Introduction

[Guest guest]

Hi ,

Welcome to the list!! As for vitamins, everyone takes different things so I

think it depends on what kind your taking. Make sure they have potassium in

them. I am on Atkins dieters advantage, Atkins Basic 3, and Atkins Essential

oils. I take them before meals and exercising. Hope this helps

Penny

173/162/130

Visit my family at: <A

HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home

Page</A>

[Guest guest]

,

I took atkins vitamins cause frankly, the whole vitamin thing just confused

the heck out of me. There are people who take multi-vitamins, I think 2 a

day. I have been on it since mid May, but went off for a wedding and then on

vacation my goal was to maintain my 10 pound loss and I did that by eating

high carb, 1 meal a day for the 2 1/2 weeks I was on it. And I did just that!!

Penny

173/162/130

Visit my family at: <A

HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home

Page</A>

[Guest guest]

I haven't started the diet yet. Iwill on Wednesday. Do you have to take the

actual Atkins vitamins or will a good multi-vitamin do?Do you take extra

chromium picol.?Just curious- How long have you been on the diet and how

much have you lost?

Re: Re: Introduction

>From: Shadcat708@...

>

>Hi ,

>

>Welcome to the list!! As for vitamins, everyone takes different things so I

>think it depends on what kind your taking. Make sure they have potassium in

>them. I am on Atkins dieters advantage, Atkins Basic 3, and Atkins

Essential

>oils. I take them before meals and exercising. Hope this helps

>

>Penny

>173/162/130

>Visit my family at: <A

>HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " >

Home

>Page</A>

>

>---------------------------

[Guest guest]

Gayle,

Welcome. If you feel you're in the right place, you probably are.

There is quite a range of behavior in bp's, not all do the same

thing or think the same way. When you look at SWOE, you will see a

list of characteristics, and to be diagnosed, the bp only has to

have some of them.

Your daughter may be high-functioning - I hope so - but the insight

you will gain from many people here should help you understand and

deal with her even better than you do now. This board is about the

parents of bp's, so it will not help you to " cure " her (which

parents can't do), but how to cope in such a way that your family's

quality of life is improved.

Please keep posting. Perhaps some of your experience will help

others as well.

Carolyn

> Hi, everyone,

>

> I'm really not 100% sure I'm in the right place, as my daughter

(age 19)

> has never been diagnosed ... however, a conversation with a friend

(who

> happens to be a psychiatrist) led to talking about our situation

here at

> home and she suggested that I look for a support group online for

parents

> of BP children, and suggested I read the book " Stop Walking on

> Eggshells " . I've got an eBay bid on a used copy currently -- if I

lose out

> on that, I'll turn to Amazon. When I first mentioned that I might

buy the

> book but would have to figure out how to get it into the house

without

> Herself seeing it, she paused for a moment and said, " You NEED the

book. "

>

> After reading the posts on this list (Thanks to Edith who pointed

me in the

> right direction) from the past couple of days, I'm starting to

think I am,

> in fact, in the right place. And I know that I'm perhaps not as

bad off as

> some of you are ... which is a comfort for me, and which I'll

apologize

> about to all of you. My prayers are with you.

>

> My daughter does have some common sense (picking up on what

appears to be a

> recent thread). Although she participates in some self-

destructive

> behavior (more emotional than physical), she has never given in to

drugs,

> drink, smoking and other such vices, she is not promiscuous at

all, and she

> does seem to have a good head on her shoulders in that way. In

fact she's

> gotten several friends *off* drugs, drink, cigarettes, and at

times seems

> to have an almost obsessive sense of moral standards (ex: she'll

go off the

> wall if she hears anyone use foul language at home). What she is,

is

> emotionally abusive in a very illogical way (her perception of

reality is

> not what the rest of us see at all), given to bouts of depression

(which

> actually have gotten better over the past year or so, though there

was a

> sort of half hearted suicide attempt several years ago that keeps

the

> eggshells fresh underfoot), and we " walk on eggshells " around her,

never

> knowing what minor actions or words on our parts might set her off.

>

> However, I don't know how much detail the list wants in way of an

> introduction ... I guess I could easily launch into a venting

session if I

> don't put the brakes on now. I guess I'm really not sure how I'm

supposed

> to participate ... but am glad to have been pointed toward this

list. It's

> a start.

>

> Thanks, all.

>

> --Gayle

[Guest guest]

> hi everyone -

>

> im a 34 year old filmmaker living in nyc who is frustratedly living

> with the following: CFS, sbbo/sibo, brain fog (severe, tied to either

> bacterial endotoxins or effects of colonic distension, no one knows),

> constipation, gas, disturbed sleep, depression

Hi Spencer,

Welcome.

Don't know what the first two are, but the others, constipation, gas,

disturbed sleep,

depression can certainly be helped by SCD.

>

>

> wondering if anyone here has seen symptoms improve on SCD

>

> tested positive for hydrogen on LBT, treated with flagyl which was a

> miracle cure the first time, but then SBBO came back and flagyl didn't

> work,

I just read something similar on badbugs.org. I guess that is fairly

typical, at

least in some cases.

> positive for and treated for blasto, done many diet modalities

> but always with some sort of grain in there and when i was gluten free

> was eating plenty of brown rice and brown rice flour products

The best way to know is to try it yourself for a month or two - and

find out whether your symptoms improve. In many cases, there's an

immediate change in symptoms - in other cases, it takes longer

for something to manifest. And in some small portion of cases,

there is no response.

Good luck,

Mara

[Guest guest]

Hi Mara:

I didn't know what they were either. I don't feel like any kind of authority on the diet, so of course I didn't respond to the email.

CFS - chronic fatigue symdrome

SBBO - small-bowel bacterial overgrowth

SIBO - small-intestine bacterial overgrowth

I'm sure SCD would help SBBO/SIBO as it would starve out the bad bugs.

Misty Kimble - 31yo

Louisiana

CD - 2/07 - no meds

SCD - 6 months

> with the following: CFS, sbbo/sibo, Hi Spencer,Welcome.Don't know what the first two are, but the others, constipation, gas, disturbed sleep, depression can certainly be helped by SCD.

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[Guest guest]

Ladies - Thank you both. I've started the diet, including the yogurt and am just waiting for someone to help me make the soup! Then I will start over having already laid the groundwork for the basic diet.I do have a hard time not overeating almond butter, honey, bananas and the like. I think i have a wicked sugar addiction. We'll see how it goes over the next 4-8 wks. I THINK the gas has already lessened by eliminating the grains.BestSpencerHi Mara: I didn't know what they were either. I don't feel like any kind of authority on the diet, so of course I didn't respond to the email. CFS - chronic fatigue symdromeSBBO - small-bowel bacterial overgrowthSIBO - small-intestine bacterial overgrowth I'm sure SCD would help SBBO/SIBO as it would starve out the bad bugs. Misty Kimble - 31yoLouisianaCD - 2/07 - no medsSCD - 6 months> with the following: CFS, sbbo/sibo, Hi Spencer,Welcome.Don't know what the first two are, but the others, constipation, gas, disturbed sleep, depression can certainly be helped by SCD.RECENT ACTIVITY 12New MembersVisit Your GroupMeditation andLovingkindnessA Yahoo! Groupto share and learn.Yahoo! HealthHealthy AgingImprove yourquality of life.Real Food GroupShare recipesand favorite mealsw/ Real Food lovers..

[Guest guest]

Hi Spencer,

Welcome! I am Jodi..

Are you familiar with the " intro " phase of the diet? It really helps

people get that kick start they need. It can be quite daunting but it

really helped me. In fact when I first attempted the diet almost 7

years ago I jumped into all the foods and straight into the almond

flour. Because of that I had no results. I just totally skipped over

the intro phase. I only rediscovered the diet about 9 months ago. I

wish I would of been smarter back then to give it a better look see.

Could of avoided a heck of a lot of suffering.

Here is a good explination;

http://www.breakingtheviciouscycle.info/beginners_guide/the_intro_diet2.htm

or tinyurl;

http://tinyurl.com/69hmn

Another great site is PecanBread. Although more geared towards Kids

and the ASD community it has some invaluable info on it including the

" stages " or a guide of introducing food into the diet after the intro

phase. This way we can all learn for ourselves what we can and cannot

tolerate. For instance some people cannot eat carrots as that causes

an increase in certain symptoms. Others, have no problem. While SCD

is a wonderful diet some of us have to really learn with-in SCD what

works and doesn't work.

http://www.pecanbread.com/new/scdfoods1.html#beyond

Also Kim M (whom I consider one of the resident experts on how to

over-come Candida naturally has posted some great files)

http://health.groups.yahoo.com/group/BTVC-SCD/files/Candida%20or%20Yeast%20Infor\

mation/

I am unsure if it is totally relevant to your situation but I thought

I would send you the link anyway.

Also, Some people find jumping into the yogurt straight away can be an

issue as well.. Some people have to take it very slow eating the

yogurt. So if you feel very gassy or even tired or just out of the

ordinary off you might need to ask about yogurt introduction. Many of

us have much experience with that too.

Always ask questions especially if you are unsure and as Marilyn says

which makes me laugh " When in doubt leave it out! " Now if only I can

follow those instructions myself!!!

Jodi

SCD 9 months

Crohn's/Colitis

>

> Ladies - Thank you both. I've started the diet, including the yogurt

> and am just waiting for someone to help me make the soup! Then I will

> start over having already laid the groundwork for the basic diet.

>

> I do have a hard time not overeating almond butter, honey, bananas and

> the like. I think i have a wicked sugar addiction. We'll see how it

> goes over the next 4-8 wks. I THINK the gas has already lessened by

> eliminating the grains.

[Guest guest]

Almond butter is a very advanced food and should not be started at the beginning of the diet. Check out www.pecanbread.com for an introduction schedule. Of course, this is only a guide, but it was right on track for my body. I almost quit the diet early on because of almond flour goodies, not going through the introduction phase.

Good luck to you Spencer!!!! The diet works miracles when done properly!!!!

Misty Kimble - 31yo

Louisiana

CD - 2/07 - no meds

SCD - 6 months

Subject: Re: introductionTo: BTVC-SCD Date: Monday, July 21, 2008, 1:29 PM

Ladies - Thank you both. I've started the diet, including the yogurt and am just waiting for someone to help me make the soup! Then I will start over having already laid the groundwork for the basic diet.

I do have a hard time not overeating almond butter, honey, bananas and the like. I think i have a wicked sugar addiction. We'll see how it goes over the next 4-8 wks. I THINK the gas has already lessened by eliminating the grains.

Best

Spencer

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[Guest guest]

thanks eileen - sorry to waste bandwidth with the thank you's but grateful to have some supporti am amazed at the fact that just about everything "legal" i thought would be part of my initial phase is off limits: blueberries, almond butter, pecans, the almond flour treats i was about to order!, maybe even the yogurt, bananas - yikes this is going to be interesting!i can already tell that eliminating the grains for 48 hours is helping my stomach settle but all the other stuff ends up stepping up and filling in for the bad stuff, causing their own issuessometime this weekend i will make the soup, and begin in ernest. in the meantime, doing a slow transformation and learning how to broil something right now - quite an accomplishment for a type-a new yorker type (although from the midwest!): )spencerwelcome fellow new yorker! don't know what too many of your problems are but I feel I've heard it help MANY things on here and pecanbread so it can't hurt - follow to a tee!!! and start intro and go slow - see how it goes - we're here :-)eileen6 months scd>> hi everyone -> > im a 34 year old filmmaker living in nyc who is frustratedly living > with the following: CFS, sbbo/sibo, brain fog (severe, tied to either > bacterial endotoxins or effects of colonic distension, no one knows), > constipation, gas, disturbed sleep, depression> > wondering if anyone here has seen symptoms improve on SCD> > tested positive for hydrogen on LBT, treated with flagyl which was a > miracle cure the first time, but then SBBO came back and flagyl didn't > work, positive for and treated for blasto, done many diet modalities > but always with some sort of grain in there and when i was gluten free > was eating plenty of brown rice and brown rice flour products> > looking forward to responses - i hope i kept to protocol!> > : )> > spencer> `>

[Guest guest]

LOL!! good luck you can do it!!!

eileen

> > >

> > > hi everyone -

> > >

> > > im a 34 year old filmmaker living in nyc who is frustratedly

> > living

> > > with the following: CFS, sbbo/sibo, brain fog (severe, tied to

> > either

> > > bacterial endotoxins or effects of colonic distension, no one

> > knows),

> > > constipation, gas, disturbed sleep, depression

> > >

> > > wondering if anyone here has seen symptoms improve on SCD

> > >

> > > tested positive for hydrogen on LBT, treated with flagyl which

was

> > a

> > > miracle cure the first time, but then SBBO came back and flagyl

> > didn't

> > > work, positive for and treated for blasto, done many diet

> > modalities

> > > but always with some sort of grain in there and when i was

gluten

> > free

> > > was eating plenty of brown rice and brown rice flour products

> > >

> > > looking forward to responses - i hope i kept to protocol!

> > >

> > > : )

> > >

> > > spencer

> > > `

> > >

> >

> >

> >

>

[Guest guest]

Good morning,

I was approved to join the list last evening. I found out about the SCD on the CCFA site a week ago and ordered the book, two cookbooks, and a Yogourmet, knowing I had to try this before agreeing to injections the rest of my life. I immediately stopped drinking milk, eating sugars or grains until I could make the yogurt and chicken broth and formally start the diet, which is today. Even in making the changes before formally starting the diet I have noticed improvement - no more flatulence, less spasms, and 1/2 decrease in diarrhea even with 2/3 decrease in Imodium for which I am extremely encouraged.

Spent yesterday cleaning out my kitchen of all illegals which produced both feelings of grief and excitement. My family and friends are being supportive though this hasn't directly effected any of them yet.

I have read the book and read the beginning chapter twice but of course I have a few questions:

1) How much yogurt should be consumed each day?

2) I had a colectomy last September (sigmoid colon removed due to fistulas, cecum and 5 inches of ileum removed) and at that time was told I would likely have loose stools even if the crohns didn't return (which it already has). How do those of you that have had colectomy's measure symptom remission if you have been surgically altered and loose stools are expected?

Thanks,

CD diagnosed 1990

SCD, day 1!

[Guest guest]

Hi ,

The symptom relief has come to me with less gas and bloating, less

pain and more formed BMs instead of extremely watery. I had pretty

consistent painful rashes around my anus, and those have cleared up.

However, the process has been three steps forward, two steps back.

So be prepared for some stops and starts along the way. Adding foods

can be tricky and frustrating. I highly recommend that you stay with

the starter diet until you notice an improvement, and be slow and

deliberate about what you add.

I also have a yogurmet. It works great, but get a dimmer switch for

it at home depot or your local hardware store. The dimmer switch

helps control the tempurature, as the yogurt maker tends to run

hotter than is recommended. The dimmer switch has a cord that plugs

into the wall, and then the maker plugs into the switch. It's about

$10.00.

I try to eat a lot of yogurt , a little for breakfast lunch and

dinner. I add honey and now that I'm feeling a little better, a

little fruit too. Ripe bananas are really good to add first when you

feel ready.

I also have been taking vitamin C and B complex-50. Be sure to read

the list of additives that are illegal in supplements, it gets pretty

tricky. There is a fabulous list of what is allowed and illegal on

www.pecanbread.com.

Good luck!

Stay in touch.

Danny Kovacs

San Diego

Ulcerative Colitis Diagnosed in 1983

Colectomy with j-pouch in 1991

ongoing " pouchitis "

developed ulcers and related anemia in 2007.

SCD for 8 weeks

[Guest guest]

Hi, I'm new to this site. Can anyone recommend a yogurt maker? My celiac/IBS daughter is lactose intolerant, so I'm gearing up to make the yogurt. Used to make it for myself a long time ago...

thanks so much for your support.

mb

--If it's urgent, call me!! I don't check my email everyday! Batavia 1102 Warfield Avenue Piedmont, CA 94610 home cell

-------------- Original message --------------

Hi ,The symptom relief has come to me with less gas and bloating, less pain and more formed BMs instead of extremely watery. I had pretty consistent painful rashes around my anus, and those have cleared up. However, the process has been three steps forward, two steps back. So be prepared for some stops and starts along the way. Adding foods can be tricky and frustrating. I highly recommend that you stay with the starter diet until you notice an improvement, and be slow and deliberate about what you add.I also have a yogurmet. It works great, but get a dimmer switch for it at home depot or your local hardware store. The dimmer switch helps control the tempurature, as the yogurt maker tends to run hotter than is recommended. The dimmer switch has a cord that plugs into the wall, and then the maker plugs into the switch. It's about $10.00.I try to eat a lot of yogurt , a little for breakfast lunch and di

nner. I add honey and now that I'm feeling a little better, a little fruit too. Ripe bananas are really good to add first when you feel ready.I also have been taking vitamin C and B complex-50. Be sure to read the list of additives that are illegal in supplements, it gets pretty tricky. There is a fabulous list of what is allowed and illegal on www.pecanbread.com.Good luck!Stay in touch.Danny KovacsSan DiegoUlcerative Colitis Diagnosed in 1983Colectomy with j-pouch in 1991ongoing "pouchitis"developed ulcers and related anemia in 2007.SCD for 8 weeks

[Guest guest]

Thanks Danny. I took the temperature several times during the first yogurt batch and it was 110 to 114. I'll get the dimmer switch next weekend.

Thanks,

CD diagnosed 1990

Colectomy 9/2007

SCD, day 1!

Re:Introduction

Hi ,The symptom relief has come to me with less gas and bloating, less pain and more formed BMs instead of extremely watery. I had pretty consistent painful rashes around my anus, and those have cleared up. However, the process has been three steps forward, two steps back. So be prepared for some stops and starts along the way. Adding foods can be tricky and frustrating. I highly recommend that you stay with the starter diet until you notice an improvement, and be slow and deliberate about what you add.I also have a yogurmet. It works great, but get a dimmer switch for it at home depot or your local hardware store. The dimmer switch helps control the tempurature, as the yogurt maker tends to run hotter than is recommended. The dimmer switch has a cord that plugs into the wall, and then the maker plugs into the switch. It's about $10.00.I try to eat a lot of yogurt , a little for breakfast lunch and dinner. I add honey and now that I'm feeling a little better, a little fruit too. Ripe bananas are really good to add first when you feel ready.I also have been taking vitamin C and B complex-50. Be sure to read the list of additives that are illegal in supplements, it gets pretty tricky. There is a fabulous list of what is allowed and illegal on www.pecanbread.com.Good luck!Stay in touch.Danny KovacsSan DiegoUlcerative Colitis Diagnosed in 1983Colectomy with j-pouch in 1991ongoing "pouchitis"developed ulcers and related anemia in 2007.SCD for 8 weeks

[Guest guest]

Hi ,

Just want to say "good for you"! The article on the CCFA website is not 100% positive--I think that's great that you could read between the lines and see that the SC diet might be something worth trying for you.

Sorry I don't know the answers to your questions. I'm sure others will pipe in!

All the best,

Ellen in Boston

10 y/o dd scd since 5/06 for Crohn's and doing great

[Guest guest]

,

Glad to hear of your improvements. I have Crohn's and the SCD put it

into remission in about 2-1/2 years. I had a couple of resections

years ago of my ileum so I'm missing the ileocecal valve and have

wondered along the same lines as #2 below. I've ranged from loose to

constipated. My doctor said that it could be expected for me to be

loose sometimes due to the missing valve. What really confirms the

remission for me is that I don't have that very peculiar feeling pain

in my lower right quadrant - the site where I've had Crohn's.

I still get gas pains once in a while, but they feel quite different

and pass when the gas does.

On this diet, I had to relearn my body and what it was saying to me. I

suspect you'll find a similar experience.

Good luck and welcome to the fold.

Cheers,

Stocker

CD 1983

SCD 1/2005

Remission 8/2007

eatingSCD.wordpress.com

>

> Good morning,

>

> I was approved to join the list last evening. I found out about the

SCD on the CCFA site a week ago and ordered the book, two cookbooks,

and a Yogourmet, knowing I had to try this before agreeing to

injections the rest of my life. I immediately stopped drinking milk,

eating sugars or grains until I could make the yogurt and chicken

broth and formally start the diet, which is today. Even in making the

changes before formally starting the diet I have noticed improvement -

no more flatulence, less spasms, and 1/2 decrease in diarrhea even

with 2/3 decrease in Imodium for which I am extremely encouraged.

>

> Spent yesterday cleaning out my kitchen of all illegals which

produced both feelings of grief and excitement. My family and friends

are being supportive though this hasn't directly effected any of them

yet.

>

> I have read the book and read the beginning chapter twice but of

course I have a few questions:

> 1) How much yogurt should be consumed each day?

> 2) I had a colectomy last September (sigmoid colon removed due to

fistulas, cecum and 5 inches of ileum removed) and at that time was

told I would likely have loose stools even if the crohns didn't return

(which it already has). How do those of you that have had colectomy's

measure symptom remission if you have been surgically altered and

loose stools are expected?

>

> Thanks,

>

> CD diagnosed 1990

> SCD, day 1!

>

[Guest guest]

>>Just want to say "good for you"! The article on the CCFA website is not 100% positive--I think that's great that you could read between the lines and see that the SC diet might be something worth trying for you.<<

The reference I ran across was in regards to their printing an article on SCD in Take Charge. http://www.ccfa.org/about/news/scd Figured if it was total poppycock it wouldn't make it into the newsletter. The diet and nutrition section reference is not as positive.

That led me to looking at the book on Amazon and discovering over 200 passionate entries regarding the diet.

It's requiring quite a change in my thinking as I've been convinced by the current, 'complex carbohydrates are healthier', theory on nutrition. Also, I can become hypoglycemic so don't feel as though I can completely go without some source of carbs. Am going to take 3 California dates and 1/4 honeydew melon to work tomorrow. Neither of those foods has caused me problems in the past.

Getting started on this diet is a huge amount of work and a major life change. Any time I have second thoughts I just pick up the brochure on the TNF inhibitor that the doctor recommended and start reading...

..

[Guest guest]

>>On this diet, I had to relearn my body and what it was saying to me. Isuspect you'll find a similar experience.Good luck and welcome to the fold.<<

Thank you so much everyone for the warm welcome. For me, having crohns has meant living in fear of the loss of any quality of life, both from the crohns and the meds that are prescribed to treat it. I feel empowered starting the SCD, like I have a second chance.