Re: Does Medicaid pay for helmet?

[Guest guest]

Hello Amber

You, and your sister are truely special people to take in an infant

like that, and to show as much consern as you do. Joy is in my

prayers, that she receives the care she should, and that her

conditions will get better over time. At her age, a band would not

last very long due to rapid growth at her age. Repo at this point

is really the way to go.

Good luck, and keep us updated. I sure hope that Joy can stay with

your sister longer. )

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

> Thanks so much for all the advice, we will begin the

repositioning right

> away BUT we are faced with another problem that limits our

repositioning

> tactics to some degree. This infant has a GI tube . That means

no tummy time (she

> screams bloody murder if you try to turn her over even of there is

a space

> beneath her for her button. Also her torticollis is pretty bad,

when you turn

> her head, her whole body moves but she is doing better and we now

have

> excercises from the doctor so we expect even more improvement.

She was born 4 lbs and

> now weights 7lbs 7 oz. Her name is Joy AND she is a joy. She has

been

> through so much-- at 2.5 months she has a punctured espohagus,

acid reflux, surgery

> for GI tube, a fractured leg, RSV and now pos. plag. and

torticollis.

> Here is our concern about postponing the banding. This infant

could go

> home in three months. If she does, I do not feel like she will

get the care

> she needs if the repositioning does not take care of the problem.

Her

> flattening is on the right side, forehead bulge, ear misaligned...

> Does anyone have any success stories of repositioning with no

tummy time.

> We will try to get photos posted tomorrow.

>

> Thanks to you all for your time and effort,

> Amber