Guest guest Posted February 4, 2000 Report Share Posted February 4, 2000 To whom ever is concerned, My name is Patti Weaver, I am 31 years old, and the mother of 3 absolutely beautiful little girls. Last night I spent One of many nights in the hospital with one of my daughters. Two of my children have health problems. I have lived for 4 years thinking I must be imagining the health problems I was seeing in my second daughter. Or mabey I was looking to closely. then 20 months ago I gave birth to our 3rd daughter. From the moment she was born, I voiced my concern that something was not right. I was told " Oh Mrs. Weaver, shes just fine " . Thirteen hours after her birth she was blue up to her chest. It was hard to tell because she was so black and blue from delivery from head to toe, even a broken nose! Then I realized that she was not breathing, and I started to scream. Although the doctors that had seen my daughter up to this point felt she was just fine, she was now placed in NICU for the next 10 days. After many weeks here and there in the hospital, so numerous doctors appointments I lost track, a couple of surgeries, my daughter was diagnosed with a mitochondrial disease. This is not a rare disease. But it is " newly diagnosed " . For instance, many people died from cancer, before we " diagnosed " it and named it cancer. Just because we don't have a name for what is going on in a childs life, too many people jump to the conclusion that a parent is abusive. I am all for protecting all of our children, they deserve our protection. But when a parent has to second guess themselves, whether or not to contact a medical professional, because of media jumping to a conclusion, and finding that no one is taking them seriously, they may just give up and think it must be in their head. Now four years later, I find out that all of the concerns I had for my daughter were justified. Yes she does have a problem, do you think any of the doctors who thought it was in my imagination have come back to admit that it was not in my head.That, yes you were right Mrs. Weaver, your daughter is having seizures, yes, your daughter does have a very low immune system, no Mrs. Weaver we don't have all the answer, and now we are willing to admit it. Why don't you air a show on the real life of a family struggling to find the answers. Every day praying for the answers, and hoping the answers come before we lose one of our precious babies. I thank God that we had the sense to look else where instead of giving up. I have to say I am very disappointed in a show that I had enjoyed for so long. You will be missed. Patti Weaver just another mother who loves her children enough to fight for them Quote Link to comment Share on other sites More sharing options...
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