Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Could you explan more about corn starch please, what ketones.Thank I've learning so much the past few weeks. thank you from the bottomof my heart. Vange ketones > > > Ketones in the urine are an indication of either wasted energy or a fasting state. In the first > situation, you aren't metabolizing the sugar to get it into the parts of the cell where the energy is > needed and you end up with ketones and sugar in your urine. This is seen with diabetes, or high blood > sugar. > > Has anyone looked at his blood sugar levels or an A1C? Since diabetes is common with mito, you might want > to get that checked out. > > The second scenario is not that different, but the blood sugars are either normal or low. The metabolism > is either not working efficiently enough for the body to get the energy it needs, or the metabolic needs > aren't be met sufficiently, so the body starts to break down fat as a source of energy. The danger is > that many of the kids with mitochondrial disease, don't have much in the way of fat stores, and this can > be dangerous. > > Ketones with normal or low blood sugar can be an indication of specific enzyme deficiencies. Ours seems > to respond quite well to biotin. > > The presence of ketones in the urine, in an otherwise normally eating child is not a good thing unless > they are on the ketogenic diet. It usually indicates that the child is not getting enough nutrition, or > not handling the night time fast. It means they are running in a deficiet and will barely have enough > energy to go from meal to meal. We use cornstarch at night to help prevent this type of ketosis, along > with frequent snacks and meals. > > The water issue is only a bandaid. You can't spill ketones because you don't drink enough water. But if > you are already spilling ketones, and you aren't drinking enough water, then you will tend to spill more, > or it will appear more concentrated in the urine. Increased water intake helps to flush the ketones out, > but it does not cure the underlying reason that you are spilling ketones. It only masks that they are > there, and if you don't do something to correct the situation they will remain. > > As far as I know, unless you are on a ketogenic diet, it is not normal to have ketones in your urine, or > blood. It can happen after a GI upset or virus, when nutritional intake is poor and metabolic demands are > high. But even this will clear as the illness improves. > > If your child is spilling significant ketones on a regularly normal day, without additional stress of > illness, it needs to be evaluated. > > Mito is a disease of energy metabolism, and if you don't metabolize the food you eat into energy > efficiently enough, you aren't satisfying your metabolic needs. Your body then starts to break down fat > and then muscle in order to find energy. When this happens you spill ketones. So unless your child is on > the high fat keto diet, it is probably not a good thing. > > Jeannine > > Liz Dellureficio wrote: > > > > > Does anyone know what it means when > > 1 -ketones are found in urine? One doctor said it means Nika isn't > > getting enough calories, and another said it means she's not getting > > enough water. > > and > > > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2121/1/_/368657/_/952096901/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 DAVID BERNOW wrote: > Could you explan more about corn starch please, what ketones. Corn starch is a carbohydrate, or a sugar, although a complex one when eaten uncooked. What happens is that it takes longer for your body to break the sugar down, when eaten raw, or uncooked, and it acts as a slow release sugar supply, or energy supply during the night. It is supposed to last about 6 hours and be very slowly metabolized. It was originally used in people with glycogen storage disease, to help them get thru the night time fast. What happens to these people is that they are not able to store enough glycogen in their liver to help maintain their blood sugar thru the night, and the become very sick. Our defect can cause us not to tolerate the night time fast, for similar reasons. The corn starch supplies an energy source through the night and then in the morning, the blood sugar is more stable. You can buy this in the grocery store in a powdered form. You stir a couple of tablespoons into yogurt or pudding or anything else that your child will eat. Give it at bedtime and it helps them to wake up in better shape sugar wise. Many metabolic doctors recommend this for people with metabolic disease. What happens to many people with mitochondrial disease is that when they stop eating at night and go to bed, they aren't able to maintain their blood sugar and source of energy. They wake up tired and in an energy deficit because of this. Corn starch at bedtime can help mitigate these symptoms. Jeannine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 Thank you Jeannine, That explans alot. Vange( worte starch company and didn't know what I was talking about.) Re: ketones > > > DAVID BERNOW wrote: > > > Could you explan more about corn starch please, what ketones. > > Corn starch is a carbohydrate, or a sugar, although a complex one when eaten uncooked. What happens is > that it takes longer for your body to break the sugar down, when eaten raw, or uncooked, and it acts as a > slow release sugar supply, or energy supply during the night. It is supposed to last about 6 hours and be > very slowly metabolized. > > It was originally used in people with glycogen storage disease, to help them get thru the night time > fast. What happens to these people is that they are not able to store enough glycogen in their liver to > help maintain their blood sugar thru the night, and the become very sick. Our defect can cause us not to > tolerate the night time fast, for similar reasons. The corn starch supplies an energy source through the > night and then in the morning, the blood sugar is more stable. > > You can buy this in the grocery store in a powdered form. You stir a couple of tablespoons into yogurt or > pudding or anything else that your child will eat. Give it at bedtime and it helps them to wake up in > better shape sugar wise. Many metabolic doctors recommend this for people with metabolic disease. > > What happens to many people with mitochondrial disease is that when they stop eating at night and go to > bed, they aren't able to maintain their blood sugar and source of energy. They wake up tired and in an > energy deficit because of this. Corn starch at bedtime can help mitigate these symptoms. > > Jeannine > > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click./1/975/1/_/368657/_/952374114/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > > Quote Link to comment Share on other sites More sharing options...
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