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I know exactly how you feel I'm having a flare up and it's in my left leg, I

have got a job to walk on it today and the stabbing and burning pain is

horrible. My knee has been playing up for a while now, sometimes it's there and

sometimes it's gone but now it's come back so I will have to use my walking

stick today, hope you feel better soon

x

>teresa wrote:

>

> I tell myself it's okay to get overwhelmed now and then, to let myself

collapse when I need to, to politely excuse myself from the responsibilities of

life for a night. It's not being weak or admitting defeat - it's just the break

before the next round, the breather before the next mile. Because underneath it

is the blind dogged determination that makes us the strongest people we know.

>

>

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,

I feel for your pain and sleepless nights. Hoping you can get that knee fixed

soon. Do you wear a brace on it? One of those that really does the trick, not

one of those neoprene ones.

My hips are getting worse too. Not sure if it's osteoporosis, osteoarthritis or

a combination. I have both and don't know what happens to people who have

brittle bones when it comes to hip replacement.

Worry is easy but it also makes today less desirable so I think living in the

moment is much better and gets easier with practice.

I pray you will find lasting relief.

Jennette

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Venting is good for the body and soul. However based on your vent I would also

have to say that you need to put your suffering from pain into a more realistic

perspective.

While life goes on regardless of how pained we are you are fortunate to still be

able to work clean up etc. and that your pain while severe is not so severe that

it renders you unable to perform those things. Many of us despite our best

efforts can't say that. I only wish I. Was back when I could still participate

in work and other activities despite pain. Five years ago all that stopped for

me when the pain became too out of control. No amount of will or fortitude can

change that.

a

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Same here these past few weeks with 1 storm after another. All the snow, along

with all the freezing cold wind, has kept me inside. I am getting cabin fever.

Thankfully I have crafts to do and a sunlight bulb.

I also have a very funny bunch of men in this house. They all keep me laughing

even when I am feeling my worst.

Every part of my body has been hurting lately due to the storms and cold. I

haven't been out of the house for 2 weeks due to a very hurting and swollen

body. My right leg is still swollen four times the size of my left and my boots

won't fit. So if it is still that size come Thursday, I will have to wear my

slippers outside to my doctors appointment.

I have to have blood work done.So I am going to have him check my uric acid to

see if I have gout on top of everything else It is the only explanation to why

my right leg was swollen, red, and hot. Right now it is still swollen, but it

isn't red, or super hot.

Gentle hugs,

Ms.Katurah

> wrote:

>Yikes! Me, too! Been having a really rough several weeks. My pain levels have

been through the roof and I've been trying so hard to keep doing all the things

that I need to do, but it's been a real challenge. Had a couple nights where I

just had to sit and cry.

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Dear Jennette:

 

Thanks for the kind thoughts.  I haven't had very good luck with braces. 

Haven't been able to find one big enough for my knee.  Being as heavy as I am

and carrying as much of my weight in my legs, it's been a challenge to find one

and I haven't been successful yet.  The difference in size between my thigh, my

knee and my shin are the problem.  I think it would help to be able to keep it

from flopping all over the place but none of the medical supply places in the

area carry anything for me. 

 

Osteoporosis and osteoarthritis are the two things that have destroyed both my

knee and my hip (a lot of my spine issues, too).  I've also got two auto immune

illnesses that keep me on steroids. 

So far I have been told by two orthopedic doctors that I'm too high risk for the

knee replacement.  They are worried both that I would reject the implant and

that my bone in my shin is too brittle and badly damaged to accept the implant. 

The lower bone is so bad that bone marrow has calcified at the top of the bone

just below the knee. 

I haven't given up yet.  My doctor and I haven't talked much about the hip yet,

but I know that there would be the same worries.  I'm going to keep trying to

find help.  Some of my family members ask me why I keep going to doctor after

doctor when I keep being told that nothing can be done.  I just tell them that I

have to keep trying.  I can't give up.  Somewhere, somehow there has to be

something that can be done!

 

Meanwhile, I did have a special brace made for my spine.  It's semi-rigid and

looks sort of like viking armor, complete with molded boobs.  Trouble is, in

order for it to really work, it has to be strapped on so tight that I can't bear

it (and can barely breathe).  I can't wear it for any longer than about 20

minutes at a stretch because it's so uncomfortable.  Then when we moved here, my

current doctor said that there was no way I should be wearing it at all...so

there went a $270 co-pay for it down the drain. 

 

I hope that you are able to get some relief from your hip problems, too.  Don't

wait.  If osteopenia or osteoporosis is an issue, the sooner the better.  There

is a window where people with osteoporosis can get joint replacement.  It

depends on the severity. 

 

Good luck!

- PA

--- Jennette wrote:

,

>I feel for your pain and sleepless nights. Hoping you can get that knee fixed

soon. Do you wear a brace on it? One of those that really does the trick, not

one of those neoprene ones.

>My hips are getting worse too. Not sure if it's osteoporosis, osteoarthritis or

a combination. I have both and don't know what happens to people who have

brittle bones when it comes to hip replacement.

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a I agree.

I miss working, I had to give up my work with autistic children since it became

unfair to my clients(families) if I needed to cancel or reschedule their

therapy.(which was happening) Or modify the therapy, which I refused to do at my

body's peril.

Similar even for volunteering. My health and sleep is just not consistent enough

to be considered a reliable support where ever I'd lend my hand.

I think so many people also don't understand just how depressing it can be for

people living with chronic pain conditions since not only do you almost never

escape pain, but you begin to feel useless to the world in general. And if you

don't drive/have a car, you're even more trapped especially in this weather.

I'm fortunate that since 2000 I have had great medical support, a caring doctor

who listens and is willing to try new things that either she thinks of or that I

come up with. Her saying is, well it can't hurt. Think I'd be done by now if not

for her.

And now my oldest daughter is dealing with problems, well just a few months over

a year now. In the end I had to bring her to my doctor because the one's she was

finding out there were useless and were on one hand throwing narcs on her, while

telling her that she's faking it and just there for drugs.

Anyway I hope everyone has a good/ish day and stay warm it's very burrr out

there today. I'm skipping my morning walk today til later today.

lyn

--- a Hoffman wrote:

>I only wish I was back when I could still participate in work and other

activities despite pain. Five years ago all that stopped for me when the pain

became too out of control. No amount of will or fortitude can change that.

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Sending big gentle hugs. Hope you are feeling better. Tami :)

> wrote:

>

> I tell myself it's okay to get overwhelmed now and then, to let myself

collapse when I need to, to politely excuse myself from the responsibilities of

life for a night. It's not being weak or admitting defeat - it's just the break

before the next round, the breather before the next mile. Because underneath it

is the blind dogged determination that makes us the strongest people we know.

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