Re: Val: Re: NORD and Avonex and Disability/ Reply to Cassy about Rheumatologist

January 16, 2008

Hi Cassy~ I just called to make an appt. to see a Rheumatologist. Of course, in this modern day of medicine, I was directed to an answering service that informed me that someone would get in touch with me within 24 hours to schedual an appt. What kind of molarchy is that? Then, they proceeded to inform me that should I have to cancell an appt. or miss an appointment there would be a $25-$100.00 charge. I just hope that once I do get an appointment, they don't try to call me to reschedual. If they do, I'm going to charge them!LOL God bless America, the home of the greedy. <said with sarcasm>. I hope you are doing well today. Give Pay & Gabby a big hug for me. Love and blessings... Val payngabby@... wrote: {{{Val}}} Im sorry you are in so much pain. I am so glad you are going to the Reumatologist.Please let me know when your appointment will be. You have been in pain too long. I really hope and pray they can find out why and help you get some relief. Were is the pain? I hope you dont have arthritis or fibro on top of the ms but the sooner you find out what is causing it the sooner you can be treated for whatever it is. I havnt been online much

but im still praying for you and for everyone on the group.I miss ya! Im gonna call and bug you in the next day or two.;)luv n hugz,cassy Re: Val: Re: NORD and Avonex and DisabilityNo, I don't take anything. Can't afford to. Of course, if they wouldn'ttake my husband's income into acct. That wouldn't be a problem.LOLBut, I am making an appointment with a Rheumatologist this week. I've been in so much pain for so long. I've been chalking it all up to MS. But, truthfully, I believe it's something else. MS can be painful, but this is just too much. I need to know what's causing all the pain. MS, fibromyalgia, arthritis? Since the pain is usually in the

same spots as the MS or the arthritis, I'm not sure that it's not fibromyalgia. Myneuro, at one time said he kinda suspects that I may have it.I need to know. Other than that and the fatigue, I'm basically well enough toget around. But, I'm telling you, the bad days way out number the good days. Love and blessings... ValTammy in Texas com> wrote: Are you taking anything for the fatigue? I just started Lyrica 3 weeks ago as I was Dx'd with fibro at my last neuro appt. Calling the office today to tell him I am stopping it and going back to Neurontin. Before the Neurontin, I was getting the wild electric shocks for my eye to my toes on one side. After each episode, that arm and hand would be completely dead and useless, paralyzed I suppose, for about 30minutes. These stopped after about a month on the Neurontin. I have had two episodes this past week. Not as severe as the original ones as far as paralysis, but

the pain is excrutiating! The Lyrica worked on my head, neck and shoulders, but it's not worth it to have to deal with these episodes again. Anyway, point being in all of this, the fatigue was the next symptom to tackle. It will be put on hold while I adjust back to the Neurontin. Love ya! TammyVal Lee com> wrote: {{{Tammy}}} I'm glad to hear that you're at least getting some treatment. Hopefully the information that you send in will give you a better chance of gettingapproved. I know what you mean by the fatigue. Gosh, I get so tired of wearing a smile on my face and pretending that I'm alright, when in reality, a lot of the time I'm literally forcing myself just to speak. Thanks for checking in. Love you loads... ValTammy in Texas com> wrote: Well, finally got a call back from NORD and the woman told me some of the items to send in that would give me a better chance of getting approved for some help.

Still depending on Avonex and its wonderful people to send me free shots every month. They have been just the best! Made a promise to myself that when I finally get some help, I will return the favor somehow.Was told today that my neuro put me on another 90 days of disability. So now I am out until April 15th. Good in a way, but just wish I would get some idea of how my SSDI is going. He wanted to know what improvements there have been. I told him my balance is better and I haven't had any exacerbations. Other than that, things are still the same. It's the dang fatigue that keeps me from going back to work more than any other symptom. He told me we would work on that when my meds were on a more even regiment. I can understand that. Thought I better let you all know what has been going on before you send some posse after me! LOL Love to you all! Tammy, TxDo you know someone with MultipleSclerosis? Help find a

cure! http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen BarterTrade For Sale athttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Never miss a thing. Make Yahoo your homepage.Do you know someone with Multiple Sclerosis? Help find a cure! http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen BarterTrade For Sale athttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/Looking for last minute shopping deals? Find them fast with Yahoo! Search.Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~Be a better friend, newshound, andknow-it-all with Yahoo! Mobile. Try it

now.#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3__________________________________________________________More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.comEuphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~

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January 16, 2008

Hey Val! Thats sucks. I hate message machines! Especially when its a

docs office. I hope they call you back soon. Woa! 25-100 $ wonder how

they decide which 1 to charge. Thats ridiculous. 1 of Renes doc charges

some outrageous amount too. And once he missed and they sent a bill. He

even called to cancel but since it wasnt 24 hrs.notice he was billed.

So lame. Hopefully they call you today with an appt. For this wk or

next. I will give the gitls hugz for you. Thanks!

luv n hugz,cassy

Re: Val: Re: NORD and Avonex and Disability

No, I don't take anything. Can't afford to. Of course, if they

wouldn'ttake my husband's income into acct. That wouldn't be a

problem.LOLBut, I am making an appointment with a Rheumatologist this

week. I've been in so much pain for so long. I've been chalking it all

up to MS. But, truthfully, I believe it's something else. MS can be

painful, but this is just too much. I need to know what's causing all

the pain. MS, fibromyalgia, arthritis? Since the pain is usually in the

same spots as the MS or the arthritis, I'm not sure that it's not

fibromyalgia. Myneuro, at one time said he kinda suspects that I may

have it.I need to know. Other than that and the fatigue, I'm basically

well enough toget around. But, I'm telling you, the bad days way out

number the good days. Love and blessings... Val

Tammy in Texas com> wrote: Are you taking anything for the

fatigue? I just started Lyrica 3 weeks ago as I was Dx'd with fibro at

my last neuro appt. Calling the office today to tell him I am stopping

it and going back to Neurontin. Before the Neurontin, I was getting the

wild electric shocks for my eye to my toes on one side. After each

episode, that arm and hand would be completely dead and useless,

paralyzed I suppose, for about 30

minutes. These stopped after about a month on the Neurontin. I have

had two episodes this past week. Not as severe as the original ones as

far as paralysis, but

the pain is excrutiating! The Lyrica worked on my

head, neck and shoulders, but it's not worth it to have to deal with

these episodes again. Anyway, point being in all of this, the fatigue

was the next symptom to tackle. It will be put on hold while I adjust

back to the Neurontin. Love ya! Tammy

Val Lee com> wrote: {{{Tammy}}} I'm glad to hear that you're at

least getting some treatment. Hopefully the information that you send

in will give you a better chance of getting

approved. I know what you mean by the fatigue. Gosh, I get so tired of

wearing a smile on my face and pretending that I'm alright, when in

reality, a lot of the time I'm literally forcing myself just to speak.

Thanks for checking in. Love you loads... Val

Tammy in Texas com> wrote: Well, finally got a call back from

NORD and the woman told me some of the items to send in that would give

me a better chance of getting approved for some help.

Still depending

on Avonex and its wonderful people to send me free shots every month.

They have been just the best! Made a promise to myself that when I

finally get some help, I will return the favor somehow.

Was told today that my neuro put me on another 90 days of

disability. So now I am out until April 15th. Good in a way, but just

wish I would get some idea of how my SSDI is going. He wanted to know

what improvements there have been. I told him my balance is better and

I haven't had any exacerbations. Other than that, things are still the

same. It's the dang fatigue that keeps me from going back to work more

than any other symptom. He told me we would work on that when my meds

were on a more even regiment. I can understand that. Thought I

better let you all know what has been going on before you send some

posse after me! LOL Love to you all! Tammy, Tx

Do you know someone with Multiple

Sclerosis? Help find a

cure!

http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s\

_Affiliate=HOM_GEN_

Join Killeen BarterTrade For Sale

athttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/

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Mobile. Try it now.

Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin

Crisp~ Never miss a thing. Make Yahoo your homepage.

Do you know someone with Multiple Sclerosis? Help find a cure!

http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s\

_Affiliate=HOM_GEN_

Join Killeen BarterTrade For Sale

athttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/

Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

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Crisp~

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know-it-all with Yahoo! Mobile. Try it

now.

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__________________________________________________________

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Crisp~

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January 16, 2008

Cassy~ They charge $25.00 for existing patients and $100.00 for new. In any case, I still think it's wrong. Most doctors do charge if you don't call within 24 hours to change or cancel your appt. I think they do that because they only allot so many minutes for each patient. They try to keep every room full, even though technically they only spend a fraction of that time actually spending it with the patient. When no one shows for that appt. they miss the opportunity to get someone in the room. It probably messes their scheduling off or something. They probably go by that "Time is money" philosophy. Love and blessings... Valpayngabby@... wrote: Hey Val! Thats sucks. I hate message machines! Especially when its a docs office. I hope they call you back soon. Woa! 25-100 $ wonder how they decide which 1 to charge. Thats ridiculous. 1 of Renes doc charges some outrageous amount too. And once he missed and they sent a bill. He even called to cancel but since it wasnt 24 hrs.notice he was billed. So lame. Hopefully they call you today with an appt. For this wk or next. I will give the gitls hugz for you. Thanks!luv n hugz,cassy Re: Val: Re: NORD and Avonex and DisabilityNo, I don't take anything. Can't afford to. Of course, if theywouldn'ttake my husband's income into acct. That wouldn't be aproblem.LOLBut, I am making an appointment with a Rheumatologist thisweek. I've been in so much pain for so long. I've been chalking it allup to MS. But, truthfully, I believe it's something else. MS can bepainful, but this is just too much. I need to know what's causing allthe pain. MS, fibromyalgia, arthritis? Since the pain is usually in thesame spots as the MS or the arthritis, I'm not sure that it's notfibromyalgia. Myneuro, at one time said he kinda suspects that I mayhave it.I need to know. Other than that and the fatigue, I'm basicallywell enough toget around. But, I'm telling you, the bad days way outnumber the good days. Love and blessings... ValTammy in Texas com> wrote: Are you taking

anything for thefatigue? I just started Lyrica 3 weeks ago as I was Dx'd with fibro atmy last neuro appt. Calling the office today to tell him I am stoppingit and going back to Neurontin. Before the Neurontin, I was getting thewild electric shocks for my eye to my toes on one side. After eachepisode, that arm and hand would be completely dead and useless,paralyzed I suppose, for about 30minutes. These stopped after about a month on the Neurontin. I havehad two episodes this past week. Not as severe as the original ones asfar as paralysis, butthe pain is excrutiating! The Lyrica worked on myhead, neck and shoulders, but it's not worth it to have to deal withthese episodes again. Anyway, point being in all of this, the fatiguewas the next symptom to tackle. It will be put on hold while I adjustback to the Neurontin. Love ya! TammyVal Lee com> wrote: {{{Tammy}}} I'm glad to hear that you're atleast getting

some treatment. Hopefully the information that you sendin will give you a better chance of gettingapproved. I know what you mean by the fatigue. Gosh, I get so tired ofwearing a smile on my face and pretending that I'm alright, when inreality, a lot of the time I'm literally forcing myself just to speak.Thanks for checking in. Love you loads... ValTammy in Texas com> wrote: Well, finally got a call back fromNORD and the woman told me some of the items to send in that would giveme a better chance of getting approved for some help.Still dependingon Avonex and its wonderful people to send me free shots every month.They have been just the best! Made a promise to myself that when Ifinally get some help, I will return the favor somehow.Was told today that my neuro put me on another 90 days ofdisability. So now I am out until April 15th. Good in a way, but justwish I would get some idea of how my SSDI is going. He

wanted to knowwhat improvements there have been. I told him my balance is better andI haven't had any exacerbations. Other than that, things are still thesame. It's the dang fatigue that keeps me from going back to work morethan any other symptom. He told me we would work on that when my medswere on a more even regiment. I can understand that. Thought Ibetter let you all know what has been going on before you send someposse after me! LOL Love to you all! Tammy, TxDo you know someone with MultipleSclerosis? Help find acure!http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen BarterTrade For Saleathttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/Be a better friend, newshound, and know-it-all with Yahoo!Mobile. Try it now.Euphemisms are unpleasant truths wearing diplomatic cologne. ~QuentinCrisp~ Never miss a thing. Make Yahoo your homepage.Do you know someone with Multiple Sclerosis? Help find a cure!http://www.nationalmssociety.org/site/PageServer?pagename=HOM_GEN_homepage & amp;s_Affiliate=HOM_GEN_ Join Killeen BarterTrade For Saleathttp://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/Looking for last minute shopping deals? Find them fast

withYahoo! Search.Euphemisms are unpleasant truths wearing diplomatic cologne. ~QuentinCrisp~Be a better friend, newshound, andknow-it-all with Yahoo! Mobile. Try itnow.#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3#AOLMsgPart_2_4c04f3ca-f353-4d8e-af65-7c6e7505bba3__________________________________________________________More new features than ever. Check out the new AOL Mail ! -http://webmail.aol.comEuphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~Never miss a thing. Make Yahoo your

homepage.#AOLMsgPart_2_62db04c0-2e75-46d8-810b-cd193774a7d0#AOLMsgPart_2_62db04c0-2e75-46d8-810b-cd193774a7d0#AOLMsgPart_2_62db04c0-2e75-46d8-810b-cd193774a7d0__________________________________________________________More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.comEuphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~

Never miss a thing. Make Yahoo your homepage.

January 16, 2008

Ya. That makes sense. Time is Money.But im sure the docs are grateful

for that lil break,unless there over-booked. Then again most probly

just want the $. Glad my docs dont charge. I would be in debt.lol.

Well,I am anyway.lol. Hugz

cassy