Re: Mito - fibro- autism - yeast

[Guest guest]

Kathy , My son Matty is a lot like your daughter. He is a Leigh's diagnosis with very few medical complications right now. I would appreciate it if you would email me so we could chat..I would like to pick your brain and just chat..

Thanks,

Mito - fibro- autism - yeast

There have certainly been some good issues raised in the last couple of weeks, and I want to be one to thank you all for raising them. My daughter is one who is medically strong, and very different from most kids who are diagnosed with Leigh's at least. That doesn't mean she doesn't have a mito disorder, just that it is different than some of the others. I think we all tend to fall into some general categories though.

1> Those who have significant functional impact from illness or stress - either emotional stress or physical stress; these are folks who get weak, or " mito brain " or difficulty walking, or longer illness with loss of energy etc. I wonder how much thyroid related impact there is here.

2> Those who react to stress with immune (or autoimmune) related problems like yeast infections, fevers or irregular temps, sugar level difficulties etc.

I'm sure you can all categorize us into groups like that, but a couple of things that seem to keep coming up are the thyroid problems, hypo-hyper glycemia problems (diabetes precursors?), and so on. I wonder often how many out there with other diagnoses are people with mito dysfunction or vice versa? Do our doctors label us with something and then attribute everything to that? My mother had lupus and everything was that, my daughter has mito and everything is that, my grandmother had polio so her troubles are from post-polio syndrome, and mine was thyroid related!! The fact is, all of us complain of the very same symptoms, all have been suspected of having diabetes and despite repeated tests, none have had it but my mom died of complications from it!

I appreciate the link to health awareness since there is alot of good information there about thyroid disfunction, which applies to me. I take Synthroid (and have for years) and I'm interested in how differently T3 works. Meanwhile, we should all recognize that we are still a very diverse group of people and no one thing will be a magic bullet for any of us, and anything so significant should be thoroughly researched. At least much of that research has been done and is centrally located!

Kathyª¿ª

Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease.

[Guest guest]

kathy,

Excellent points, allthe way around! I too have often wondered how much

cross over there is from one field of illnesses to another....we have such a

delicate biochemicl make up that it's easy for me to believe the idea that

MANY MANY diseases or illnesses stem from some type of cellular level

dysfunction....<SIGH>....are we EVER going to sovle these puzzles????? Seems

like the more questions I ask the more questions I find!!

ruth