I'm still out here!

[Guest guest]

Hello all,

It's been such a long time, most of you won't know me. I've been a member for

years but was out of commission due to serious health issues. I just wanted to

pop in and say HELLO to everyone, especially the moderators whom have given me

so much support in that past. I'm hoping to become more active in the group.

I've just gotten back to work after 4 1/2 months off (because of failed

surgery).

I had a total hysterectomy (after years of painful endometreosis and hormone

problems)on Sept. 28th. It's been 6 months and I'm still having serious problems

because of a failed vaginal vault surgery. It messed up my ability to go to the

bathroom properly. Never had any problems like this before and boy is it

miserable. I won't give gory details but YUCK! Sometimes it presses on cyst in

lower back and that is really the most painful times, I just scream out in pain.

I've developed a rare form of arthritis that mimics OA but is more aggressive in

nature. My fingers, hips, elbows, ankles have been affected but mostly my

fingers right now, they have big nodules on them. We don't really have any

Rheumatologist around here and the one I saw said I am double jointed (never

heard that) and have severe joint instabilities, but I'd heard that when had to

have total shoulder replacement. There is a lot of speculation about whether a

rare skin disease I have is the cause (rarest form of mucha habberman

syndrome)as it has come back after being dormant for 20 years.

Other than that, just the usual stenosis back pain in Thoracic, nueropathy

(nerve pain) in both arms/toes and total exhaustion all the time. I was taking

Oxycontin ER but when they changed the formulation it was like poison to me and

it would come out the way it went in. Now on short-acting Oxycodone and am

always tired. The Oxy ER gave me the energy I needed to function. Just wondering

if anyone else had this problem with Oxycontin ER? I'm still not over it and the

change really wreaked havoc on my body as a whole.

Getting my hormones regulated hasn't been much fun. I'm getting there. Hope

everyone else is doing okay and I do think of you all often and pray for those

in pain every single day. Love to all!!!!