Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Hi, I am new to the group thanks for letting me join. I have ehlers Danlos Syndrome with chronic pain. I'm 18. Where's everyone from I'm in Lincolnshire. Ellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Hi Ellie in Lincolnshire! Welcome to the group! I'm sorry you live in pain, and at 18 years old. I'm sorry we have to meet this way, but I'm very glad to meet you! :-) My name is Becky. I live in Alamogordo, New Mexico. I have lived around the United States as well as in Portugal and have visited Spain as well as England a few times. I also lived in chronic pain when I was young. It certainly is not very fun living in pain and at a young age, I felt like an outcast when I was 18 years old. I still feel that way, but not as bad as I did. I have RSDS/CRPS head to toe, Occipital Neuropathy, Chondromalacia Patellae with Bilateral Patellafemoral Syndrome as well as some other things. I do work part time as a people greeter at a retail chain here. I get to sit at a little table (when I'm able to go into work lol) and not just say hi to regular customers and friends, but also get to meet people. All of which somewhat help with depression I live with. I'm grateful for my employer for them being willing to work with my health conditions. My job, although can be straining on me physically, somewhat helps me mentally for which I'm grateful. Anyway, I have 2 cats and 2 dogs and currently live my boyfriend. He gets pretty mad about my health conditions especially when I'm in horrible pain and am unable to do anything, but does handle them a little sometimes. He knew about it all long before we became a couple and says he becomes angry about it because he can't fix it or help me get out of pain. It is taxing on family and friends, but they accept it sometimes lol. Anyway, enough about me! Welcome to the group, Ellie! It's nice to meet you! Gentle hugs :-)! Love, Becky in NM Ellie wrote: I am new to the group thanks for letting me join. I have ehlers Danlos Syndrome with chronic pain. I'm 18. Where's everyone from I'm in Lincolnshire. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Becky, Sorry. I asked about where you are from before I read this post! Alamogordo, huh? Been trhere many times and love the town! Have some green chili enchiladas for me. I'm working out of the country at the moment and sure do miss the Hatch chilies!! I wish you the best..... Hi Ellie in Lincolnshire! Welcome to the group! I'm sorry you live in pain, and at 18 years old. I'm sorry we have to meet this way, but I'm very glad to meet you! :-) My name is Becky. I live in Alamogordo, New Mexico. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 >Ellie wrote: > Hi, > > I am new to the group thanks for letting me join. I have Ehlers Danlos Syndrome with chronic pain. I'm 18. Where's everyone from I'm in Lincolnshire. Ellie, Welcome to the group and you will find the group members supportive and compassionate. What type of Ehlers Danlos Syndrome do you have and what are your symptoms do you have if you do not mind sharing ? I hope your pain levels are well controlled. Bennie in Texas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 I'm from Florida and living with chronic pain so I appreciate all the support.  Tree > Bennie wrote: > Welcome to the group and you will find the group members supportive and compassionate. Quote Link to comment Share on other sites More sharing options...
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