Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 you have been very busy! that is truly inspirational sara! i need to get on top of things around here before i leave town on tuesday morning - i might know which pile of laundry to dig through to find the kids clean socks but i am thinking hubby does not ;o) michelle btw - we are a bubblebath free residence - out of control!!! enough said! Once a bubblebath, always a bubblebath. A few weeks ago, having a new bottle of baby bubblebath, I thought I would give Mikey a treat. We are now out of baby bubblebath, baby soap, and baby shampoo. The Handy Dandy Notebooks are now residing on top of the fridge, and there they shall stay for the forseeable future, or until we get two more so each boy can have one notebook in each hand. Even that probably would not work because would still want ALL the notebooks. To distract my screaming children from this catastrophe, I ran a bath. came running - he loves baths, as long as I don't try to CLEAN him or anything - and promptly threw yet another tantrum. I knew instantly he wanted a bubblebath, but the only thing in sight was Matt's dandruff shampoo, and I somehow did not think that would be a kind thing for baby skin to soak in. So they are now bathing in a tub full of bubbles -- from dish soap. They will smell lemony fresh... I just hope he doesn't notice that his fingers are pruning and try to get me to wipe the wrinkles off again...THAT was fun... On the plus side, this place is CLEAN. Well, the living room, dining room, kitchen, and hallway. Hot spots cleared, tile mopped, dusted ALL the furniture, changed the water in the fish tanks and scrubbed off the algae, swept the cobwebs off the ceiling, CLEAN. I just need to vacuum (can't run the vacuum with Mikey home) and I did run the Bissell sweeper thingy. Hooray! I also got 2 ceramic diffusors that sit on top of a lightbulb. You fill them with essential oils. I have orange and lavender. So hopefully it even smells good in here. WHEW! -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 Wow, have you been busy!!! Now all you need is a long hot soak for yourself! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Sara, you are so resourceful!!!! I'll have to remember that trick about the dish soap!! LOL!!! Jake sits in a bath so long and so often that I don't normally try to clean him unless there is a dirty spot on his face or something, and I only wash his hair when I absolutely have to (every other day or two). Thank goodness for bubble baths or I might never get my house clean. :-) ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 > Sara, you are so resourceful!!!! Why thank you! =) > Jake sits in a bath so long and so often that I don't normally try to > clean him unless there is a dirty spot on his face or something, and I Ditto that. He just soaks clean. They asked me at his OT eval for school how he handled daily grooming like getting his face washed and his hair brushed. Am I supposed to be doing these things every day?? I fail the mommy exam... > only wash his hair when I absolutely have to (every other day or two). Wow, how old is Jake? I only wash Mikey's hair if he gets something in it. Really, a month or 6 weeks will go by. But he's a baby so it doesn't get greasy or anything. (OK maybe he's not really a baby anymore, he just turned 3, but you know what I mean.) The last time I washed his hair, we had just eaten breakfast & were getting ready to go to OT and he spilled oil into his hair. You would have thought I was trying to drown him. Seriously. I got it washed and got us out the door; he tantrummed all the way to OT (which he loves) and into the building. As soon as we got inside he threw himself down on the floor and just screamed and cried. I'm talking 45 minutes after he was out of the tub. His OT told me not to wash his hair unless it is absolutely necessary. She believes these sensory issues should not be forced; i.e. he should not be forced to " get used to it. " She says it doesn't work and will only make his anxiety worse. > Thank goodness for bubble baths or I might never get my house clean. :-) I hear that! -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 > > > > only wash his hair when I absolutely have to (every other day or two). Question ? Have you ever tried putting on a swimsuit and taking a shower with him? Noah used to be terrified of baths and showers untill he saw that mommy does it too ...It took a few times but within 2 weeks he looked forward to shower time and now loves it. I sat down and let him wash my hair a few times, then I said Noah's turn and washed his. It takes a little more time but he's clean. Try it, it might help... Amy mom to Noah 6 Lucas 8 ASD's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 We're about every week and a half to 2 weeks. Depends on how hot and sweaty he gets. I usually wait until Granny comes over, and let her do it. :-) He behaves much better for her than for me. He gets a bath every 2 to 3 days, and I basically let the dirt soak off, rather than wash him. I MIGHT make a quick pass of the face if it's real bad, but usually it's not. I do mine first, and then, tell him it's his turn. He doesn't like it much, but he puts up with it. The hair though, that's a BIG hurdle. WEird thing is, he LOVES the tub. Go figure. ellen Re: Re: Once a bubblebath, always a bubblebath. > > only wash his hair when I absolutely have to (every other day or two). > I missed this one first time round. Every other DAY?????? We manage once a WEEK. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.404 / Virus Database: 228 - Release Date: 10/15/2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 > > only wash his hair when I absolutely have to (every other day or two). > I missed this one first time round. Every other DAY?????? We manage once a WEEK. Yes, my son looks like one of those unfortunate little disabled kids -- he dresses himself and NEVER matches; his hair is rarely washed and sticks out all over the place dirty OR clean (but won't spike out in a brush cut); he always has food on his face I managed to miss with the washcloth; his pants ALWAYS pull up over his socks; his favorite shirts are all too short and he won't give them up. <sigh> Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 this would be one of those examples of how all of our kids can be so different from each other despite their similar diagnosis! rowan washes his hair EVERYDAY sometimes more than once if he manages to sneak in the shower with me, paul, sebastian. he also would never be caught with food anywhere on his person or clothing - he's way too obsessive compulsive for that. if he notices that he has food, dirt etc on his shirt or whatever he immediately changes into a clean one! michelle Re: Re: Once a bubblebath, always a bubblebath. > > only wash his hair when I absolutely have to (every other day or two). > I missed this one first time round. Every other DAY?????? We manage once a WEEK. Yes, my son looks like one of those unfortunate little disabled kids -- he dresses himself and NEVER matches; his hair is rarely washed and sticks out all over the place dirty OR clean (but won't spike out in a brush cut); he always has food on his face I managed to miss with the washcloth; his pants ALWAYS pull up over his socks; his favorite shirts are all too short and he won't give them up. <sigh> Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 I'm going to attempt to cut and paste so I can answer a few different posters with one e-mail. The Byks wrote: > > Wow, how old is Jake? > > I only wash Mikey's hair if he gets something in it. Really, a month or 6 > weeks will go by. But he's a baby so it doesn't get greasy or anything. > (OK maybe he's not really a baby anymore, he just turned 3, but you know > what I mean.) Jake is 3 and about 4 months. I'm thinking that maybe his sensory issues with his head must not be as bad as some of the other kids here because it's not too big of a deal. He really freaks out when he has to get his hair cut but hair washings are kind of a couple of screams and then it's over. I guess I've just gotten used to it. It's not a real tantrum or melt down, it's just extreme displeasure with the idea. I think the major issue is water dripping down his face and in his eyes. So it must not be the same as what you're describing. > The last time I washed his hair, we had just eaten breakfast & were getting > ready to go to OT and he spilled oil into his hair. You would have thought > I was trying to drown him. Seriously. I got it washed and got us out the > door; he tantrummed all the way to OT (which he loves) and into the > building. As soon as we got inside he threw himself down on the floor and > just screamed and cried. I'm talking 45 minutes after he was out of the > tub. His OT told me not to wash his hair unless it is absolutely necessary. > She believes these sensory issues should not be forced; i.e. he should not > be forced to " get used to it. " She says it doesn't work and will only make > his anxiety worse. Well, we have probably forced him to get used to a lot of things that we shouldn't have. :/ He has never had a tantrum like what you described above. Last week he had to have blood drawn and it was very traumatic and painful and it was so bad that I was bawling my eyes out when we left the lab but when it was over, it was over for Jake. By the time we got to the car he looked like nothing had happened to him. However lately he has been " tantruming " a little bit more than he used to. When he doesn't get something he wants he yells really loudly (almost scream, or sometimes he does scream) and he has been laying down on his stomach and beating his fists into the floor and kicking his legs. I think he may have actually learned this from a Bugs Bunny cartoon tape he has. It doesn't last too long because we refuse to let him continue on so he stops and reduces to plain crying within a minute or so. So I guess he doesn't have that issue...(yet????) Ever since he was very, very little we would be very strict about his crying fits, thinking we would never let him throw a fit (you know how stupid new parents can be) anyway, my husband developed a thing with him that whenever he started going over the limit with his crying my husband would speak very sternly to him and say " EASY " and his deep voice seemed to scare Jake enough into calming down somewhat. He would still cry a little but would never really throw a full blown fit. To this day we say " EASY " and now Jake repeats " Easy " albeit in a crying fashion but he begins to calm down. At the Renaissance Festival Jake was having a true meltdown about not being able to go on the ponies again but I couldn't take time to deal with it because I had to run to get the rented stroller turned in on time so Jake was coming behind me yelling and crying and this man yelled at him " Hey, there's no crying at the Renaissance Fair! " (not in a particularly mean way, he was just trying to say it loud enough so Jake could hear him and he was kind of joking) anyway, Jake was so startled that he immediately shut up. He eventually resumed crying a little bit, but not in an out of control way. I'm just afraid that maybe we're forcing him into an Autistic (internalizing) stance by stopping him from throwing a fit. ??? Don't know if that makes any sense or not. Well, this e-mail turned into something besides baths, so I'm going to quit this one here. It certainly has gone on long enough. Anybody still here? ;-) ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Amy wrote: > Question ? Have you ever tried putting on a swimsuit and taking a > shower with him? Noah used to be terrified of baths and showers > untill he saw that mommy does it too ...It took a few times but > within 2 weeks he looked forward to shower time and now loves it. Ummmm. Yes. I guess it's time I start wearing a swimsuit. :-) You know I'm a midwife, and I'm also a throwback to the 60's/70's era of hippies and nakedness. LOL.... > > I sat down and let him wash my hair a few times, then I said Noah's > turn and washed his. It takes a little more time but he's clean. Try > it, it might help... This is a great idea! I haven't let him wash my hair yet, but it's something to try!!! ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 AMEN! >>>>>>>> Besides, if he learns to tell *himself* to take it easy, then he has learned a calming-down tool he can use for the rest of his life! Jacquie <<<<<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 >>he also would never be caught with food anywhere on his person or clothing - he's way too obsessive compulsive for that. if he notices that he has food, dirt etc on his shirt or whatever he immediately changes into a clean one! << That's Boone. Not even a drop of water can be on his clothes. He does not get dirty. He lives for the hot tub but won't take a bath. It has to be a shower. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 > > I'm just afraid that maybe we're forcing him into an Autistic > > (internalizing) stance by stopping him from throwing a fit. ??? Don't > > know if that makes any sense or not. > > > Don't worry about that, Karin. These kids know themselves what they need to > do, and if Jake really NEEDED to throw a wobbler, he would -- and there'd be > no stopping him with all the 'easy' s in the world. :-) I have a feeling, Karin, that you will look back at this post one day and say ---WHAT THE HECK WAS I SAYING??? Boone used to calm himself with 'sokay, 'sokay. But that just doesn't cut it anymore. Oh, how I miss those days. Sissi Kids' Page http://www.isoa.net/~nitetrax/original.htm Boone's Art Page http://www.isoa.net/~nitetrax/bart.htm Dillon's Music Page http://www.geocities.com/flaremusic Please sign petition: www.geocities.com/stopleland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 > I'm just afraid that maybe we're forcing him into an Autistic > (internalizing) stance by stopping him from throwing a fit. ??? Don't > know if that makes any sense or not. Don't worry about that, Karin. These kids know themselves what they need to do, and if Jake really NEEDED to throw a wobbler, he would -- and there'd be no stopping him with all the 'easy' s in the world. :-) Besides, if he learns to tell *himself* to take it easy, then he has learned a calming-down tool he can use for the rest of his life! Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Sissi Garvey wrote: > I have a feeling, Karin, that you will look back at this post one day and > say ---WHAT THE HECK WAS I SAYING??? > > Boone used to calm himself with 'sokay, 'sokay. But that just doesn't cut it > anymore. Oh, how I miss those days. Yeah... that's what I was afraid of.... I've had a feeling that he is *beginning* a tantrum thing... :/ Weird, most kids after they are 2/3 yrs. they are past most of that, but it sounds like he may get worse after having a " relatively " easy 2/3 year old stretch. ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 i know for rowan the " terrible twos " and tantrums came at four, which makes sense because he was 18-24 months delayed at that time. michelle Re: Re: Once a bubblebath, always a bubblebath. Sissi Garvey wrote: > I have a feeling, Karin, that you will look back at this post one day and > say ---WHAT THE HECK WAS I SAYING??? > > Boone used to calm himself with 'sokay, 'sokay. But that just doesn't cut it > anymore. Oh, how I miss those days. Yeah... that's what I was afraid of.... I've had a feeling that he is *beginning* a tantrum thing... :/ Weird, most kids after they are 2/3 yrs. they are past most of that, but it sounds like he may get worse after having a " relatively " easy 2/3 year old stretch. ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 OH MAN!!!!!!! Are you telling me that Matt's tantrums are going to get WORSE before they get better?? He's almost 3 but at about 18-24 months developmentally, except for language, which is at about 14 months. ellen Re: Re: Once a bubblebath, always a bubblebath. i know for rowan the " terrible twos " and tantrums came at four, which makes sense because he was 18-24 months delayed at that time. michelle Re: Re: Once a bubblebath, always a bubblebath. Sissi Garvey wrote: > I have a feeling, Karin, that you will look back at this post one day and > say ---WHAT THE HECK WAS I SAYING??? > > Boone used to calm himself with 'sokay, 'sokay. But that just doesn't cut it > anymore. Oh, how I miss those days. Yeah... that's what I was afraid of.... I've had a feeling that he is *beginning* a tantrum thing... :/ Weird, most kids after they are 2/3 yrs. they are past most of that, but it sounds like he may get worse after having a " relatively " easy 2/3 year old stretch. ~ Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Andy loves his baths too. He has to stand in the tub to get his hair washed, then he will sit down. No face washing, but he will let me soap his back and his tummy. I bath him every 3 or 4 days. Ali weinberg@... wrote: We're about every week and a half to 2 weeks. Depends on how hot and sweaty he gets. I usually wait until Granny comes over, and let her do it. :-) He behaves much better for her than for me. He gets a bath every 2 to 3 days, and I basically let the dirt soak off, rather than wash him. I MIGHT make a quick pass of the face if it's real bad, but usually it's not. I do mine first, and then, tell him it's his turn. He doesn't like it much, but he puts up with it. The hair though, that's a BIG hurdle. WEird thing is, he LOVES the tub. Go figure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > >>he also would never be caught with food anywhere on his person or > clothing - he's way too obsessive compulsive for that. if he notices that > he has food, dirt etc on his shirt or whatever he immediately changes into > a clean one! << > > That's Boone. Not even a drop of water can be on his clothes. He does not > get dirty. > > He lives for the hot tub but won't take a bath. It has to be a shower. > > Sissi Noah too, he changes immediately and it he can't i usually have to turn his shirt backwards so he can't see he's dropped on himself. Amy mom to Noah 6 Lucas 8 ASD's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > OH MAN!!!!!!! Are you telling me that Matt's tantrums are going > to get WORSE > before they get better?? He's almost 3 but at about 18-24 months > developmentally, except for language, which is at about 14 months. It's possible but not by any means definite. Mikey has had horrible tantrums since he was about 9 months old. If you touched him or even looked at him they escalated or started over. Here I am trying to be this loving giving supportive mother, and when my child seems to need me the most, I only make things worse for him! At one point they were lasting 3 hours and he was self-abusing. 30-45 minute tantrums are still common but most of the time we just take them in stride. I think Mikey is kind of an extreme example with this, though. Yes, autistic kids are known for having severe tantrums and it may become more of a problem for you, but it may also be that this isn't a huge issue for your Matt. Mikey has severe to profound sensory integration issues and these cause him lots of anxiety, hence the severity of his tantrums. Matt may not be as severely affected in this way. He may have better coping or self-soothing skills (Mikey was never able to self-sooth as an infant) and he may have better communication skills (not the same as language! . Those would be big positives for him. Wow, I used " hence " in a sentence. -Sara. running on 4 hours of sleep, sorry if this doens't make a lot of sense!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > Gawd, am I the ONLY one with a slob??????????? Jacquie < hahahahahahaha, nope :-P " Something important to remember...we'll always be who we are. " - Mr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > OH MAN!!!!!!! Are you telling me that Matt's tantrums are going to get WORSE > before they get better?? He's almost 3 but at about 18-24 months > developmentally, except for language, which is at about 14 months. > > ellen Dont' get your undies in a twist, you guys! popular literature says that autism usually takes a turn for the better around 4. That doesn't necessarily mean the behaviours that are driving you nuts right now will escalate until 4! Maybe they will, maybe they won't. You just have to wait and see. never even had a tantrum. Crying jags, but no tantrums. And around 4, they started to peter off. Don't go looking for things to worry about, ladies -- life has given you quite enough for the moment. :-) Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Gawd, am I the ONLY one with a slob??????????? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > > Gawd, am I the ONLY one with a slob??????????? > Well...I got one here who is both a compulsive bath taker (like 6 a day) and a " oh...is that 12 inch swath of peanut butter on my tummy BOTHERING you? " And in a perfect " " world, hairwashing would NEVER happen... Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 > Gawd, am I the ONLY one with a slob??????????? No. -Sara. Quote Link to comment Share on other sites More sharing options...
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