Guest guest Posted July 17, 2011 Report Share Posted July 17, 2011 da_scuba_lady wrote: > > Much of my frustration stems from all the wonder drugs I took and now have complications, and the drugs I take to counteract side effect of other drugs, which leads me to Bennie post about steroidal injections. > > When I 1st injured myself, the pain management doc, did the epidural, trigger point injection and every other injection he could think of since I responded well, and yes Lyndi, there's LOTS of money to be made. The problem is he got greedy and instead of stopping at 3, he started doing the injections in his office. I received 3 injections a month, instead of 3. > > I swelled up like a bowling bowl and ended up needing a biopsy due to my toxicity levels. I was told no more steroids ever. So like everything, too much of a good thing. > > My current pm doc tells me my only options are opioids, nerve blockers, pt and surgery. Unless there are other options that I don't know about? I hoping others will respond who had success --- there's got to be something else out there that helps. Desert Fire, We are a great group and each of us have our soap box issue and with Kaylene (Goodness Kaylene, forgive me if it is not you) and I, Epidural and spinal injections are the demons of hell and I have been brought to the brinks after I said " No More " and several long time members reminded me, Bennie, remember you said No and No means No. Many anesthesiologists that have opened pain management clinics will NOT ( capitalized for emphasis)give you pain medications if you do not do injections also and they tell you this BEFORE examining you. This is why I got so upset when I first met eh (I think it was you , boy, am I forgetting things) cancel that Doctors appointment you are having to wait so long for and you have only two tablets of pain medication as they had told her they were intervention pain specialists and only did spinal injections but then would evaluate her and send her to the pain management doctor that will give her medications. I could just see her being in pain for three weeks, they give her injection, in which, they always hurt more before they hurt less (read the side effects) if they do help you, and then she would be having to wait another three or four weeks to get to a comprehensive pain management doctor that evaluates each person individually and if they only need medication, they move up the WHO (World Health Organization) hierarchy of medication,but most use multi-modal non invasive procedures: medicine, oral, topical, patch, iv, buccual, compounded etc., physical therapy if indicated and the type specific to diagnosis, counseling (helpful type-one time to whatever needed), muscle relaxant, anti-depressants, neural type meds (Lyrica, Neuration, Topoax etc), anti anxiety to anti anxiety the pain (not necessarily because were nuts), sleeping medication (body needs restorative sleep), Provigel, Nuvigil, stimulants (off set sedation or sleep disorders that come with sleep, alternative therapy (aquatic therapy, hot tubs etc), acupuncture, biofeedback, and other things to assist pain medication patients. I have been lucky that my comprehensive pain doctor that certified me as having intractable pain did most of these things except I don't want him giving me my breast or vaginal exams but he did require a pain journal and functional assessment so he could asses my progress and know my triggers. I validate what you are saying but two heads are better than one and I have had one of my other doctors that it was not his specialty on a " big frigging kidney cyst " that was causing nerve compression on my spinal cord : P The drug interactions should be monitored by all but most of all by your pharmacist and yourself as you both know what prescriptions you are getting and their software program is supposed to red flag those and we used to have this program at the hospital and do not care to share with you the number of sentential events (deaths or loss of function) that still happen with these programs are in place, the pharmacy annotates, and patients are given them and die. Whoops another soapbox coming on ! It is your responsibility to read your medical insert that list these contraindications that are known, consent forms that list spinal injection medication are neurotoxins and the FDA does not approve its use for them, and if you pass up the consultation offered by the pharmacist and something happens, your legal recourse is less. My pharmacist is still researching the section on my morphine that states if you have thyroid problems it effects it and I want to know pharmacologicaly why. Its been a week. Go figure. Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 Lol, yes, Bennie, it was me!! And I took your advice and got referred to a pain management doctor who DOES use oral meds, because I do not want injections because they are, as you said, neurotoxins and destroy the joints. I have a degenerative joint (collagen, actually) condition already, and I do not want my joints becoming bone-on-bone by the time I am only 30 years old!! So I got in to see the oral med management doctor instead of the pain clinic where they do injections. Unfortunately, my appointment with the pain management doctor is not until mid-October, but at least I have an appointment to see him. And thank goodness my new GP is willing to give me oral pain meds (only a low dose of Lortabs, but still pain meds) until I get in to see the neurologist who will prescribe me oral pain meds. My GP also referred me to a DO, a Doctor of Osteopathy. I had my first appointment with her on Friday (three days ago), and it went okay. I think it will work out better than it did with my chiropractor, who I stopped seeing because the treatment was not helping. In fact, some of the treatment (the electrical stim) was making my pain (including my headaches) WORSE, not better. And when I stopped seeing the chiropractor, my headaches practically went away. Obviously something he was doing wasn't working the way it was supposed to. So, I switched to a DO, who also do manipulations. I am waiting to see positive results; I only had my first appointment on Friday. Anyway, that's what I am/have been doing for treatment lately. I am so grateful for your advice, Bennie, and for your info about the WHO pain ladder. Thanks so much!! e.h. > Bennie wrote: > This is why I got so upset when I first met eh (I think it was you , boy, am I forgetting things) cancel that Doctors appointment you are having to wait so long for and you have only two tablets of pain medication as they had told her they were intervention pain specialists and only did spinal injections but then would evaluate her and send her to the pain management doctor that will give her medications. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 I am down today, I cannot sleep for any reasonable amount for it hurts my back way too much, when I am able to sleep, it is not a restful type of sleep, you know? My pain meds cause me to have nightmares, however, it's the only one among what my insurance pays for that really helps. I know each and every day i awake up there will be that silent monster, pain waiting for me and every night my head lays on my pillow so does the monster of pain and now it is infecting my dream world. Today i feel overwhelmed by all of it. Thanks for listening, Desert Fire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2011 Report Share Posted July 21, 2011 If you know of a medication that insurance doesn't cover, but you know helps more, please get with your doctor and start working with the insurance company to have this medication covered. It's not written in stone, they do make exceptions once you've exhausted the listed covered pain medications. I wish there was a way to turn off your dreams right now. I rarely, almost never, remember a dream and it's been that way all my life. Strange. There have been medications that caused disturbing dreams though. If you don't mind, what pain meds are you taking? Maybe someone here that is a nurse or has extensive knowledge can offer some insight. I believe there are better days coming. Jennette >Desert Fire wrote: >I am down today, I cannot sleep for any reasonable amount for it hurts my back way too much, when I am able to sleep, it is not a restful type of sleep, you know? My pain meds cause me to have nightmares, however, it's the only one among what my insurance pays for that really helps. I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2011 Report Share Posted July 22, 2011 I remember so many dreams that I have a dream journal. However, dreams are how we work through our issues that we go through, right? It does help them to go away when I write them down. I have like five journals. One is dreams, one is the visions I see through psychometry and other kinds, my empath journal and my general journal and my healing formula journal with recipes of herbs, aromatherapy, (only one I do not share, the others I share in order to help the greater good). The pain cream I do not share how to create it, for if I did I would not make anything. Also, I share my crystal therapies, magnet therapies, as well as energy healing and/or earth natural magic things like this. Right now, i am struggling to keep my head above water, even I have my depression moments. Can we upload nice serene photos, share poetry that might help how to deal with pain? I do not want to break any rule to this group. --------- Moderator Note: Text (poems, notes, short stories) and pictures can be uploaded into the group's file section. They cannot be shared in email. Quote Link to comment Share on other sites More sharing options...
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