My Untreatable Pain

[Guest guest]

Being new here I want to thank everyone for responding to my question of how do

we go on!

My pain condition is probably unique to this forum but not to thousands of other

people. I had severe reactions to small doses and short term use of medications

that left my central nervous system damaged.

21 years ago I had tremendous life stresses and was given a benzodiazepine

tranquilizer by my doctor over days it began to do the opposite of what was

intended and by 4 weeks I was a total nervous wreck. I tapered off over months

but was only on a tiny dose to begin with.

I was at my worst for 3 years but did gradually recover and return to work as a

Medical Psychologist. It soon became evident that I was not truly healed, still

had many neurological symptoms and could not handle any stress so I went on

disability.

Over the years I tried to protect my damaged nervous system from stress but in

spite of it I had many severe return to the worst symptoms - some episodes

lasting months and some years.

Some symptoms were extreme reaction to any stimulation - even watching a comedy

TV show or having visiting relatives. Parasthesias (burning, stinging and

prickling all over my body) shaking violently, internal jittering, terror and

panic, muscle pain and weakness, agatation, and so much more. During a return

they were so severe I wanted to take my life every second - only my love for my

wonderful, supportive wife kept me in the game.

In 2007 I became fatigued from dealing with a very sick mother and life in

general - it all came back and now almost 4 years later it has not let up at

all. Five months ago when I was going 2 to 4 days in a row without sleep I

suspended my better judgment and took an antidepressant for two days. It put me

into the worse hell of these past 21 years and at 5 month it is not getting any

better.

I have consulted with experts in every major teaching medical center and experts

in 5 other countries. All say absolutely no more drugs and have no idea how to

help me.....so I work on my diet, meditation, spirituality, light exercise and

so on. I see no improvement and little hope...but I keep searching.

I am now working on the brain healing potential of Omega 3 EPA/DHA and how it

must come from food as all fish oil is a methyl ester and not what our bodies do

well with..perhaps a dead end but I hope by supporting my body in every way

possible (naturally) I give it a CHANCE to recover.

I know that hope and our minds can go a long ways towards pain relief and

recovery. I am here to learn from the veterans how to be " Hopefully " oriented

when all seems endless suffering.

Namaste'

[Guest guest]

Dear :

 

I know this is a little outside of the box, but maybe you should

try acupuncture.  Of course, make sure that it's a reputable provider.  I have

heard of many people having wonderful success

with it when they were unable to take medications.  Since you've exhausted the

medical options you might have better luck with holistic and alternative

treatments.  There are many people that swear by naturopathic medicine.  At this

stage of the game, it's worth looking into. 

Keep hanging in there...

- PA

 

My pain condition is probably unique to this forum but not to thousands of other

people. I had severe reactions to small doses

and short term use of medications that left my central nervous

system damaged.

[Guest guest]

, now I understand. I knew a woman on another forum who had the same

reactions to certain stimuli. Being touched, certain noises, lights, even a

gust of wind could paralyze her and cause extreme pain and other symptoms. I

forget what brought this on.

I have chemical sensitivities, not able to deal with certain lights, spaces,

sounds, temperatures and the such which limits or makes life experiences less

than nice to downright miserable. Migraine is a typical reaction as well as

panic, inability to respond to people and fear. Not as bad as what you are

living with but it's all related to the nervous system and the immune system.

I know repairing, soothing or altering my systems to more normal is hard to do.

I've had several surgeries to remove organs, a kidney, all my female organs,

gallbladder, thyroid and thymus. I'll never be healed, actually now I'm just

going to be lucky to live out my years. I'm 55 now and ever since I was young I

felt that I might not live past 55. Strange I know, but I also felt that my

thyroid, my left kidney and my female organs were doomed. I was in my teens

when I began to feel this way.

Surely alternative medicine is the only way for you to go.

Recently I was found to be vit D deficient so I had to take mega doses. I'm

going to get blood work done soon and we'll see if that helped. I'm taking 2000

units of Vit D3 a day along with 1200 mg of calcium with all the necessary

minerals to make it work.

I think western medicine is just now beginning to appreciate ancient medicine.

Jennette

> wrote:

>My pain condition is probably unique to this forum but not to thousands of

other people. I had severe reactions to small doses and short term use of

medications that left my central nervous system damaged.