Val: Re: NORD and Avonex and Disability

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Are you taking anything for the fatigue? I just started Lyrica 3 weeks ago as I was Dx'd with fibro at my last neuro appt. Calling the office today to tell him I am stopping it and going back to Neurontin. Before the Neurontin, I was getting the wild electric shocks for my eye to my toes on one side. After each episode, that arm and hand would be completely dead and useless, paralyzed I suppose, for about 30 minutes. These stopped after about a month on the Neurontin. I have had two episodes this past week. Not as severe as the original ones as far as paralysis, but the pain is excrutiating! The Lyrica worked on my head, neck and shoulders, but it's not worth it to have to deal with these episodes again. Anyway, point being in all of this, the fatigue was the next symptom to tackle. It will be put on hold while I adjust back to the Neurontin. Love ya! TammyVal Lee wrote: {{{Tammy}}} I'm glad to hear that you're at least getting some treatment. Hopefully the information that you send in will give you a better chance of getting approved. I know what you mean by the fatigue. Gosh, I get so tired of wearing a smile on my face and pretending that I'm alright, when in reality, a lot of the time I'm literally forcing myself just to

speak. Thanks for checking in. Love you loads... ValTammy in Texas <tamatha_tx> wrote: Well, finally got a call back from NORD and the woman told me some of the items to send in that would give me a better chance of getting approved for some help. Still depending on Avonex and its wonderful people to send me free shots every month. They have been just the best! Made a promise to myself that when I finally get some help, I will return the favor somehow. Was told today that my neuro put me on another 90 days of disability. So now I am out until April 15th. Good in a way, but just wish I would get some idea of how my SSDI

is going. He wanted to know what improvements there have been. I told him my balance is better and I haven't had any exacerbations. Other than that, things are still the same. It's the dang fatigue that keeps me from going back to work more than any other symptom. He told me we would work on that when my meds were on a more even regiment. I can understand that. Thought I better let you all know what has been going on before you send some posse after me! LOL Love to you all! Tammy, Tx Do you know someone with Multiple Sclerosis? Help find a cure! http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Never miss a thing. Make Yahoo your homepage. Do you know

someone with Multiple Sclerosis? Help find a cure! http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/

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