Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 >We've discussed having her sterilized > too but we're not making any decisions yet. > > Tina This would scare me only because 'humanitarian' interest groups who've never HAD a special-needs child love to seize on things like that. Would something like that be likely to happen where you are? It happened to a woman in BC; it was HORRIBLE. They made her into some kind of monster in the media. Said she was interfering with her barely-functioning twenty-year-old son's human rights. Of course, you know if that boy fathered a baby, they'd be screaming at her over the added burden to the welfare and health-care system. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Jacqui does this ALL the time! I can tell when they are on backwards cuz she's always pulling them out of her butt! :-) Penny Re: Coats.....? > > What if you would buy a iron on or some kind of little thing like > > that where you could put it on a bra. Then again... just thinking here.... has a terrible time putting her panties on the right direction. If I ironed on a picture of a cartoon character, she should be able to use that to help her remember how to put them on right. (wonder if I could do something like that with her shoes since she's too big for the character shoes....) Thanks! Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 > Jacqui does this ALL the time! I can tell when they are on backwards cuz > she's always pulling them out of her butt! > LOL! Same here! I'll ask her if they're on right and she'll insist they are, but she's grabbing for them every 5 minutes. I've threatened to buy her thong underwear because that would be even harder to put on backwards... but knowing , she would. ;o) Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 This is one thing that I am SO not looking forward too. With all of Jacqui's bathroom issues, I don't know HOW she's going to be able to manage her period... *sigh* Penny Re: Coats.....? > i am very worried of just that..something > like this happening, and her not understanding > what is going on... > nancy It's one of the reasons I've talked to her pediatrician and my gyn about putting her on birth control pills once she starts her periods. I don't see ever being able to take care of herself fully, so there is no way she can take care of a child. We'll probably retain legal custody of her once she turns 18. There's so much still up in the air about her developement. We've discussed having her sterilized too but we're not making any decisions yet. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 > This is one thing that I am SO not looking forward too. With all of Jacqui's bathroom issues, I don't know HOW she's going to be able to manage her period... *sigh* Penny < i hear you penny. loud and clear :'( " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 > This is one thing that I am SO not looking forward too. With all of > Jacqui's bathroom issues, I don't know HOW she's going to be able to manage > her period... > > *sigh* Yeah, with constantly stuffing up the toilet with rolls (not just wads, but entire rolls) of toilet paper, I'm scared to death to see how she's going to handle pads. *shudder* And I just know I'm not going to get lucky and have her start late. I just know it. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 In a message dated 9/27/2002 12:09:12 AM Eastern Standard Time, danaar1@... writes: > Yeah, with constantly stuffing up the toilet with rolls (not > just wads, but entire rolls) of toilet paper, I'm scared to death to > see how she's going to handle pads. *shudder* And I just know I'm not > going to get lucky and have her start late. I just know it. > My boys' barber has an adult daughter who is mentally challenged. She told me one day how she taught her daughter about having her period. She said she started way before the period was going to start wearing pads. She called it " big lady " . Then by the time her daughter's period started she was used to wearing the pad and she taught her to change them often. She said she went through lots of pads. She still calls it " big lady " and it is funny to hear in the salon that when the hairdressers have their period they call it " big lady " too...it became a phrase they all use. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 > My boys' barber has an adult daughter who is mentally challenged. She told me one day how she taught her daughter about having her period. She said she started way before the period was going to start wearing pads. She called it " big lady " . Then by the time her daughter's period started she was used to wearing the pad and she taught her to change them often. She said she went through lots of pads. She still calls it " big lady " and it is funny to hear in the salon that when the hairdressers have their period they call it " big > lady " too...it became a phrase they all use. Pam > LOL! Now that's a phrase I've never heard used to describe it before. I have been thinking about having her try to wear a pad before her period actually starts because of the sensory issue. I'm hoping she doesn't get too upset about it. The new thinner pads may be a big help there. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 The new thinner pads may be a big > help there. > > Tina i wear the pads myself and when jenna comes into the bathroom with me, which is almost all the time... and see's it, she says 'momma has a diaper on'...LOL...i guess cause she see's rachelle in a diaper, maybe she thinks its the same...she hasn't worn a diaper for a few years...So i really don't know how she will ever handle it...i really can't see it ever happening nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 You might try telling her its a > band-aid instead of a diaper?? Just a thought. > > Tina to jenna, a band-aid, is not something she likes...she remembers getting a bandaid after getting shots...(oh those great memories they have, don't help sometimes so, thanks for the help..but we'll have to think of something else i think nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Tina wrote: > I have been thinking about having her try to wear a pad before her > period actually starts because of the sensory issue. I'm hoping she > doesn't get too upset about it. The new thinner pads may be a big > help there. > > Tina Tina, I don't know if she is even aware of this being in her future or not, but I have also heard of women when explaining what would happen to their girls they would explain that it is an important event in her life and then plan for something special to happen to co-incide with the onset of her menstruation. For example, I always thought if I had a daughter I would tell her that she could have her ears pierced when she got her first period to celebrate " womanhood " or something like that. Of course that may not be of any help with and ASD girl who may not even want her ears pierced, but you can probably think of something she would like to be old enough to do and hold it out to her as something to look forward to. ??? Just musing, ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 > to jenna, a band-aid, is not something > she likes...she remembers getting a bandaid > after getting shots...(oh those great memories > they have, don't help sometimes Oh, not good. Okay, that won't work either. loves to play with the bandaids so it works for her. Sorry. ) Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Oh, not good. Okay, that won't work either. loves to play with > the bandaids so it works for her. Sorry. ) > > Tina don't ever be sorry for trying to help... i appreciate any kind of help..even if it doesn't work thanks-- nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 > Tina, I don't know if she is even aware of this being in her future or not, but I have also heard of women when explaining what would happen to their girls they would explain that it is an important event in her life and then plan for something special to happen to co- incide with the onset of her menstruation. For example, I always thought if I had a daughter I would tell her that she could have her ears pierced when she got her first period to celebrate " womanhood " or something like that. > She seems to be aware that this is something she will go through. But her question was, " When my period starts, when will I have a baby? " *cold shudders* She's serious. She wants a baby. She has NO clue what the entails, she can't even feed her fish, but she wants a baby. She wants to get married, have a house of her own and have babies. *more cold shudders* She has her ears pierced already but I think maybe making a bit of a " ceremony " of some sort might be helpful to her and her sister. I just have to figure out what to do.... And NO Sami may NOT get her belly button pierced no matter how many times she asks. And NO definitely is NOT having a baby to celebrate. *lots and lots more cold shudders* Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 And NO definitely is NOT having a baby to > celebrate. *lots and lots more cold shudders* > > Tina WOW...I am *shaking* right here, with you...yikes nancy :/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 > don't ever be sorry for trying to help... > i appreciate any kind of help..even if > it doesn't work > thanks-- > nancy I'm not sorry for trying to help, just sorry that I couldn't actually be of any help. ) Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Tina wrote: > She seems to be aware that this is something she will go through. But > her question was, " When my period starts, when will I have a baby? " > > *cold shudders* She's serious. She wants a baby. She has NO clue what > the entails, she can't even feed her fish, but she wants a baby. She > wants to get married, have a house of her own and have babies. *more > cold shudders* Maybe you can tell her how much it hurts to have a baby and how much blood there is. (The complete opposite of what you might tell a child so that they wouldn't fear having a baby, but in this case it might be something to consider...) ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 > > Tina, > > > > I have seen bras with Mickey Mouse and Winnie the Pooh at Sears and > Zellers. Would she like either of these? > > > > Tuna Did you ever try to get iron on decals/or a patch and put them on her bras or underwear? Just an idea..... Amy mom to Noah 6 Lucas 8 ASD;s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Now there's a terrible catch 22! You want to tell her how to not be taken advantage of by the boys, but you don't want her to know how to make baby's. Ewwww, scarey thought! Good touch bad touch and no mention of babies? How about a celebration dinner at her favorite diner? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 > Did you ever try to get iron on decals/or a patch and put them on her bras or underwear? Just an idea..... > I have some iron on paper for the computer printer. I'm going to print up some small pictures and put them on the front of her underwear so she remembers to put them on the right direction. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 > Now there's a terrible catch 22! You want to tell her how to not be taken advantage of by the boys, but you don't want her to know how to make baby's. > Ewwww, scarey thought! Good touch bad touch and no mention of babies? > She already knows that sex results in babies. We used to breed Labrador. So she understands that sex has to happen before babies can be born. But I don't think she has any clue what sex entails. Other than kissing. I have told her that she MUST be married before she can have a baby because babies need daddies. Yeah, I know, there are a lot of kids out there without fathers and 2 parent families, but she understands rules like that so I'm using it until she questions it!! > How about a celebration dinner at her favorite diner? She LOVES movies, especially cartoons so maybe we could do that and dinner out. ) Thanks for the suggestion. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 I bet you're real glad she's a stickler for rules right now! By the way, even if I was a single mom, I'd still tell my kids their supposed to be married before they have babies! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 How old is ? My sister is MR and she was married a couple of years ago and just this sept 1st I went to her son's 1st birtday party. I am not saying that this is what will happen for or that it probably will. Just something to think about. But you know your daughter best. Jacquie H > She seems to be aware that this is something she will go through. But > her question was, " When my period starts, when will I have a baby? " > > *cold shudders* She's serious. She wants a baby. She has NO clue what > the entails, she can't even feed her fish, but she wants a baby. She > wants to get married, have a house of her own and have babies. *more > cold shudders* > > She has her ears pierced already but I think maybe making a bit of > a " ceremony " of some sort might be helpful to her and her sister. I > just have to figure out what to do.... > > And NO Sami may NOT get her belly button pierced no matter how many > times she asks. And NO definitely is NOT having a baby to > celebrate. *lots and lots more cold shudders* > > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 My sister is MR and she was married a couple of > years ago and just this sept 1st I went to her son's 1st birtday > party. Jacquie H really??? how is she dealing with all of that?.. marriage, and a baby? if i may be so bold to ask and how is the baby? this is just sooooo cool....tho i really can't imagine jenna like this...but i guess, who knows????? thanks nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 > How old is ? My sister is MR and she was married a couple of > years ago and just this sept 1st I went to her son's 1st birtday > party. I am not saying that this is what will happen for or > that it probably will. Just something to think about. But you know > your daughter best. > Jacquie H is 10 almost 11. My husband had an aunt that was MR who was married until she died just a few years ago. She and her husband never had children. She wasn't capable of taking care of one but she would have loved to have had a whole house full. might be able to handle a baby when she grows up but I sincerely doubt it. She would have to make some major leaps in her development. She has done that in the past but I haven't seen anything like that in about a year and a half now, so I have my doubts. I would like to be more optomistic and I hope proves me wrong, but I just don't see it happening at this point. Tina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.