Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi , Welcome to the group, and congratulations on getting started on treatment for Jake! The Starband was FDA approved as an active band, requiring frequent follow-up for adjustment, and is clearly stated as so on the manufacturer's website: http://www.orthomerica.com/products/cranial/starband.htm Overwhelmingly, orthos that order and offer the Starband do offer it as it was designed, as an active band. However, we have heard of a couple of locations so far where orthos MODIFY the Starband to be a passive band. It doesn't depend on the needs of the child, it is just the protocol at certain facilities. I know NOPCO is one such location, and I can't remember the other off-hand. Knowing whether or not your Starband is active or passive could be critical information if you have an older baby, or a baby with a complex/severe headshape issue that may require consecutive bands, since in both of those instances babies will benefit from active banding. Younger babies do fine in both active or passive bands. Another way to find out if your baby's band is active or passive, besides relying on the characterization of the ortho, is to get the estimated adjustment schedule. With some variations, an active band will require adjustments every couple of weeks, while a passive band will be on a 4-6 week adjustment schedule. Do you know what Jake's estimated adjustment schedule will be? If you'd like to read a good description of the way that active and passive bands differ, check out the files section of the group, and read the document titled " What it means to be Dynamic. " You posted a great question. Would you let us know if you find out if Jake's Starband is indeed passive? Would you let us know where you will be getting his Starband if it is passive so we could notate it as such in the Helmet/Band Database? Take care, Christie (Mom to Repo'd Remy) > > Hi there > > > > Just wanted to write a long-winded note with Colin's update. > > We saw Chuck for the last time on Tuesday :-( and met an ortho > named > > . More on that later. No cuts were made and it occurred to > me > > that no cuts have been made for *at least* a month. Does that sound > > right considering his age (11 mos.) and his headshape (brachy)? > > > > Chuck said that we could be done in 2 wks but it is always up to > the > > parent to decide when they are done. Great, I love those > decisions. > > Colin's head looks much much better but of course, (as you > suspected > > I'd say) there is still a flatness to it. What's a mom to do? My > > husband wants him to be done in 2 wks. He will be 1 yr. old that > week > > so that would be a nice birthday present. I hate to compare but I > > keep thinking: ph has worn his for 4 mos., D. has > > worn his for 4 mos., .....you get the picture.... > > > > But it's not about us (parents) or the birthday is it??? Sure, his > > growth is slowing but there are plenty of babies that started on or > > around 12 mos (or later as we all know) so I am tormented by > > the " should we go one more month " ? thing. He has plenty of room > left > > in it and as I said no cuts have been made in at least 4 wks, and > we > > won't go in next week so it will be the same for SIX weeks. Again, > > does this sound ok? He still does not have any problems w/red > spots > > or anything. We see the ped neuro next Weds. so I suspect he will > say > > that we are done since he wouldn't have done the band in the first > > place. OH! I have to tell you something else but I'll make it a > > separate post! > > > > I asked about continuing to wear it just at night and they said > that > > you might get rejection from him - if he doesn't wear it in the day > > he may not want to wear it at night. I think that was another > thing > > that could be left up to me. > > > > My husband broke the digi camera and I threatened his life if > doesn't > > get it fixed asap! After all graduation may be upon us and his > > BIRTHDAY!!! > > > > ALL Thoughts appreciated. :-) > > > > Sue > > Colin F. 11 mos. brachy, rt plagio > > STARband 6/29 > > Buffalo, NY > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.