Re: Akiba and Wisconsin cheese!

[Guest guest]

Hey, but like Vermont, you guys have terrific cheese!

Cheers!

n

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> I am in Wisconsin...cheesy, I know...

> I can pass along my address if you want...

> Hugs

> Akiba

>

> -- Val: Re: NORD and Avonex and Disability

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>

> Are you taking anything for the fatigue? I just started Lyrica 3 weeks ago

> as I was Dx'd with fibro at my last neuro appt. Calling the office today to

> tell him I am stopping it and going back to Neurontin. Before the

> Neurontin, I was getting the wild electric shocks for my eye to my toes on

> one side. After each episode, that arm and hand would be completely dead

> and useless, paralyzed I suppose, for about 30 minutes. These stopped after

> about a month on the Neurontin. I have had two episodes this past week.

> Not as severe as the original ones as far as paralysis, but the pain is

> excrutiating! The Lyrica worked on my head, neck and shoulders, but it's

> not worth it to have to deal with these episodes again. Anyway, point being

> in all of this, the fatigue was the next symptom to tackle. It will be put

> on hold while I adjust back to the Neurontin.

>

> Love ya!

> Tammy

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> Val Lee wrote:

>

> {{{Tammy}}}

> I'm glad to hear that you're at least getting some treatment. Hopefully the

> information that you send in will give you a better chance of getting

> approved. I know what you mean by the fatigue. Gosh, I get so tired of

> wearing a smile on my face and pretending that I'm alright, when in reality,

> a lot of the time I'm literally forcing myself just to speak.

> Thanks for checking in. Love you loads...

> Val

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> Tammy in Texas wrote:

>

> Well, finally got a call back from NORD and the woman told me some of the

> items to send in that would give me a better chance of getting approved for

> some help. Still depending on Avonex and its wonderful people to send me

> free shots every month. They have been just the best! Made a promise to

> myself that when I finally get some help, I will return the favor somehow.

>

> Was told today that my neuro put me on another 90 days of disability. So

> now I am out until April 15th. Good in a way, but just wish I would get

> some idea of how my SSDI is going. He wanted to know what improvements

> there have been. I told him my balance is better and I haven't had any

> exacerbations. Other than that, things are still the same. It's the dang

> fatigue that keeps me from going back to work more than any other symptom.

> He told me we would work on that when my meds were on a more even regiment.

> I can understand that.

>

> Thought I better let you all know what has been going on before you send

> some posse after me! LOL

>

> Love to you all!

> Tammy, Tx

>

>

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> Do you know someone with Multiple Sclerosis? Help find a cure!

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