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How Do You Cope

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I have a unique pain condition. I was given a drug that I was allergic to and it

caused brain damage. This has resulted in body wide muscle pain, severe

insomnia, terror (worse than anxiety), lots of neurological symptoms, agitation

and so much more.

My muscles are so tight I am always injuring something.

The problem is that medications don't help and many have made it way worse, way

worse. My last doctor (after many) told me I was lost to the medical community

and to try to learn to live with it.

I do know what horrible physical pain is from a severe auto accident I was in

years ago - so I know where many here are at. At least with that I did not have

the mental torture.

This has been going on almost 5 years with no let up. I only sleep 2 to 4 hours

then the torture begins. It is so bad I cant leave the house except to walk.

Have not been to a store or anywhere for over 4 years. When I go out the

overstimulation to the brain makes me insane and the body pain worse.

I know how bad many of you are - how do you cope when it never ends and never

improves. I have a wonderful wife and I don't want to die but most days I do.

Thanks for reading

R

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