Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 My daughter is fed per GT and I just open up capsules and dump in feeding bag and shake bag well and continue to shake it a little during infusion. The COQ 10 does clump together alittle otherwise. Good luck Janelle McGuire Burlington, Iowa Mom to 3.5 yrs with mito Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 1/26/00 7:10:46 PM Eastern Standard Time, kip3@... writes: << My question is can I mix this with the formula I put in her bag? I have heard horror stories about clogging the gtube. Anyone's help would be greatly appreciated. Thank you Patti, 20 months mito complex III deficiency etc. >> Patti - I should probably wait . . . there are already responses in my box to your post, but . . . CoQ10 dissolves in fats rather than water. It simply floats on water. It will cling to the sides of the extension tube if you try to simply flush it through. The best method we have found is to heat a little baby food or applesauce. Drop a gel cap in and let it dissolve in the hot baby food, or empty a capsule and swirl the babyfood until the powder has sort of binded to the food. THEN add whatever liquid is necessary to make it the right consistency to go through the tube. Occasionally, I still have some that clings to the tubing, but most of the dose goes in. CoQ10 also comes in a liquid form. Vitamin World sells it, and they have a web site. I would give you the link, but I lost all my links!!! However, you can find the site simply by plugging " Vitamin World " into a search engine. Good luck! Kathy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 1/26/00 7:10:46 PM Eastern Standard Time, kip3@... writes: << My question is can I mix this with the formula I put in her bag? I have heard horror stories about clogging the gtube. Anyone's help would be greatly appreciated. Thank you Patti, 20 months mito complex III deficiency etc. >> Patti - I should probably wait . . . there are already responses in my box to your post, but . . . CoQ10 dissolves in fats rather than water. It simply floats on water. It will cling to the sides of the extension tube if you try to simply flush it through. The best method we have found is to heat a little baby food or applesauce. Drop a gel cap in and let it dissolve in the hot baby food, or empty a capsule and swirl the babyfood until the powder has sort of binded to the food. THEN add whatever liquid is necessary to make it the right consistency to go through the tube. Occasionally, I still have some that clings to the tubing, but most of the dose goes in. CoQ10 also comes in a liquid form. Vitamin World sells it, and they have a web site. I would give you the link, but I lost all my links!!! However, you can find the site simply by plugging " Vitamin World " into a search engine. Good luck! Kathy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 In a message dated 1/26/00 9:44:41 PM Eastern Standard Time, jscb@... writes: << I'm not disagreeing, only presenting another option. ) >> No, problem here!!! I don't use regular applesauce . . . I use the baby food version. It is smoother. Maybe that is the difference. Haven't had a clog yet! Bananas are even better . . . the CoQ10 seems to bind with them easily. Rarely ever leaves any on the tubing. Thanks for the hint about mixing with hot water!!! Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi Pattie, I wouldn't advise putting the CoQ in a feeding bag. All it will do is stick to the sides. You're better off heating about an ounce of water in the micro for about 20 seconds then putting the powder in there. Stir and put in the tube. Follow that with some water or formula to be sure it all gets in. That's how I do all the kids' meds and it works fine. No clogs yet! ) If you're not particular about the brand you get (we use Vitaline at the docs request) why not get liquid CoQ? Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, g-tube -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Sue, Thank you so much! We have waited so long to be able to start on CoQ10, and then to get it not to know how to use it! I have heard of the liquid form, but (I can't remember where I heard this), that the liquid form was not as beneficial. My husband thinks our doctor told us this, but I think I will check with him again tomorrow. Thanks again Patti Re: CoEnzyme " how to " > > > Hi Pattie, > I wouldn't advise putting the CoQ in a feeding bag. All it will do is > stick to the sides. You're better off heating about an ounce of water in > the micro for about 20 seconds then putting the powder in there. Stir and > put in the tube. Follow that with some water or formula to be sure it all > gets in. That's how I do all the kids' meds and it works fine. No clogs > yet! ) If you're not particular about the brand you get (we use Vitaline > at the docs request) why not get liquid CoQ? > > Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV > Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, > g-tube > -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach > tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi Kathy, While I agree mixing it with some applesauce is ok, I found that worked worse for us. Talk about clogging the tube! ) I couldn't put enough Pediasure in it to make thin enough! ) If you mix the CoQ with warm water and put it in the tube while warm and follow with formula, that works better for us. I'm not disagreeing, only presenting another option. ) Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, g-tube -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 The capsule co q, that is powder is better mixed into some type of oil if your child can tolerate it. That keeps it from foaming and clogging as much. Good luck, Jeannine kip3 wrote: > > > We have just received our daughter's CoEnzyme Q10 and was wondering if > anyone could help me in how to give her this. The doctor wasn't sure > how to and the pharmacist wasn't sure how to do it with a gtube. They > are in capsule form, the kind that can be pulled apart, and they are > filled with powder. My question is can I mix this with the formula I > put in her bag? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 I'll add our experience to the co-Q10 discussion! We bolus feed Laney four ounces of Neocate One+ at each feeding. When it is time for Co-Q10 I empty the capsule into the formula, shake really well and pour it down the tube. I then add an ounce of water to the bottle and shake again and pour that down her tube. Then I follow with the rest of her plain water. I've had no trouble with it clinging to the bottle or the extension tube--and no clogs either! I have had trouble with Vit. E, but have found a liquid that works really well! Speaking of tube feedings, has anyone else gotten the new Mic-key extension tubes? I just started using our first one and I hate it. It unclips and opens really easily, and my favored lure lock feeding syringes don't stay in real well. Just venting , Mom to Adelaine and Baby ? (almost done cooking!) -- The s , , Adelaine and Baby? Ann Arbor, MI http://www.mich/com/~jaj Quote Link to comment Share on other sites More sharing options...
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