Re: Re: Update/ reply to Cassy

[Guest guest]

Thanks n(did I already reply?) I hate those visual field

tests.Friday my eyes were so bad I almost cried looking at that stupid

light.You take the Tegretol right? Has it caused any side effects?Im

scared to take it because of all the warnings and listed side effects.

Do you have to get your blood drawn alot to check the levels and liver?

How long have you been taking it? I am worried because all my other

health problems plus a big concern is how it says it lowers the cells

that fight infection. My 9 yr.old is in 4th grade and she brings lots

of things from school. Colds,flu,etc. Im worried I will catch one and

become deathly ill.Whats the deal with the bone marrow? How does it

effect that.Lots of questions.Sorry,feel free to ignore them.How are

you doing?

luv n hugz,cassy

Re: Update/ reply to Cassy

Dear Cassy, I do hope that they can help you!

When I have had optic neuritis, it was a real PAIN!

They always did the visual field tests with me, too,

and new MRIs. Hoping for help for you. Tegretol can

do great things. The medication that I take for epilepsy

(not caused by the MS) really does actaully help my MS.

Love and gentle hugs to you, Cassy,

and to all who are hurting in Our Gang,

n

>

> >

>

> > Hi Guys!Sorry I havnt been around much I have been having a real

>

> tough

>

> > wk.Since sunday both my eyes have been killing me.I seen my pcp a

>

> few

>

> > days ago and she gave me a rx for Tegretol and squared away the

>

> biopsy

>

> > and neuro-muscular referals.Then today I seen the eye

>

> specialist.She

>

> > did another visual field.Still the same-visual defect w/scattered

>

> spots

>

> > or sumthn She thinks the TN has spread to my left eye and jaw

>

> area.She

>

> > is ordering 2 mris to be sure.They will check my eyes,brain,sinus

>

> > area,and neck.And will be w/contrast!Thank god.She said contrast

>

> does

>

> > matter but she is doing slices and will look at the sacral area as

>

> > well.Im a mess.Cannot go outside,it hurts my eyes to bad(and its

>

> > practically dark!)And im having a hard time reading,watching tv

and

>

> > sometimes chewing sends this unbearable pain up my jaw to behind

my

>

> > eye.I miss you all and im praying for each and everyone of you.I

am

>

> > getting the tegretol tomorow and will continue the neurontin too

so

>

> > hopefully it will make it manageable.luv u all!

>

> > cassy

>

> >

>

> >

>

> >

>

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