Re Contributions from carers/parents etc

[Guest guest]

Hello Carol. In all fairness, I do compare 's photos for a

basis of how each day is. Someone else may consider that judgemnet.

I didn't think. I was so happy for Kim, if the photos were a bad day

for her. I go by photos and what tells me. He's very brave,

and protective of my feelings. Recent posts have been re. medication

and a.m. attacks, which don't pertain to his case. He posted #9221.

My place is BESIDE him. Marque

> Hi everyone, got my computer fixed again!!! I see is having

gremlins, too - what a drag. I wanted to make a comment about people

who don't actually have chronic urticaria contributing/ " taking up

space " in discussions. I feel that we MUST welcome contributions

from carers etc just as much as from people actually suffering

from " it " . Alena needs her Mommy to speak for her, as do all the

other children, and there are lots of adults whose partners write on

their behalf for various reasons. We only have to look at the

incredibly valuable and informative contributions from Myra,for

instance, who does not have chronic urticaria herself, to know that

people like her must not be excluded. My husband doesn't write to

the group, but I tell him all about the messages and information I

receive, and he and my children (and everyone else I know) are

interested and want to be kept up to date, for obvious reasons!

> Come on now, let's stop the bickering about who's welcome and who's

not, and who feels worse than someone else, etc. The message I just

read to Marque from Kim (I think?!) was not pleasant. Let's support

each other without judging; that's what we're all about. Ok, lecture

over! hugs, Carol

[Guest guest]

You're a sweetie, Carol!

He has tried that, without much success. Of natural substances, 950

mg. Valerian Root has been more beneficial. It's a powerful

relaxant, usually used for stress. (Anyone in CU's grip, surely has

stress!) It helps sleep--though in his words, " Makes ya dream

in color! " He has been relying on Self-hypnosis for really bad times.

He has seen several physicians, dermatologist, allergists, and so

forth, on my insistance, which is TOTALLY against his upbringing.

When they were unable to be of much help, he wondered if he was wrong

to. If perhaps, he was destined to be modern day " Job " .

He saw my family doctor/friend, again last week. Tested Negative for

H Pylori. And, thyroid test results should be in Monday.

Thank you for thinking of him. Marque

> > > Hi everyone, got my computer fixed again!!! I see is

having

> > gremlins, too - what a drag. I wanted to make a comment about

people

> > who don't actually have chronic urticaria contributing/ " taking up

> > space " in discussions. I feel that we MUST welcome contributions

> > from carers etc just as much as from people actually suffering

> > from " it " . Alena needs her Mommy to speak for her, as do all the

> > other children, and there are lots of adults whose partners

write on

> > their behalf for various reasons. We only have to look at the

> > incredibly valuable and informative contributions from Myra,for

> > instance, who does not have chronic urticaria herself, to know

that

> > people like her must not be excluded. My husband doesn't write to

> > the group, but I tell him all about the messages and information I

> > receive, and he and my children (and everyone else I know) are

> > interested and want to be kept up to date, for obvious reasons!

> > > Come on now, let's stop the bickering about who's welcome and

who's

> > not, and who feels worse than someone else, etc. The message I

just

> > read to Marque from Kim (I think?!) was not pleasant. Let's

support

> > each other without judging; that's what we're all about. Ok,

lecture

> > over! hugs, Carol

> >

> >

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > If you do wish to unsubscribe then you can click on the following

link:

> > <mailto:urticaria-unsubscribeegroups>

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> >

> > This list is in the service of those who suffer from Chronic

Urticaria

> (hives). We strive to support and lift each other as a worldwide

> cyber-family.

> >

> > We share whatever needs to be shared to help one another in our

struggle

> with Chronic Urticria.

> >

> > Any posting that is off the main topic of Chronic Urticaria, we

post with

> a prefix of NCU -. This is done out of respect for those who do

not wish to

> read such postings.

> >

> >

[Guest guest]

Hello Carol & Whole Group.

Ditto on your lecture! We all have fragile emotions and

misinterpretations are inevitable with a large group. It' also

healthy to be honest. Still, our goal is to solve the mystery of

urticaria. Best, Harry in IN

> Hi everyone, got my computer fixed again!!! I see is having

gremlins, too - what a drag. I wanted to make a comment about people

who don't actually have chronic urticaria contributing/ " taking up

space " in discussions. I feel that we MUST welcome contributions

from carers etc just as much as from people actually suffering

from " it " . Alena needs her Mommy to speak for her, as do all the

other children, and there are lots of adults whose partners write on

their behalf for various reasons. We only have to look at the

incredibly valuable and informative contributions from Myra,for

instance, who does not have chronic urticaria herself, to know that

people like her must not be excluded. My husband doesn't write to

the group, but I tell him all about the messages and information I

receive, and he and my children (and everyone else I know) are

interested and want to be kept up to date, for obvious reasons!

> Come on now, let's stop the bickering about who's welcome and who's

not, and who feels worse than someone else, etc. The message I just

read to Marque from Kim (I think?!) was not pleasant. Let's support

each other without judging; that's what we're all about. Ok, lecture

over! hugs, Carol

[Guest guest]

Dear Kim,

I'm very sorry for your brother's health probs. My brother died last September due to liver failure following years and years of other health problems. He was a cop that was injured on the job, was beaten, about six weeks after spleen was removed and from that point on...

It sucks to have URT, but it sucks worse to watch someone die. Liver deaths are extremely painful for the patient and those that love them. It has been very difficult for me to function, well, actually, I really didn't function, since my bro's death. He was a twin and two years older than me. He was so very brave and tried so very hard to live. He taught me the power of words as he never missed a chance to tell us how much we all meant to him. He would be lying in his hospital bed, with tubes in and out of every place possible, dialysis machine whirling on, and try to comfort me in my hive breakouts. I miss him.

But, I am OVERCOMING THESE HIVES. My doctor that has me on all NATURAL medicines, hormones, etc. etc. etc. has really turned my life around. At the end of January I was physically unable to do anything for about 23 hours in a day. I am at about a 140% turn around. Last year after my brother died, I truly felt I would not be alive more than two or three years. Now, I absolutely know I will be here long enough to be a granny one day.

Again, my most deepest sympathy. I understand so much the depression and pain of losing someone like a brother especially when you can't even feel good enough to feel like you can help them.

God speed.

Patti

[Guest guest]

Hi everyone, got my computer fixed again!!! I see is having gremlins, too - what a drag. I wanted to make a comment about people who don't actually have chronic urticaria contributing/"taking up space" in discussions. I feel that we MUST welcome contributions from carers etc just as much as from people actually suffering from "it". Alena needs her Mommy to speak for her, as do all the other children, and there are lots of adults whose partners write on their behalf for various reasons. We only have to look at the incredibly valuable and informative contributions from Myra,for instance, who does not have chronic urticaria herself, to know that people like her must not be excluded. My husband doesn't write to the group, but I tell him all about the messages and information I receive, and he and my children (and everyone else I know) are interested and want to be kept up to date, for obvious reasons!

Come on now, let's stop the bickering about who's welcome and who's not, and who feels worse than someone else, etc. The message I just read to Marque from Kim (I think?!) was not pleasant. Let's support each other without judging; that's what we're all about. Ok, lecture over! hugs, Carol

[Guest guest]

Dear Marque

I applaud your wonderful support of . Wanted to ask you - does 's

religion forbid homeopathic remedies? I have had some relief with urtica

urens, made with the whole stinging nettle plant only. Maybe this might

help? ps I'm not clever enough to send a photo anyway! best wishes, Carol

Re: Re Contributions from carers/parents etc

> Hello Carol. In all fairness, I do compare 's photos for a

> basis of how each day is. Someone else may consider that judgemnet.

> I didn't think. I was so happy for Kim, if the photos were a bad day

> for her. I go by photos and what tells me. He's very brave,

> and protective of my feelings. Recent posts have been re. medication

> and a.m. attacks, which don't pertain to his case. He posted #9221.

> My place is BESIDE him. Marque

>

>

>

>

> > Hi everyone, got my computer fixed again!!! I see is having

> gremlins, too - what a drag. I wanted to make a comment about people

> who don't actually have chronic urticaria contributing/ " taking up

> space " in discussions. I feel that we MUST welcome contributions

> from carers etc just as much as from people actually suffering

> from " it " . Alena needs her Mommy to speak for her, as do all the

> other children, and there are lots of adults whose partners write on

> their behalf for various reasons. We only have to look at the

> incredibly valuable and informative contributions from Myra,for

> instance, who does not have chronic urticaria herself, to know that

> people like her must not be excluded. My husband doesn't write to

> the group, but I tell him all about the messages and information I

> receive, and he and my children (and everyone else I know) are

> interested and want to be kept up to date, for obvious reasons!

> > Come on now, let's stop the bickering about who's welcome and who's

> not, and who feels worse than someone else, etc. The message I just

> read to Marque from Kim (I think?!) was not pleasant. Let's support

> each other without judging; that's what we're all about. Ok, lecture

> over! hugs, Carol

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> <mailto:urticaria-unsubscribeegroups>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

>