Re: I had no idea....../Gillette Question To: , new member

[Guest guest]

Hi !

Welcome to the group!

We have several active members from your area, so I added Gillette

to your subject line to highlight your post. I hope they can give

you some insight into specialists available in your area, as well as

helmeting and banding options if you are considering this treatment

option.

I think most plagio babies in your area are indeed seen at Gillette,

and if helmet therapy is warranted, Gillette uses their own

CranioCap. The Cranio Cap is a passive cap, FDA approved, and there

are several CranioCap babies that are members of the group. Here is

Gillette's webpage on the CranioCap if you're interested:

http://www.gillettechildrens.org/default.cfm?pid=1.3.6.4#CranioCap

There is also a before and after of the cranio cap from one of our

group babies, Jaden. Just check the photos/before and after/local

helmet/Jaden.

We have also recently learned of some other, active, banding options

that may not be too far from you. They are at Hanger O & P in Hibbing

and Duluth. Just go to www.hanger.com , and click on " Facility

Locator " and enter your state. Only a minority of Hanger locations

offer helmeting and banding, so you'll have to call around

specifically to ask about helmet availability as well as ortho

experience.) The Hanger Cranial Band is active, FDA approved, and

resembles the Starband www.orthomerica in appearance.

I know that other members from your area can provide more thorough

info on their Gillette experience!!

Also, what kind of severity is your daughter?? At her age,

repositioining might be an option, although it is very, very

difficult to repo a baby with tort. Would you let me know if I can

offer you any help in the repositioning area?

Take care,

Christie (Mom to Repo'd Remy)

> > Hi. My name is Shiela and I am new to this group. I had no

idea

> so

> > many children had Plagio. My daughter, Amelia, is 6 months

and

> has

> > been wearing a cranio cap for about 6 weeks. I first noticed

the

> > problem at 2 months and brought it to my peds attention.

(there

> are

> > 2 other kids in my playgroup who have had the cranio cap, so I

new

> > what to look for) My ped gave me some stretching excercises

to do

> > for Amelia's torticollis and said to wait until the 4 month

check

> to

> > see if her head was better. At 4 months her head was still

quite

> > flat so she referred me to a wonderful cranio-facial surgeon

at

> > Gillettes Childrens Hospital in St. , MN. He reccommended

the

> > cap saying hers was one of the more severe cases he had seen.

But

> > thanks to my peds advice about stretching her neck her tort

was

> > almost gone and she did not need p.t. She had to endure the

> > plastering process 2 times because the first helmet they made

was

> > too small. ( The process only takes 5 minutes from start to

> finish,

> > so that wasn't too bad) The first 4 weeks were very rough

because

> > she is growing so fast that her helmet would be too snug

within a

> > matter of days. But we are able to see our orthotist once a

week

> > and things are getting better. When we first started the

helmet

> she

> > would shut down and just sort of lie there. Now she is her

happy

> > self and her head is changing shape. (Although we are still no

> where

> > near the reccommended 22 hours a day with the helmet on....she

> can't

> > sleep in it)Anyway, I'm glad there are so many other parents

out

> > there dealing with these issues. And it's nice to know that

if I

> > have a concern one of you have been there and can help me

through

> it!

> >

> > Shiela--Amelia 6 months-cranio cap: June 2004

>

>

>

> For more plagio info