Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Carey Where do you live? Are you near a center that eval mito? Co Enzyme Q has helped my daughter alot. Janelle McGuire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 I live in Vista, San Diego County. She was originally diagnosed by Dr. Haas at UCSD. I am thinking of taking her back to him. She does do pt, ot, speech, and vision therapy. I see the most benefit from the speech therapy because now she is a real chatter box. PT and OT kinda have written her off. She can sit alone unassisted for a short period of time indian style. She is so hyper tonic, though, she scissors her legs when held in a standing position. Does anyone have any experience with Dr. Haas at UCSD? Thank you Carey. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Carey I live in Iowa, so I'm not much help about San Diego physicians. But I did attend Mitochondrial Medicine conference in San Diego, I believe 2 yrs ago. Dr Haas was the organizer of that conference. He appeared to be quite caring and knowledgeable. Good luck. Janelle McGuire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Kim-Were you sitting next to Lyssa at the NWH pre-op meeting last Tuesday? If so HELLO! I still can't match names to faces very well. Best of luck on your upcoming surgery! I love your last name. It's so positive! Wishing you tons of good fortune next Monday! ), Steph in Rockport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Thank you so much Crystal!! I can't wait to be on the other side. I'm starting to get excited and nervous at the same time!! (((hugs))) Nance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 I can hear your excitement Hugs Lyssa Re: (unknown) Thank you so much Crystal!! I can't wait to be on the other side. I'm starting to get excited and nervous at the same time!! (((hugs))) Nance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Thank you! He's my Knight in Shining Armor! (unknown) Dawn, Congratulations!!! Even though we've never met, I'm sure that you deserve the very best. Must be your light shining. God Bless. Crystal ----------------------------------------------- FREE! The World's Best Email Address @email.com Reserve your name now at http://www.email.com ------------------------------------------------------------------------ Old school buds here: http://click./1/5536/3/_/675032/_/961161174/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 On Fri, 16 Jun 2000 10:04:27 -0400, OSSG-NewEnglandegroups wrote: > Thank you! He's my Knight in Shining Armor! > dawn, congratulations on your engagement. may you be blessed with a long healthy and loving marriage. maura > (unknown) > > > Dawn, > > Congratulations!!! Even though we've never met, I'm sure that you deserve > the very best. Must be your light shining. God Bless. > > Crystal > > ----------------------------------------------- > FREE! The World's Best Email Address @email.com > Reserve your name now at http://www.email.com > > > > ------------------------------------------------------------------------ > Old school buds here: > http://click./1/5536/3/_/675032/_/961161174/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Good Evening or Good Morning (for some of you..) I just want to say thank GOD for those hormones... right? I mean, I can think of no one who really likes them. My husband, for one, he thinks I am going to loose it. Since I cannot justify wanting to cry all the time, he (of course, like all males) wants to "fix" it. Since my emotions are NOT fixable at this time, I need something to keep me level headed. I don't think I can really handle the "what is wrong?" speech every night. My husband, a good man, does not seem to understand how personally I am taking my diagnosis... All he says, "don't worry, it'll all work out..." but, right now, that really is not good enough. Ever since I have been diagnosed with AS he has not wanted to touch me... I am not sure if he thinks he'll contract it or what, but it is really depressing. So from the fact that I want to cry anyways, I feel lonely from my own husband. Since, my son is not his biologically, I feel real strongly that I need to get pregnant with his child. He just says, "we'll adopt..." That is fine and all but it is those little comments he makes,which really do sink in pretty deeply. Don't get me wrong, we love in every way, we think that he is truely a blessing to both of us. If the time comes, and we need to make the decision to adopt, than that will be that. I miss being pregnant... Needless to say, I am not really doing that well tonight. Sorry, but I think only you people can really understand. Bethany >From: thepostmans@... >Reply-To: Ashermans >To: Ashermans >Subject: (unknown) >Date: Sun, 12 Aug 2001 22:33:17 -0000 > >Hi Bethany, >My name is Glenda and I was diagnosed with Ashermans in May of this >year. I have a 7 year old daughter and a 4 and a half year old son. >I also had a stillborn daughter almost 2 years ago and a D & C after >which caused the ashermans. I have not been treated yet but am >waiting to see a specialist. I know the fear of hearing the >diagnosis and also the fear when you find out it is not a quick fix. >But there is hope. I know you will find it here. I wanted to >welcome you. If you have questions, just ask and you will get a >response. There is a lot of support here and such wisdom. Take time >and read the posts and you'll soon get a handle on everything. Sorry >to hear of your tragedy...behind every person here is a story of >pain. Blessings to you. >Glenda > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Cherilyn, I too, am a new member and your letter sounds exactly like how I feel most days. Somewhere between agonizing torture and small glimpses of hope, we all wait every freaking day. I know it can be overwhelming. I have learned so much in the 2 weeks I have been logging on to this group. People know so much, they are good listeners and they have good advice. I saw where you already received some nice nots from people, asking lots of good questions. I just wanted you to that there are people out here who feel exactly as you do. We just have to keep the faith. Carol S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 Glenda, I just wanted to let you know that you and your husband are in my prayers. Carol in California (Swanson) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Yeppers, ....Fern is 100% right. I have a good friend with FMS, she simply cannot work. Her depression was so severe, she started an on-line depression support group which has been her " work. " Perhaps it's just that your therapist only views work as one narrow definition....so maybe your therapist needs to go to an in-service about this and be given a chance to rethink her attitude! Lynn --- Starflower wrote: > , > > How dare your therapist compare you to anyone else. > Everyone is different > whether they are well or have an illness. It is > absurd to compare because > we all react differently. Besides, I have never > heard of one fibro patient > that could keep working full-time on an indefinite > basis. Most of them > either play out and have to go to part-time or quit > altogether or they push > themselves to the point that they hurt so bad that > they are no good to > anyone including their employer or family. What is > the point of pushing > yourself to the point of severe pain? Is there some > award we are supposed > to win when we disregard our bodies way of telling > us to slow down? I > really get angry when someone who has NO clue what > we go through tells us > that we don't hurt bad enough for it to change our > lives. Even small > amounts of chronic pain will change your life. No > one can have pain day in > and day out with no relief in sight and be able to > function at the level > they did before. > > Gentle hugs, > Fern > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 , How dare your therapist compare you to anyone else. Everyone is different whether they are well or have an illness. It is absurd to compare because we all react differently. Besides, I have never heard of one fibro patient that could keep working full-time on an indefinite basis. Most of them either play out and have to go to part-time or quit altogether or they push themselves to the point that they hurt so bad that they are no good to anyone including their employer or family. What is the point of pushing yourself to the point of severe pain? Is there some award we are supposed to win when we disregard our bodies way of telling us to slow down? I really get angry when someone who has NO clue what we go through tells us that we don't hurt bad enough for it to change our lives. Even small amounts of chronic pain will change your life. No one can have pain day in and day out with no relief in sight and be able to function at the level they did before. Gentle hugs, Fern Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 I have been gettign messages up until a few hours ago I think it got quiet but earlier today there were some. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
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