Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Sorry Cassy, Here's the link that I had. I hope it helps. Love and blessings... Val http://rarediseases.about.com/cs/hs1/a/110103.htm Val Lee wrote: Hi Cassy~ I spoke received a reply from my friend about her disease. This is what she said.: Yes, I have HSP (Hereditary Spastic Paraplegia). I hope your friend can get a diagnosis. It took me almost 8 years! It was awful! Then when I could get the right meds, it helped so much, of course by that time I could hardly walk! Oh well! I had a link to send you, but I'm going to have to go back and get it. I lost it somehow. Loads of love. Val <*)))><Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Never miss a thing. Make Yahoo your homepage. Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Hi Val! Thanks so much for emailing your friend and sendn me the link!I really appreciate it. Wow! This sounds like it could be a possibility. Im going to bring it up to the doc when I go. It also causes eye problems. I have those bad! The eye specialist was a bit concerned so I will be having a few mris soon,and the muscle biopsy should be soon too.Lucky me!lol. Well, at least its not a spinal. Im still not lookn forward to it. Especially the mri. She said I would be in there awile since she is doing 2 sets.And the biospy is gonna hurt like heck. Oh. Well.gotta get it over with.thanks again Val. Im gonna do some more reading on HSP tonight.Your poor friend.8 yrs.! Sounds like alot of us here hu? How are you doing? luv n hugz,cassy Re: About HSP...To Cassy Sorry Cassy, Here's the link that I had. I hope it helps. Love and blessings... Val http://rarediseases.about.com/cs/hs1/a/110103.htm Val Lee com> wrote: Hi Cassy~ I spoke received a reply from my friend about her disease. This is what she said.: Yes, I have HSP (Hereditary Spastic Paraplegia). I hope your friend can get a diagnosis. It took me almost 8 years! It was awful! Then when I could get the right meds, it helped so much, of course by that time I could hardly walk! Oh well! I had a link to send you, but I'm going to have to go back and get it. I lost it somehow. Loads of love. Val Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Never miss a thing. Make Yahoo your homepage. Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ Looking for last minute shopping deals? Find them fast with Yahoo! Search. #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a ________________________________________________________________________ More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Keeping my fingers crossed must be what makes my typing so awful! Love to you, Cassy, and to all in that all-too-familiar " diagnostic dilemma! " Love, n > > > > > Hi Val! Thanks so much for emailing your friend and sendn me the link!I > really appreciate it. Wow! This sounds like it could be a possibility. > Im going to bring it up to the doc when I go. It also causes eye > problems. I have those bad! The eye specialist was a bit concerned so I > will be having a few mris soon,and the muscle biopsy should be soon > too.Lucky me!lol. Well, at least its not a spinal. Im still not lookn > forward to it. Especially the mri. She said I would be in there awile > since she is doing 2 sets.And the biospy is gonna hurt like heck. Oh. > Well.gotta get it over with.thanks again Val. Im gonna do some more > reading on HSP tonight.Your poor friend.8 yrs.! Sounds like alot of us > here hu? How are you doing? > luv n hugz,cassy > > Re: About HSP...To Cassy > > Sorry Cassy, Here's the link that I had. I hope it helps. Love and > blessings... Val http://rarediseases.about.com/cs/hs1/a/110103.htm > > Val Lee com> wrote: Hi Cassy~ I spoke received a reply from my > friend about her disease. This is what she said.: Yes, I have HSP > (Hereditary Spastic Paraplegia). I hope your friend can get a > diagnosis. It took me almost 8 years! It was awful! Then when I could > get the right meds, it helped so much, of course by that time I could > hardly walk! Oh well! I had a link to send you, but I'm going to > have to go back and get it. I lost it somehow. Loads of love. Val > > Euphemisms > are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ > Never miss a thing. Make Yahoo your homepage. > > Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin > Crisp~ > > Looking for last minute shopping deals? > Find them fast with Yahoo! Search. > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > __________________________________________________________ > More new features than ever. Check out the new AOL Mail ! - > http://webmail.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Thanks n! Sure is a dilemma! A big fat humongous dilemma. There should be a law for anyone sick and waiting for a dx,like the docs have to dx us in so long or they go to jail.hehe.lol. Ok. Maybe a fine.lol. Ok. Just a law. How about a human rights law. luv n hugz,cassy Re: About HSP...To Cassy > > Sorry Cassy, Here's the link that I had. I hope it helps. Love and > blessings... Val http://rarediseases.about.com/cs/hs1/a/110103.htm > > Val Lee com> wrote: Hi Cassy~ I spoke received a reply from my > friend about her disease. This is what she said.: Yes, I have HSP > (Hereditary Spastic Paraplegia). I hope your friend can get a > diagnosis. It took me almost 8 years! It was awful! Then when I could > get the right meds, it helped so much, of course by that time I could > hardly walk! Oh well! I had a link to send you, but I'm going to > have to go back and get it. I lost it somehow. Loads of love. Val > > Euphemisms > are unpleasant truths wearing diplomatic cologne. ~Quentin Crisp~ > Never miss a thing. Make Yahoo your homepage. > > Euphemisms are unpleasant truths wearing diplomatic cologne. ~Quentin > Crisp~ > > Looking for last minute shopping deals? > Find them fast with Yahoo! Search. > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > #AOLMsgPart_2_555d39fd-2176-44d3-9424-019395148a4a > > __________________________________________________________ > More new features than ever. Check out the new AOL Mail ! - > http://webmail.aol.com > #AOLMsgPart_2_578264fe-a53f-40bb-8051-13bdf589c2d9 #AOLMsgPart_2_578264fe-a53f-40bb-8051-13bdf589c2d9 #AOLMsgPart_2_578264fe-a53f-40bb-8051-13bdf589c2d9 ________________________________________________________________________ More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com Quote Link to comment Share on other sites More sharing options...
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