Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 Hi, I was wondering where to buy this guide. 'the survivors guide to intractable pain' amazon uk brought up no results and general internet search didnt either. Love, Rach xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2011 Report Share Posted July 27, 2011 Rae wrote: > I was wondering where to buy this guide. 'the survivors guide to intractable pain' amazon uk brought up no results and general internet search didn't either. Hi , You don't need to buy it, as it is free on line. Just print it out. http://pain-topics.org/pdf/IntractablePainSurvival.pdf Lyndi Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2011 Report Share Posted July 28, 2011 Hi , > > You don't need to buy it, as it is free on line. Just print it out. > > http://pain-topics.org/pdf/IntractablePainSurvival.pdf > Oh! okay thanks :-) what a numpty I am :-) I'm so used to not getting anything for free ever, I presumed you had to buy it hahahahaha. Thanks very much will have a look now xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2011 Report Share Posted July 28, 2011 > Rae wrote: >> I was wondering where to buy this guide. 'the survivors guide to intractable pain' amazon uk brought up no results and general internet search didn't either. > Rae: > I found this as my previous pain doctor gave it to all his patients and Dr. Tenent was a co founder with the National Foundation for Pain paincare.org. Sadly, Dr. Hochman died last year and the world lost a Pain Psychiatrist, Researcher that would stand up for Pain Patients and the right to titer them to the amount of medication that they needed to get pain relief. He made you keep a pain dairy monthly (thus the reason I found out about them ) and functional assessments (to see what you could see what you could physically do) and answer some mental health questions. You can find these under clinical concepts on paintopics.org main page and it will prompt to a page with subjects and if you click on Disability and Pain Tools, it will list many,many, assessments tools for specific pain conditions which you could use for yourself, as fact sheets to take to your Doctor, or use for applying for disability/workman's comp etc as these are the same tools they use. There is a electronic Pain Dairy also. I also found about pain topics.org from him. American Pain Foundation has some of the same information support and on their home page if you click on Learn About Pain, then Publications, they have many of the same resources. Back to their home page also provides you with other subjects and they are know for their lobbying power for pain patients to Legislature and they have a sign up " Pain Community " Newsletter that you can sign up to, that allows you to know what is new. I like that they address the military and veteran community with separate sections as they have different injuries and support systems. American Pain Foundation has a Doctor Locator page and a " contact us " section and a " Are you in Crisis Section " that they want you to contact them so they can assist. So, for people that are seeking a new doctor, moving, or needing to know how to chose one, they have a section on this. So below are a few sections of paintopics.org I lke and what the sections has included in it: *****http://pain-topics.org/patient_resources/index.php :This section, has pain patient resources, The Intractable Pain Patient's Handbook for Survival " by Dr . Forest Tenent is here under " Chronic Pain and Intractable Pain " You can also go to an internet search engine and type in " The Intractable Pain Patient's Handbook for Survival " by Dr. Forest Tenent and it will pop up and then download it. *If I write it differently, it will still go through as Dr. Tennet has changed the title. There is also a new item there and it has a red box that says new and it is and electronic pain diary. ***** http://pain-topics.org/related_websites : This part of patientopics.org lists the hundreds of websites available for patients in pain to include specific websites of pain (example: fibromylagia, CPRS, brain injury patients, migraine to name a few and ones that I have never heard of). It lists many contacts for Alternate treatments to include imagery, spiritual, acupuncture and supplements. ***-http://pain-topics.org/clinical_concepts : This part of paintopics.org discusses and has fact sheets,articles, and reviews to teach you how to validate medical research and medical research articles: *** http://pain-topics.org/topics_ebriefings : This is a section, e-briefings that has brief sheets which are short read on common topics and things of interests. **** http://pain-topics.org/gallery.php: This a section which shows art exhibits of people in pain who have painted how they feel, there is actually an artist who painted canvas' that are labeled " But you look so normal " The art is moving and is a great reflection on pain and what pain patient experiences, For those educators and those of interest, they refer to a contact Exhibit.com where you can request this collection for your gallery, an organziatiion or facility.: *****http://pain-topics.org/clinical_concepts/#Assessment : On the tool bar on the home bar and it is under clinical concepts. This will prompt some subjects but click on Disability and Pain Tools. It will list a huge number of assessment tools, questioners, and charts that assess, to name a few, migraines, fibromylagia,back pain etc and this one is very important as some of this very assessment are ones they use by social security doctors,workman comps, and others that will assess if you are eligible for compensations such as disability but are important as a fact sheet and functional assessment of what you can physically do. http://www.istop.org is a website based out of Canada but good, for those in Canada and PainTopics.org does include international patients. http://www.painrelieffoundation.org.uk is a Pain Association of of UK This is a peer reviewed websites (many Doctors and health professionals were involved in establishing it and I would recommend it as the only one to read as it provides most eveyghing you need to know or the website you could go to find it about pain and pain management . Hope you enjoy reading and learn something that you can use to reduce your pain. I have given the website to my other doctor and have actually printed out and given them one copy so they have to read or least accept it from me and every time I give the Survival Guide (this is what I give them) they have said they learn a lot. Bennie Quote Link to comment Share on other sites More sharing options...
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