Significant Temporal wasting

[Guest guest]

Does anyone have temporal wasting, which is when your head caves in at your

temples making you look like someone who was in a vice grip? Neurologist saw it

and said no big deal, had never seen it before. Often have significant temporal

pain.

Have multiple auto-immune conditions. Age 43. Live in Maumee, Ohio. Keep

getting sicker. Need a treating doctor who can get me well.

Missing out on my kids' lives.

Miserable.

Have great insurance. Spouse has good job. Just can't figure out where to go to

get treated.

Significant memory and cognition challenges. Alphabet soup of auto-immune

illnesses.

Would appreciate your input.

Thank you.

Sincerely,

Lori

[Guest guest]

i am not sure if this will help, but maybe a neuropsychologist could provide

some answers. They work with neurologist about helping various condition that

effect brain functioning. Is there a teaching hospital near you? Look under

the neurology department and then ask if they have a neuropsychologist. My

therapist was a neuropsychologist and he was part of the epilespy center.

Let us know how you are doing.

Lots of gentle hugs, Tami

Lori wrote:

> Does anyone have temporal wasting, which is when your head caves in at your

temples making you look like someone who was in a vice grip? Neurologist saw it

and said no big deal, had never seen it before. Often have significant temporal

pain.

[Guest guest]

> Lori wrote:

>Does anyone have temporal wasting, which is when your head caves in at your

temples making you look like someone who was in a vice grip? Neurologist saw it

and said no big deal, had never seen it before. Often have significant temporal

pain.

Tami, Lori,

I did a Google search and Neuro Talk a link talks about this syndrome. Some of

the articles state temporal wasting comes from other diseases.

I agree with Tami that you need to have this checked and please read the

research on the internet so it can give you and idea of what you are dealing

with.

Let us know what you find out and take it seriously and call your local hospital

if there is not a teaching and they have a index of

the specialists or you can go online and research them for yourself and their

training.

Bennie