Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 On Wed, 20 Jun 2001 09:00:47 US/Eastern cinnyd@... writes: i do recall clearly > when I > attended the ANA symposium in 1995 here in FL (sand key) there was a > lady who > shrouded her teenage son and would not let him even talk to us who > had nf2, he we scared herto no ends and hell, we > looked fine, _________________________________________________________ Well ,hmmmmmmmmm,Maybe the old lady had heard of your reputation:)........"OH MY,OH MY,IT'S CINDY FROM FLORIDA.......YOU STAY AWAY FROM THAT GIRL,SHES NO GOOD,NO GOOD....YOU HEAR ME" Jimmy> > > > > > > Hi JD:> > > > I empathize with you. Your brother, while keeping the kids > ''safe" in the > > dark, may just be assuring their deafness. Finding those ANs when > tiny is > > sooooo critical. Sure he feels guilty. So do I but he needs to > stop > > thinking about himself and deal with it for his childrens' sake. > > > > I went to a national ANA conference a few years ago and attended a > session > > for NF2 folks. I sat agape "listening" to some of the parents > talking about > > how they suspect their children have NF2 but will not have MRIs > because they > > couldn't deal with it if it was confirmed. These people really > need to get > > past the denial stage or they are condeming their children to > even bigger > > problems. They also commented that they didn't feel the kids > could "handle" > > it. Bullshit. Kids can handle stuff better than adults. > > > > When I found out my son had NF2 I knew that he had a right to know > the > > information and exactly what it meant. I asked my doctor how to > go about > > telling him and exactly what info to give an 11 year old. Dr. B > said to "be > > direct and honest" and I have never regretted telling him.> > > > Bette> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 I know Jimmy is not even here dfue to surgery but I gotto clarify. the mamma wasshielding her teen age boy from all of us with nf2, several tried to talk to him, the deafness and crooked smiles terrified her. wonder where he is now? perhaps here :-) Jimmy wrote: On Wed, 20 Jun 2001 09:00:47 US/Eastern cinnyd@... writes: i do recall clearly > when I > attended the ANA symposium in 1995 here in FL (sand key) there was a > lady who > shrouded her teenage son and would not let him even talk to us who > had nf2, he we scared herto no ends and hell, we > looked fine,_________________________________________________________Well ,hmmmmmmmmm,Maybe the old lady had heard of your reputation:)........"OH MY,OH MY,IT'S CINDY FROM FLORIDA.......YOU STAY AWAY FROM THAT GIRL,SHES NO GOOD,NO GOOD....YOU HEAR ME"Jimmy > > > > > > > Hi JD: > > > > I empathize with you. Your brother, while keeping the kids > ''safe" in the > > dark, may just be assuring their deafness. Finding those ANs when > tiny is > > sooooo critical. Sure he feels guilty. So do I but he needs to > stop > > thinking about himself and deal with it for his childrens' sake. > > > > I went to a national ANA conference a few years ago and attended a > session > > for NF2 folks. I sat agape "listening" to some of the parents > talking about > > how they suspect their children have NF2 but will not have MRIs > because they > > couldn't deal with it if it was confirmed. These people really > need to get > > past the denial stage or they are condeming their children to > even bigger > > problems. They also commented that they didn't feel the kids > could "handle" > > it. Bullshit. Kids can handle stuff better than adults. > > > > When I found out my son had NF2 I knew that he had a right to know > the > > information and exactly what it meant. I asked my doctor how to > go about > > telling him and exactly what info to give an 11 year old. Dr. B > said to "be > > direct and honest" and I have never regretted telling him. > > > > Bette > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.