Re: My introduction/Jeanne B

[Guest guest]

>Jeanne B in GA wrote:

>I just joined and I've enjoyed reading past posts from the group.  My

body has fibromyalgia, osteo-arthritis, rheumatoid arthritis and

Crohn's disease. I'm not going to mention the rest because they are

just too boring and mostly gut problems anyway.

>I'm also visually impaired and my cats knocked the monitor off the

desk last month and about a sixth of the screen has nothing but

intersecting lines on it so often can't see everything I type.

>Currently I'm in a flare-up of the Crohn's and my doctors don't feel

that treating pain is their problem, so I've been waiting several

weeks to get in to see the pain doctor. Because of this, I do a lot of

sitting in my computer chair, hugging my heating pad while hunched

over and praying " Oh God, Oh God, Oh God please " because that is

pretty much all I can think of when the pain is like this.

>When allowed outside I am a rabid gardener. My specialty is heirloom

vegetable gardening. I usually plant an acre of vegetables every year,

three crops a year, and this will feed my husband and me for the year.

Unfortunately this year my heart decided enough was enough and the

flare-up of Crohn's hit me, so my beautiful garden is out there

neglected.

Hi Jeanne B

Welcome to the group, I am so sorry that you need us, but a group

like this can be a life saver. It certainly has been for me.

I had a friend who lives with Crohn's disease, she finally had

an ileostmy, and was able to get on with her life. We were both

in our early 20's, this was back in the last 1970's, but we have

long since lost touch, so I don't know how the long term affects

have been.

Prior to her surgery spent many, many days lying on the bathroom

floor. She didn't have the strength to go back and forth between the

bedroom and the bathroom. 

Two of her siblings developed Crohn's not long after she did.

My heart ached for her.

Cat's are very fond of late night e-mailing. That's one good

thing about a lap top computer, I can keep it closed.

It's a shame you had to quit gardening. This sounds like

a good spot for a neighborhood garden. So many people have

no access, or cannot afford fresh vegetables.

Once again, welcome to the group. I'm so happy to hear

that you have a large loving family. It is always delightful

to know that two people can build a life together for 45 years.

My parents were married for 49 years before Dad passed

away in 1997.

Kaylene

Moderator

[Guest guest]

Thanks for the welcome Kaylene! I bit the bullet and tomorrow will go

to the pain management doctor. Hopefully my husband will actually come

with me, but I'm not betting on it. Since he just dumped me at the

hospital ER when I was having a heart attack I've lost a bit of

confidence in him as care-giver.

I can empathize with your friend . My Crohn's is the

jejunoileitis form so eventually I'll have to go to the pouch. Today

was spent in the bathroom with a lot of hugging the toilet so I went

ahead and used antiseptic wipes to clean what I could reach between

heaving.

I hate what my house looks like now.

Was able to get enough veggies out of the garden to make a large pot

of vegie soup today and some Red Bisbee cowpea seeds saved for the

future. Dratted tremors in my hands are so bad today I had to use

kitchen shears to snip the herbs and aromatics for the soup along with

the vegetables. I'll bite the bullet and take a neurontin later. I

despise that pill because it makes the brain fog so horribly bad it is

like instant Alzheimers then it makes the tremors evern worse as it

wears off so I wonder why I even take it to begin with.

A laugh for you. I was sitting here watching a movie on the computer

while shelling dry Red Bisbees to save for next garden. Since it was

time for my next pill " meal " , I put all the pills out in front of the

keyboard and started taking them.

Unfortunately the cowpeas are the same color as Asacol so I ended up

taking several cowpea seeds along with the pills! Laughing here. Is

that crazy or what? I stoppedpopping the seeds down after thinking " I

thought I had already taken the Asacol. "

Hoping everyone is dealing with the pain today and it is a good day.

I'm dreading this visit tomorrow but hoping that he isn't one of those

pain doctors who does the one procedure fits all epidural and trigger

point injections. Anyone comes near my abdomen with a needle is going

to see my backside as I run for the door.

Well, I'll hobble quickly. The last pain control doctor I went do was

crazy about doing epidurals (for guts?) but then he could get $2,500

for an epidural and just a couple hundred for writing scripts so I had

to wonder if that was more the reason for the epidurals.

I'm hoping son number 4 will be taking me to the pain management

doctor. He is one of us and lives with constant pain due to several

spiral spinal fractures. He has wanted to get on as a patient of this

particular pain management practice, so perhaps he can get in via his

old mother. He knows my meds, hospitalizations, surgeries and things

better than I do so he makes a good advocate for me.

The shaking is getting pretty bad so hitting the right keys is harder.

I'll be a good patient and go ahead and take that dratted gabapentin

(neurontin). Oh I hate this pill but hate the tremors even more. Maybe

I'll be able to feed myself some soup tonight and it might stay down

without making the gut pain worse.

Hope everyone does well tonight. Blessings, Jeanne B in GA