Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Hi Becky, Every afternoon I lay down and prop my foot up on a chair while listening to an audio book. Sometimes I'll even drift off for a little nap. I was very fortunate in that I was diagnosed quickly after the second surgery and began PT soon after. Unfortunately, PT couldn't really do anything for me. My PT was very knowledgeable about RSD and we worked together for a couple of months before realizing that we wouldn't make progress because of the deformity on top of the RSD. My PT had worked with someone with RSD in her foot who went into remission and was back to jogging and running on the treadmill!! What a great success story. However, my PT said that he'd never seen anyone with RSD who was as bad off as me. So, I do regular exercises every single day for 30 minutes while laying on the floor and this helps me keep some flexibility and ROM which is very important. With RSD it's important to use the affected limb as you're able without overdoing it. It saddens me whenever I hear of someone who has full body RSD. That must be very difficult. It sounds like you've found ways to manage the pain with meds and through meditation and breathing. In my experience, anyone with chronic pain must also manage stress in their lives as you've mentioned. How long have you had RSD? You sound like someone who has long come to terms with your chronic pain and knows how to keep positive influences in your life. That's so awesome. Hugs, Carol Becky in NM wrote: When my RSD first began, long before I knew what was going on and causing pain in my lower neck/upper back, it spread to my left pinkie. It spread to the rest of my body from there over a short time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Can someone explain what RSD is and the symptoms? Carolyn Eddy " Sweet Goat Mama " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 --- Carolyn wrote: > Can someone explain what RSD is and the symptoms? > > Carolyn - If you google it, you'll find tons of information. Here's a good starting place: www.rsds.org Cheryl in AZ Moderator Quote Link to comment Share on other sites More sharing options...
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