Rosemary - the new kid on the block..

[Guest guest]

Hi Guys!

My daughter is 10 - w/CF diagnosed when she was 6 - she was tested

at 1 w/ a sweat test and it was NEGATIVE so please note that the sweat test

is not always accurate. I found out about when I was 7 months

pregnant w/ with my third! I have 2 boys , 7, we think he has ADD and

Dylan 3. They all do the vest twice a day for a half hour - I love the vest.

Prior to having the vest we did CPT's - that was hell. My 10 now

says " you don't know what its like having CF and having to ... " she is

driving us nuts. One inhalation treatment can take an hour between coughing,

spitting up sputum and just plain fighting me. I feel like the wicked

stepmother in Cinderella!! The boys are easier (so far).

We put the vest on a luggage carrier (wheels) and move it from room to

room. Ihave 2 of them. i have Aetna Insur. and love it.

I live in New York and have a great sense of humor. So does my husband

- he married me! We are married 14 years (some happy some ok).

I guess that all I can think of to say about me. My favorite expression

is " Sit on it " and " Breathe " . Words to live by are " They present different " .

Take care, Rosemary

[Guest guest]

Rosemary - Welcome to the list. I have two children 6 w/CF dx at age

3 and a half. 3 no/CF. We live in Springville, NY where in NY are you

from?

Kathy G.