Re: Arachnoiditis

[Guest guest]

sharon wrote:

> Hi . The arachnoiditis is documented on my MRI. I haven't had any

previous surgeries. I did have two epidurals for childbirth. Maybe that was the

cause but I don't know. To me it's not so important how I got it, it's more of

what are we going to do about it. Sharon

>

>

Sharon,

There is not much for the treatment if you do research and nuerotoxins and

arachnoiditis. You are lucky to get a diagnosis as arachnoiditis is

controversial and doctors do not want to admit that the injections they do can

cause it though it has been documented. So it is a touchy diagnosis that is

avoided being given.

There are several of us here that have it and I am sure many that are

underdiagnosised.

The treatment is pain relief and when they talk of cortisone injections, this

confuses me as this is considered an invasive procedure that could cause

further scarring.

This is from the National Institute for neurological disorders and stroke which

is an very informative website.

I know I got mine from to many spinal injections and the medications they use

are neurotoxins.

http://www.ninds.nih.gov/disorders/arachnoiditis/arachnoiditis.htm

Arachnoiditis describes a pain disorder caused by the inflammation of the

arachnoid, one of the membranes that surround and protect the nerves of the

spinal cord. The arachnoid can become inflamed because of an irritation from

chemicals, infection from bacteria or viruses, as the result of direct injury to

the spine, chronic compression of spinal nerves, or complications from spinal

surgery or other invasive spinal procedures.

Inflammation can sometimes lead to the formation of scar tissue and adhesions,

which cause the spinal nerves to “stick” together. If arachnoiditis begins to

interfere with the function of one or more of these nerves, it can cause a

number of symptoms, including numbness, tingling, and a characteristic stinging

and burning pain in the lower back or legs. Some people with arachnoiditis will

have debilitating muscle cramps, twitches, or spasms. It may also affect

bladder, bowel, and sexual function. In severe cases, arachnoiditis may cause

paralysis of the lower limbs.

I hope you find pain relief for yours.

Bennie

[Guest guest]

Hi Bennie. Thanks for the info but believe me, I've researched and educated

myself to the point that I could write a book about arachnoiditis. I just found

a new PM doctor, in addition to the arachnoiditis he is suspecting sacroiliac

disfunction for which he is going to inject under fluoroscopy, since it isn't in

the spine I'll give it a shot, I guess that pun was intended. Sharon

> Bennie wrote:

> There is not much for the treatment if you do research and nuerotoxins and

arachnoiditis.

> The treatment is pain relief and when they talk of cortisone injections, this

confuses me as this is considered an invasive procedure that could cause further

scarring.

[Guest guest]

> sharon wrote:

> Hi Bennie. Thanks for the info but believe me, I've researched and educated

myself to the point that I could write a book about arachnoiditis. I just found

a new PM doctor, in addition to the arachnoiditis he is suspecting sacroiliac

disfunction for which he is going to inject under fluoroscopy, since it isn't in

the spine I'll give it a shot, I guess that pun was intended. Sharon

Sharon,

I agree with you one hundred per cent. I also have sacral iliac syndrome and my

physical therapist diagnosised mine. It took seven months for when I was

complaining about that for the diagnosis to happen. I had an auto wreck and

when the guy pulled out in front of me I pushed down real hard on the brake with

my right foot to avoid the wreck.

This action caused me to " jamm " my SI joint and it became misaligned. I found

many articles that this is a common injury in this type of action but many

doctors are not aware of it. My physical therapist spent many visits

realigning it and I wear a Sacral Iliac Belt to prevent it from misaligning it

again.

She told me stepping off a curb could misalign it again. She also stated the

relationship between the piriformis muscle and sciatic nerve as they all are

close and mine were " shearing " against each other causing my severve muscle

spasm.

I truly believe this and I know am diagnosed with piriformis syndrome because of

this and it explains the pain I have.

I was given myofascial exercises and do them to prevent from spasm and to help

keep them relaxed.

I have not had Sacral Iliac injections yet but you might ask your Doctor to send

you to a physical therapist to evaluate your Sacral Iliac dysfunction as you

might have piriformis muscle, sciatic nerve problems or to rule it out. This

allows you to check if a Sacral Iliac Belt would be beneficial to you, also.

They can be bought online and help me immensely. I understand about educating

yourself about acachnoiditis but generally, the medical community does not

accept it as a true diagnosis as they do not want to admit the injections they

put in your spine and cerebral spinal fluid are neuro toxins and cause a

response such as arachnoiditis. Dr. Burton who posted about it , had been

debunked as he stated it is like freon which it is not freon but still

neurotoxin and the statements on

the med bottles of the medications injection have warnings.

If this were accepted more wholeheartedly, there would be less spinal

injections, thus less money to the anesthologists that practice pain management

and the injections are a huge part of their income. If your doctor does not

accept you refusing to have them and not treat you, then you know they are one

of those doctors

Good luck with your sacral iliac injection but look at some of the other

treatments for Sacral Iliac syndrome and pysical therapy exercises helped me a

lot along with my sacral iliac belt. Let us know. Bennie