Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Personally I do not think a lot about the future. I live pretty much in the moment and that's because I never know just how I'm going to feel. I could make plans but there's a chance I'd have to cancel them due to pain or some other symptom. I quit trying to " be normal " like everyone thinks of normal. My normal is different and I accept that. I still enjoy life and I will " tough it out " on special occasions. That's my sacrifice to have that memory and be involved with family. The whole process of grieving for the losses, even those that illness and chronic pain has taken away, takes time. Just don't get stuck at some point where you don't get through it and accept it so you can move on. Change is normal, everyone must accept change and adapt in one way or another. Fair or not, good or bad, change is stress. We just don't handle it like we should as adults due to the learned behaviors while being a child suffering extreme stress and or abuse. I love the small things in life and because there are so many more small things/events/sights etc. there's more to love. Depression can hinder the process of grieving, so address the depression at the same time as you try to control the pain. Jennette >R wrote: >I would really appreciate your thoughts on this: >So here it the grand question: are you able to hope tomorrow will be better or that healing is coming in spite of chronic pain. Are you able to think good positive thoughts in spite of all past evidence, medical diagnoses and current experience. I am not being successful – I want to be ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 R, I know that tomorrow will not be better for me in terms of my pain, because I have a progressive condition that runs in my family. It is a collagen-binding gene mutation disease, and I think that the one I have is Ehlers-Danlos Syndrome. I suffer from moderate pain right now, and I am only 26 years old. The other day, my aunt, who also has the condition, teased me by saying " Just wait until you're 40 " , which really upset me. I already know that when I am 40, I will be in severe, possibly disabling, pain. I guess, though, to answer your question, no, I am not able to hope tomorrow will be better or that healing will come in spite of chronic pain. However, I *am* able to think good, positive thoughts in spite of everything you mentioned--just not in terms of my pain. I am mostly happy and positive, but that is because I have fulfilling activities in my life (and it is also because I am on medication which effectively treats my mental illness--*knock on wood*). I hope that this answers your question, and helps somewhat. e.h. >R wrote: > So here it the grand question: are you able to hope tomorrow will be better > or that healing is coming in spite of chronic pain. Are you able to think > good positive thoughts in spite of all past evidence, medical diagnoses and > current experience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 E. Hyland wrote: > > > I guess, though, to answer your question, no, I am not able to hope tomorrow > will be better or that healing will come in spite of chronic pain. However, > I *am* able to think good, positive thoughts in spite of everything you > mentioned--just not in terms of my pain. I am mostly happy and positive, but > that is because I have fulfilling activities in my life (and it is also > because I am on medication which effectively treats my mental > illness--*knock on wood*). > > I hope that this answers your question, and helps somewhat. > , I admire you for it and everyone that does also. When I see my Doctor, she says " How do you do it? " My answer is " My family " . It is called a " survivorship " mentality and you have to endorse it to endure. Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 Bennie, I can relate. In my lineage are s and I always ask people why they think there are so many of us? We live my two mantras: No such thing as* can't* for a and* s only get up; we never stay down. * If I think different, I worry my great-grandma, Henrietta will jump out of the grave too, ck my butt! She went thru it all--covered wagons, Indians, the Civil War and race riots. She lived to be 101. Never met her, but she is my hero. My other side is Cajun. Any culture that can pull a crayfish out of a ditch and learn how to spice it up enough to live on it, are true survivors. I don't need an economy, or kind words. I have ancestors who figured it out without the internet and SURVIVED. I have a great-aunt who was a test subject for penicillin. Can you imagine? And they never complained. That's what I need to master. Ellen > Bennie wrote: > When I see my Doctor, she says " How do you do it? " My answer is " My family " . It is called a " survivorship " mentality and you have to endorse it to endure. Quote Link to comment Share on other sites More sharing options...
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