drink at one time?

[Guest guest]

Hey Misty..

>

> It's a slow day at work, that's the only reason I'm on here so much

today. Usually I just get on a couple times a day at work.

Seriously, don't worry about it as most of my days can be slow LOL!

Besides you want relief with your headache, I totally understand.

> Thanks for the detailed response. I will start trying it your way to

see if it helps.

It can -sometimes- really help me!!

> Do you ever mix yours with anything like tea? I usually have a glass

of hot tea before bed and was wondering if I could use the " charcoal

water " to make my tea with.

It would not be suggested to mix it with tea or honey or anything like

that! It's tasteless! And as long as you let it settle it's like

drinking a glass of water.

> Since it depletes your body, do you take anything extra when you

drink it? (like the electrolyte drink or a multi vitamin)

I should, I just haven't found the right electrolyte combo or a

multivitamin that agrees with me!

Jodi

SCD 9 months

Crohn's/Colitis