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Re: structuring one's day/ Well some days I do that!

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But even for me, there are days, or even several days when I want

to get out and do things with my friends and my family, and I find

it difficult to determine whether it is that I do not want to do so, or

that I cannot do so. Usually, I truly cannot do so, and that is a

real downer. Today and yesterday I was actually up and at 'em,

but the fog came in both days. I did not go anywhere, could not

see the house next door from my apartment window. I am not

about to lose my driver's license due to the fog and have it blamed

on either MS or my seizure disorder! Some days, and this is a

luctury for us who are retired, I just do not get a lot done, not in

the way that I had hoped to for that day. On the other hand, you

would not believe the amount of food that I cooked and froze over

the last two days. . . preparing for the days when about all I can

do is turn on the microwave!

Love to you, Kate! Cassy has said it all, and so well.

Love to you, too, Cassy, and to all in our group,

n

>

>

>

>

> It sure is! Thanks Kate.You are a wonderful mother! You are so involed

> with your kids in everything.No,I have never seen you all together but

> I do hear you talk to them on the phone and you are very loving and

> respect them more then I have seen most moms.And ever time I talk to

> you or see you post you are always doing something for your family.They

> are so blessed to have you,and maybe they dont realize it now but 1 day

> they will and you will see what a great mom you were and always will

> be.Me and Rene hav not been getting along lately,he has been a real

> jerk.So,I am grateful to have my fam(which includes all of you). I love

> you too!

> hugz,cassy

>

> Re: structuring one's day

>

> Re: structuring one's

> day

>

> Oh Cassy, It is so hard, isn't it?

> I have yet to get my walker. Some days I don't need it, but I

> should have it

> here as 'back up' for the days I do. I feel so guilty not being a

> better mom

> to my kids. You are blessed to have your mom around and close to

> you. My mom

> is 83 and not too well, and doesn't even know I have MS. Don't

> worry. You

> are not going on. And no, you are not rotting away in your house.

> You have

> Rene, and you have the girls, and your mom, and your grandma too.

> AND all of

> us, who adore you!! I love you, Cassy, always, Kate

>

> Kate. I know what you mean. These days I only get out for docs

>

> appts.Well,except this weekend I went to my moms for the day.Most days

>

> I feel so un-productive its depressing.The only thing that keeps me

>

> sane is hanging out with the girls and thats only if im not sick in

>

> bed(which is happening way to much these days)I color with them,or play

>

> playstation,or watch a movie together.But I just hate that I cant

> load

> them up in the car and go to the park for a picnic.Before I became

>

> housebound and unable to drive we would go to the park twice a wk,go

>

> visit my sis and mom,meet up for lunch,etc. Clean my house,I was always

>

> so busy.Now it seems I rot away in my house.Its just easier I

>

> guess.Even going to my moms was so hard.My walker dosnt fit there so

>

> had to use my cane and it was a struggle.By the time we left I was

>

> crying in pain and my mom had to stay at my house and take care of me

>

> like a baby.Ok.im goin on and on.Sorry.

> luv n hugz,cassy

>

> .

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> __________________________________________________________

> More new features than ever. Check out the new AOL Mail ! -

> http://webmail.aol.com

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n. We all have are share of bad days dont we? What a good

idea.Wish I felt well enough to cook and freeze that would help so

much. Its sometimes hard to admit why we cannot do things.I sometimes

push myself just to prove to ME that I CAN do it,but I usually fail.

But thats ok because im trying to prove to me and not anyone else.

So,its like im not disapointing anyone but me. I know I disapoint some

people like Rene but I have reached my conclusion.What can I do? It is

what it is and as Long as I try my best and dont rot in bed then that

must count for something. Love to you too n! And I know what ya

mean about the license thing.I do not drive for many reasons but I do

keep my license. And I know that if anything were to happen,like an

accident, it would be easy for them to blame my health and take it for

good.No way! Hang in there on those bad days.At least we always know

that the next day can be better.

hugz,cassy

Re: structuring one's day

>

> Re: structuring one's

> day

>

> Oh Cassy, It is so hard, isn't it?

> I have yet to get my walker. Some days I don't need it, but I

> should have it

> here as 'back up' for the days I do. I feel so guilty not being a

> better mom

> to my kids. You are blessed to have your mom around and close to

> you. My mom

> is 83 and not too well, and doesn't even know I have MS. Don't

> worry. You

> are not going on. And no, you are not rotting away in your house.

> You have

> Rene, and you have the girls, and your mom, and your grandma too.

> AND all of

> us, who adore you!! I love you, Cassy, always, Kate

>

> Kate. I know what you mean. These days I only get out for docs

>

> appts.Well,except this weekend I went to my moms for the day.Most days

>

> I feel so un-productive its depressing.The only thing that keeps me

>

> sane is hanging out with the girls and thats only if im not sick in

>

> bed(which is happening way to much these days)I color with them,or

play

>

> playstation,or watch a movie together.But I just hate that I cant

> load

> them up in the car and go to the park for a picnic.Before I became

>

> housebound and unable to drive we would go to the park twice a wk,go

>

> visit my sis and mom,meet up for lunch,etc. Clean my house,I was

always

>

> so busy.Now it seems I rot away in my house.Its just easier I

>

> guess.Even going to my moms was so hard.My walker dosnt fit there so

>

> had to use my cane and it was a struggle.By the time we left I was

>

> crying in pain and my mom had to stay at my house and take care of me

>

> like a baby.Ok.im goin on and on.Sorry.

> luv n hugz,cassy

>

> .

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> __________________________________________________________

> More new features than ever. Check out the new AOL Mail ! -

> http://webmail.aol.com

>

#AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

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Thank you, Cassy! I am so congenitally organized that it just kills

me NOT to be as organized as I have been all my life. Though, my

2nd eldest daughter has me beat by miles; her place is like a hotel:

all food containers labeled--sheets stacked and wrapped in ribbons!

I fight the urge to say to her, " Oh, honey! I had no idea the photogra

phers were coming! I'll come back in an hour! "

Love to you, Cassy, and to each of you struggling to get

through each hour, each day, each night!

Love to you all,

n

>

>

>

>

> n. We all have are share of bad days dont we? What a good

> idea.Wish I felt well enough to cook and freeze that would help so

> much. Its sometimes hard to admit why we cannot do things.I sometimes

> push myself just to prove to ME that I CAN do it,but I usually fail.

> But thats ok because im trying to prove to me and not anyone else.

> So,its like im not disapointing anyone but me. I know I disapoint some

> people like Rene but I have reached my conclusion.What can I do? It is

> what it is and as Long as I try my best and dont rot in bed then that

> must count for something. Love to you too n! And I know what ya

> mean about the license thing.I do not drive for many reasons but I do

> keep my license. And I know that if anything were to happen,like an

> accident, it would be easy for them to blame my health and take it for

> good.No way! Hang in there on those bad days.At least we always know

> that the next day can be better.

> hugz,cassy

>

> Re: structuring one's day

>

> >

>

> > Re: structuring one's

>

> > day

>

> >

>

> > Oh Cassy, It is so hard, isn't it?

>

> > I have yet to get my walker. Some days I don't need it, but I

>

> > should have it

>

> > here as 'back up' for the days I do. I feel so guilty not being a

>

> > better mom

>

> > to my kids. You are blessed to have your mom around and close to

>

> > you. My mom

>

> > is 83 and not too well, and doesn't even know I have MS. Don't

>

> > worry. You

>

> > are not going on. And no, you are not rotting away in your house.

>

> > You have

>

> > Rene, and you have the girls, and your mom, and your grandma too.

>

> > AND all of

>

> > us, who adore you!! I love you, Cassy, always, Kate

>

> >

>

> > Kate. I know what you mean. These days I only get out for docs

>

> >

>

> > appts.Well,except this weekend I went to my moms for the day.Most days

>

> >

>

> > I feel so un-productive its depressing.The only thing that keeps me

>

> >

>

> > sane is hanging out with the girls and thats only if im not sick in

>

> >

>

> > bed(which is happening way to much these days)I color with them,or

> play

>

> >

>

> > playstation,or watch a movie together.But I just hate that I cant

>

> > load

>

> > them up in the car and go to the park for a picnic.Before I became

>

> >

>

> > housebound and unable to drive we would go to the park twice a wk,go

>

> >

>

> > visit my sis and mom,meet up for lunch,etc. Clean my house,I was

> always

>

> >

>

> > so busy.Now it seems I rot away in my house.Its just easier I

>

> >

>

> > guess.Even going to my moms was so hard.My walker dosnt fit there so

>

> >

>

> > had to use my cane and it was a struggle.By the time we left I was

>

> >

>

> > crying in pain and my mom had to stay at my house and take care of me

>

> >

>

> > like a baby.Ok.im goin on and on.Sorry.

>

> > luv n hugz,cassy

>

> >

>

> > .

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > __________________________________________________________

>

> > More new features than ever. Check out the new AOL Mail ! -

>

> > http://webmail.aol.com

>

> >

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> __________________________________________________________

> More new features than ever. Check out the new AOL Mail ! -

> http://webmail.aol.com

>

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Share on other sites

Definetly know what you mean. Before I got sick I was like 1 of the

Stepford wives.lol. My house was always spotless and organized. I even

cleaned my walls once a week. They can get pretty dirty.lol. Now,My

house looks like a tornado hit.lol. Do not ask me for any kind of paper

because it will take me 2 wks.to find it.lol. My 4 yr.old folds the

towels and just loves it.I tought her how,same way I do and she does it

better then me.She folds them and stacks them in the hall closet and it

looks Beautiful! And I have clutter everywere.Tons of things need gone

through and sent to the goodwill but I am to sick to do it.Wow! Your

daughters house sounds super clean!

hugz,cassy

Re: structuring one's day

>

> >

>

> > Re: structuring one's

>

> > day

>

> >

>

> > Oh Cassy, It is so hard, isn't it?

>

> > I have yet to get my walker. Some days I don't need it, but I

>

> > should have it

>

> > here as 'back up' for the days I do. I feel so guilty not being a

>

> > better mom

>

> > to my kids. You are blessed to have your mom around and close to

>

> > you. My mom

>

> > is 83 and not too well, and doesn't even know I have MS. Don't

>

> > worry. You

>

> > are not going on. And no, you are not rotting away in your house.

>

> > You have

>

> > Rene, and you have the girls, and your mom, and your grandma too.

>

> > AND all of

>

> > us, who adore you!! I love you, Cassy, always, Kate

>

> >

>

> > Kate. I know what you mean. These days I only get out for docs

>

> >

>

> > appts.Well,except this weekend I went to my moms for the day.Most

days

>

> >

>

> > I feel so un-productive its depressing.The only thing that keeps me

>

> >

>

> > sane is hanging out with the girls and thats only if im not sick in

>

> >

>

> > bed(which is happening way to much these days)I color with them,or

> play

>

> >

>

> > playstation,or watch a movie together.But I just hate that I cant

>

> > load

>

> > them up in the car and go to the park for a picnic.Before I became

>

> >

>

> > housebound and unable to drive we would go to the park twice a wk,go

>

> >

>

> > visit my sis and mom,meet up for lunch,etc. Clean my house,I was

> always

>

> >

>

> > so busy.Now it seems I rot away in my house.Its just easier I

>

> >

>

> > guess.Even going to my moms was so hard.My walker dosnt fit there so

>

> >

>

> > had to use my cane and it was a struggle.By the time we left I was

>

> >

>

> > crying in pain and my mom had to stay at my house and take care of

me

>

> >

>

> > like a baby.Ok.im goin on and on.Sorry.

>

> > luv n hugz,cassy

>

> >

>

> > .

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91

>

> >

>

> > __________________________________________________________

>

> > More new features than ever. Check out the new AOL Mail ! -

>

> > http://webmail.aol.com

>

> >

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> #AOLMsgPart_2_268e8e69-20e4-4151-9935-c5f17fa69b3b

>

> __________________________________________________________

> More new features than ever. Check out the new AOL Mail ! -

> http://webmail.aol.com

>

#AOLMsgPart_2_fd214eaa-d643-4612-8d19-9e1cee0ef10f

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Cassy! lol!

Listen, do you belong to a church or temple?

I would see if there might be a group that might

come in say, once a month or so, and give you

a hand with practical needs. My church has

such a group dedicated to that. Meals, rides,

help with moving, cleaning, decluttering...it

is awesome! Or, they will get a group together

to donate to having someone come in and

clean professionally. It can be humbling, but

it is so worth it. I'd look into it if I were you. Or

see if your mom could look into it. Just a thought

hun. Take care. love you, Kate

Definetly know what you mean. Before I got sick I was like 1 of the Stepford wives.lol. My house was always spotless and organized. I even cleaned my walls once a week. They can get pretty dirty.lol. Now,My house looks like a tornado hit.lol. Do not ask me for any kind of paper because it will take me 2 wks.to find it.lol. My 4 yr.old folds the towels and just loves it.I tought her how,same way I do and she does it better then me.She folds them and stacks them in the hall closet and it looks Beautiful! And I have clutter everywere.Tons of things need gone through and sent to the goodwill but I am to sick to do it.Wow! Your daughters house sounds super clean!hugz,cassy

..

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n! This is a beautiful post! You truly have a way with words!

And a way with life! I love your spirit! You inspire and motivate me

in ways you cannot imagine! I love you and your carpe diem outlook!

And your wisdom to know the days to lay low! love to you my friend,

Kate

Re: structuring one's> day>> Oh Cassy, It is so hard, isn't it?> I have yet to get my walker. Some days I don't need it, but I> should have it> here as 'back up' for the days I do. I feel so guilty not being a> better mom> to my kids. You are blessed to have your mom around and close to> you. My mom> is 83 and not too well, and doesn't even know I have MS. Don't> worry. You> are not going on. And no, you are not rotting away in your house.> You have> Rene, and you have the girls, and your mom, and your grandma too.> AND all of> us, who adore you!! I love you, Cassy, always, Kate>> Kate. I know what you mean. These days I only get out for docs>> appts.Well,except this weekend I went to my moms for the day.Most days>> I feel so un-productive its depressing.The only thing that keeps me>> sane is hanging out with the girls and thats only if im not sick in>> bed(which is happening way to much these days)I color with them,or play>> playstation,or watch a movie together.But I just hate that I cant> load> them up in the car and go to the park for a picnic.Before I became>> housebound and unable to drive we would go to the park twice a wk,go>> visit my sis and mom,meet up for lunch,etc. Clean my house,I was always>> so busy.Now it seems I rot away in my house.Its just easier I>> guess.Even going to my moms was so hard.My walker dosnt fit there so>> had to use my cane and it was a struggle.By the time we left I was>> crying in pain and my mom had to stay at my house and take care of me>> like a baby.Ok.im goin on and on.Sorry.> luv n hugz,cassy>> .>> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91>> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91>> #AOLMsgPart_2_222e7c5b-9af6-4112-9cd2-75871449dc91>> __________________________________________________________> More new features than ever. Check out the new AOL Mail ! -> http://webmail.aol.com>

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Cassy,

Kate is right. Check out your church. I

know that our church has a group called Helping Hands and they do just that.

They will help you move, work in your yard, take you to the doctor….among

many other things. I belong to a Methodist church but I am sure many

denominations have services just like that.

I have found, like Kate that my church “family”

is there for me whenever I need them. Last night, three of my “sisters”

treated me to dinner after I passed my Texas

teacher’s certification exam. They picked me up and took me out. It was

wonderful.

Support and friendship are just as

important as food and shelter to me!!!

Have a good day,

Connie

From: MSersLife

[mailto:MSersLife ] On Behalf

Of Kate Rothschild

Sent: Wednesday, January 16, 2008

5:41 AM

To: MSersLife

Subject: Re: structuring

one's day/ Well some days I do that!

Cassy! lol!

Listen, do you belong to a church or temple?

I would see if there might be a group that might

come in say, once a month or so, and give you

a hand with practical needs. My church has

such a group dedicated to that. Meals, rides,

help with moving, cleaning, decluttering...it

is awesome! Or, they will get a group together

to donate to having someone come in and

clean professionally. It can be humbling, but

it is so worth it. I'd look into it if I were you. Or

see if your mom could look into it. Just a thought

hun. Take care. love you, Kate

Definetly

know what you mean. Before I got sick I was like 1 of the

Stepford wives.lol. My house was always spotless and organized. I even

cleaned my walls once a week. They can get pretty dirty.lol. Now,My

house looks like a tornado hit.lol. Do not ask me for any kind of paper

because it will take me 2 wks.to find it.lol. My 4 yr.old folds the

towels and just loves it.I tought her how,same way I do and she does it

better then me.She folds them and stacks them in the hall closet and it

looks Beautiful! And I have clutter everywere.Tons of things need gone

through and sent to the goodwill but I am to sick to do it.Wow! Your

daughters house sounds super clean!

hugz,cassy

..

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Share on other sites

Hey Kate. I am ashamed to say but I dont belong to any church or

temple.:( I always want to go but its just to hard to get outta the

house. Once or should I say if I get disabilty I think Im gonna start

to pay my mom out of my $. She will come and cook and clean even if I

tell her not too.Sometimes when I know shes comn me and the girls hurry

and pick up and I start the dishes. Otherwise she goes threw the house

like tazmanian devil but instead of a mess its squeky clean.lol. She is

my lifesaver. I jus wish I could take care of her you know? She raised

me all my life and now shes doin all the things for me I should be

doing for her. Well,maybe 1 of these days the roll can be reversed.

Thanks kate!

hugz,cassy

Re: structuring one's day/ Well some days I do that!

Cassy! lol!

Listen, do you belong to a church or

temple?

I would see if there might be a group that

might

come in say, once a month or so, and give you

a hand with practical needs. My church has

such a group dedicated to that. Meals, rides,

help with moving, cleaning, decluttering...it

is awesome! Or, they will get a group together

to donate to having someone come in and

clean professionally. It can be humbling, but

it is so worth it. I'd look into it if I were you.

Or

see if your mom could look into it. Just a

thought

hun. Take care. love you, Kate

Definetly know what you mean. Before I got sick I was like 1 of the

Stepford wives.lol. My house was always spotless and organized. I even

cleaned my walls once a week. They can get pretty dirty.lol. Now,My

house looks like a tornado hit.lol. Do not ask me for any kind of paper

because it will take me 2 wks.to find it.lol. My 4 yr.old folds the

towels and just loves it.I tought her how,same way I do and she does it

better then me.She folds them and stacks them in the hall closet and it

looks Beautiful! And I have clutter everywere.Tons of things need gone

through and sent to the goodwill but I am to sick to do it.Wow! Your

daughters house sounds super clean!

hugz,cassy

.

#AOLMsgPart_2_52550281-0f6e-4f75-b8ff-343394562127

#AOLMsgPart_2_52550281-0f6e-4f75-b8ff-343394562127

#AOLMsgPart_2_52550281-0f6e-4f75-b8ff-343394562127

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Hi Connie. Thanks so much. I am ashamed to say I dont belong to a

church. I have been thinking about it for some time it is just so hard

to get out of the house.I do pray all throughout the day and do read

the bible(a wonderful couples bible a dear friend gave me as a gift)

but I am housebound so dont leave much at all. Wow. Helping hands

sounds awesome. What a great thing for the church to offer. How sweet

of your sisters to take you out to celebrate.I hope you had a great

time. By the way,Congrats again! You and those close to you must be so

proud. Luv n hugz,cassy

Re: structuring

one's day/ Well some days I do that!

Cassy! lol!

Listen, do you belong to a church or temple?

I would see if there might be a group that might

come in say, once a month or so, and give you

a hand with practical needs. My church has

such a group dedicated to that. Meals, rides,

help with moving, cleaning, decluttering...it

is awesome! Or, they will get a group together

to donate to having someone come in and

clean professionally. It can be humbling, but

it is so worth it. I'd look into it if I were you. Or

see if your mom could look into it. Just a thought

hun. Take care. love you, Kate

Definetly

know what you mean. Before I got sick I was like 1 of the

Stepford wives.lol. My house was always spotless and organized. I even

cleaned my walls once a week. They can get pretty dirty.lol. Now,My

house looks like a tornado hit.lol. Do not ask me for any kind of paper

because it will take me 2 wks.to find it.lol. My 4 yr.old folds the

towels and just loves it.I tought her how,same way I do and she does it

better then me.She folds them and stacks them in the hall closet and it

looks Beautiful! And I have clutter everywere.Tons of things need gone

through and sent to the goodwill but I am to sick to do it.Wow! Your

daughters house sounds super clean!

hugz,cassy

..

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