Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi, A little about me (sorry if spelling is bad or my sentences don't make sense - I read and re-read to try to find errors, but my typing and cognitive function are not what they used to be). Ha! I just re-read the sentence above and my brain is having fun tonight replacing " is " with " are " and vice-versa. So weird, and yet I can't help but be a little amused by the fact that it's so consistent in errors - like two wires totally crossed. Anyhow... I'm a 36-year-old female, married, no children. Work full time. It all started (or so I originally thought) last November when I started feeling dizzy, couldn't think, saw spots, and was more tired that I had ever been in my life. And when I was in a warm room and/or stressed it got SO much worse. I thought it was low blood pressure or something, since I had been to the doc about week before with some bad flu and my pressure had been something like 90/58. So I went to my primary care doctor, who determined that my blood pressure was fine, but she seemed to know something wasn't right, and so ordered an MRI. The MRI showed lesions (9, I think) and I was referred to a neurologist. I had more MRIs, MRA, ENG, blood work, physicals, etc. Each test rules out something else. When the neurologist and I originally spoke, there was an endless list of things it could be, MS being only one. Well, now the list is pretty darn short. In fact, he couldn't think of anything else it could be, but I'm going in for a VEP and an LP in about a week to see if that helps with absolute confirmation. I've been prescribed Antivert for my vertigo which allows me to think just clearly enough to go to work. But although I've been latching onto the hope that it could be something else, I've come to the realization since my last appointment that it's a very probably diagnosis. My big fear is for my job, which I absolutely love. I've had medical crisis before and really, I've only gotten stronger each time. Once I have a diagnosis and a path, you better believe I'm going to fight like a wet cat. But my job is extremely fast-paced, creative and stressful, and there are some days I find it very difficult to turn things around under tight deadlines. I mentioned to my boss that I didn't feel well when I went to the doctor the first time (and when he asks now, I make light of it), but I am terrified that the day will come when I have to explain myself. Just typing this, quite honestly, makes me cry. I've fought my whole life for an opportunity like this one. I really have no idea what to do, and I hate that. I'm the proactive one, the take-charge one, the clever and creative one. Eh, one day at a time I guess. Sorry to ramble on so long. I haven't talked to anyone about this much - my parents would only freak themselves out (I've been pretty vague with what's been going on) and my husband is already pretty upset. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Sheridan, Find your local National MS Society here: http://www.nationalmssociety.org/site/PageServer?pagename=hom_gen_homepage They will have lots of info for you. They have info on how to talk to your employer also. I am unable to work but I sure hope you will be able to continue to do so. Good luck. And we're here to answer any questions we can. hugs, ShirleyLife is short, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile. Hi, I'm new Hi,A little about me (sorry if spelling is bad or my sentences don't make sense - I read and re-read to try to find errors, but my typing and cognitive function are not what they used to be). Ha! I just re-read the sentence above and my brain is having fun tonight replacing "is" with "are" and vice-versa. So weird, and yet I can't help but be a little amused by the fact that it's so consistent in errors - like two wires totally crossed.Anyhow...I'm a 36-year-old female, married, no children. Work full time.It all started (or so I originally thought) last November when I started feeling dizzy, couldn't think, saw spots, and was more tired that I had ever been in my life. And when I was in a warm room and/or stressed it got SO much worse. I thought it was low blood pressure or something, since I had been to the doc about week before with some bad flu and my pressure had been something like 90/58. So I went to my primary care doctor, who determined that my blood pressure was fine, but she seemed to know something wasn't right, and so ordered an MRI. The MRI showed lesions (9, I think) and I was referred to a neurologist. I had more MRIs, MRA, ENG, blood work, physicals, etc. Each test rules out something else. When the neurologist and I originally spoke, there was an endless list of things it could be, MS being only one. Well, now the list is pretty darn short. In fact, he couldn't think of anything else it could be, but I'm going in for a VEP and an LP in about a week to see if that helps with absolute confirmation.I've been prescribed Antivert for my vertigo which allows me to think just clearly enough to go to work.But although I've been latching onto the hope that it could be something else, I've come to the realization since my last appointment that it's a very probably diagnosis. My big fear is for my job, which I absolutely love. I've had medical crisis before and really, I've only gotten stronger each time. Once I have a diagnosis and a path, you better believe I'm going to fight like a wet cat. :)But my job is extremely fast-paced, creative and stressful, and there are some days I find it very difficult to turn things around under tight deadlines.I mentioned to my boss that I didn't feel well when I went to the doctor the first time (and when he asks now, I make light of it), but I am terrified that the day will come when I have to explain myself. Just typing this, quite honestly, makes me cry. I've fought my whole life for an opportunity like this one. I really have no idea what to do, and I hate that. I'm the proactive one, the take-charge one, the clever and creative one.Eh, one day at a time I guess. Sorry to ramble on so long. I haven't talked to anyone about this much - my parents would only freak themselves out (I've been pretty vague with what's been going on) and my husband is already pretty upset. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
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