Re: /Questions about Fentanyl Pain Patches

[Guest guest]

The patches don't last me a full three days, so I told my doctor about my

pain increasing twelve hours before the scheduled change and doesn't subside

for another twelve hours. She changed my prescription to 48 hour dosing.

Doctors can prescribe whatever they want. Your doctor may have to write a

letter of medical necessity for your insurance to cover it. (48 hour dosing

is pretty common)

Most people don't realize that there pain is usually worse on their " patch

day " until they think about it.

I get 45 patches a month (3 patches changed every two days).

If you wear one patch at a time, you should get 15, instead of 10.

It can't hurt to ask.

Steve M in PA

[Guest guest]

Hi ,

Thanks for the reply.

I saw my doctor on Thursday and I told him what I was on wasn't working. Now I

am trying dilaudid, with no patches or oxycodone,so we will see how that works.

I will see him again in two weeks.

I am just tired of being in pain and not feeling good. It really stinks that we

are all in the situation we are in. Oh well!!!

Thanks, in CA

[Guest guest]

I know exactly what you mean about being " tired of being in pain and not feeling

good " . I always say I'm sick and tired of being sick and tired.

Steve M in PA, age 21

Married with 3 year old daughter

Duragesic 300mcg/hr (q48hr)

Actiq-600 (4/day)

OxyIR 30mg (6/day)

Grade II DIPG (Diffuse Intrinsic Pontine Glioma)

Fibromyalgia

Probable RSD

> wrote:

> I am just tired of being in pain and not feeling good. It really stinks that

we are all in the situation we are in.

[Guest guest]

Hi Steve and !

This is also definitely one of the things that I find frustrating about having a

chronic disorder: all of the pains that go along with that. I am tired of being

in pain and being sick alongside it. I work full-time and it's hard to go to

work every day when it seems every day I feel differently. I might be nauseous

one day, have a sore throat another, headache/migraine another. All because of

taking new and/or different medications or vitamins or not eating enough, or

drinking enough water, or the weather.

There just seem to be so many variables to how I might feel physically on a

given day, so say when I might take a sick day, it's almost like, what don't I

have. I do feel guilty about that with work, because I'm sure it seems like I

just had that type of ailment the other week. How can I have it again so soon,

etc. Or if I say threw up this morning and I have a sinus headache Well in the

normal world, those two things aren't connected, but for me they are. They

always expect a packaged answer like stomach bug, or the flu, or a cold.

Oy. So tired of being tired...

Crystal

> wrote:

> I know exactly what you mean about being " tired of being in pain and not

feeling good " . I always say I'm sick and tired of being sick and tired.

[Guest guest]

Hi Crystal

Trouble is, some people don't actually want to know either how you feel or what

is wrong. As you say, they expect a package answer. These days I just say either

I hurt too much or f*** off. Both work equally well depending to who you are

speaking. I also find that they drift away no matter what answer I give. There

again that may just be because I am a typical dour Scotsman. lol

They don't really understand and they can't. No matter how well meaning they

are, they simply cannot understand that at the back of our mind, is not just how

much it hurts today, what different kinds of pains we have today, but it is just

going to be the same tomorrow (but different probably). And the day after that,

and after that ad infinitum.

Bummer. Really didn't mean to come across so miserable!

Ken.

Crystal wrote:

There just seem to be so many variables to how I might feel physically on a

given day, so say when I might take a sick day, it's almost like, what don't I

have. I do feel guilty about that with work, because I'm sure it seems like I

just had that type of ailment the other week. How can I have it again so soon,

etc. Or if I say threw up this morning and I have a sinus headache. Well in the

normal world, those two things aren't connected, but for me they are. They

always expect a packaged answer like stomach bug, or the flu, or a cold.

[Guest guest]

Ken

Don't feel bad about coming across so miserable (you didn't even sound that

miserable, at least to me, but I am the king of misery, or maybe the supreme

emperor =) anyway, you get my point) I think that with everything we go

through, we deserve the right to sound or be miserable whenever we damn well

please.

Steve M in PA