, please help!!!!!!!!!

[Guest guest]

Hello Everyone,

Ok, now we have a new problem, was admitted to the hospital with MRSA

culturing in her blood. She has been sick with a high fever since Sunday,

and after 3 visits to the ER I finally had to ask for her to be admitted

because she wasnt drinking or going to the bathroom. Has anyone ever had a

child wocf culture MRSA?

Another problem is that now Chris's family thinks that they will be infected

if they come in contact with my kids, doesnt matter that the doc said that it

is very rare for a healthy child to get as sick as Emmy did from the MRSA.

I feel like they have put my kids, and Emmy, into some kind of leper

colony for MRSA culturing kids. Very depressing!!!!!!

Can someone please offer some words of wisdom, like they are just ignorant or

something that would make is a little more bearable that they have decided

that my kids shouldnt be around theirs????????

Don't really know what more I can do or say to any of them.

Thanks for listening.

, mommy of 4, , 15 with a much older mind, Caleb, 6 and a

kindergarten pro, finally, , 4 1/2 and the next famous artist, and

, 15months with CF and reflux and a beautiful smile and bright blue eyes

[Guest guest]

Well, being a very cautious mother, let me put it to you, are you absolutely

sure that

she could not have undiagnosed cf? And yes, occasionally children with no

known serious chronic disease do get MRSA, but I would, were this my child,

want to have

testing done again--thoroughly--just in case, and I really do hope that this

will not

offend you. After all, I don't know. I'm " just the patient, " and " just the

parent, " but

havinjg reared three kids to their early. middle and late thirties--I think

we may all be

maturing now, Mom, too (am widowed, not CF) and caution is how I kept the kids

going, my husband alive as long as possible (age 57), the kids' psyches

together,

and me alive at an age I never really thought I would reach--and beyond. I

hope that

she does not have cf, and that this bacterium goes away--far away. I think

other

parents of CF childred will relax when they know it's really gone, and in the

mean-

while, caution may be needed, on the part of all. Gosh, I do carry on!

n Rojas wcf, mom of 3, 1 wcf who has not yet dealt with MRSA!

[Guest guest]

Good points made by n. I wanted to add here that when my mom was

battling necrotizing fasciitis this past summer, she caught pseudomonas from

her ventilator and kept growing it for a while after being taken off. But

then, she was very, very ill.

So I suppose that one could from time to time have a CF bug and not have CF.

Becky Whicker

beckerbuns@... or letscurecf@...

mom of Ricky (11/26/95) with CF and Andy (3/18/98) no CF

Shop the web and raise money for CFRI!

http://www.geocities.com/beckerbuns/store.html

[Guest guest]

Hi n,

Thank you for your advice. had a sweat test done when was

diagnosed, it was negative, geez, didnt even think it could be possible that

she may have cf, have to call the cf center to let them know anyway,

was sent home on Bactrim, so hopefully that covers him, but I have to ask to

have tested further.

And just when I thought everything was getting back to normal, haha, I have

done everything I thought to keep the kids safe from MRSA, but apparently I

havent done enough, will have to think of everything I can to make sure that

things stay healthy.

I enjoy reading your responses to others, nothing beats experience.

Thanks again,

, mommy of 4, , 15 with a much older mind, Caleb, 6 and a

kindergarten pro, finally, , 4 1/2 and the next famous artist, and

, 15months with CF and reflux and a beautiful smile and bright blue eyes