Re: How do you keep your mouth shut?

[Guest guest]

Hi Christy

I just wanted to add that just because someone doens't seem

immediately interested or receptive doesn't mean they won't hear

what you have said. I once told a mum at playgroup about Lucia and

she said her little boy had exactly that (which he did) but she was

very dismissive of what I told her (I didn't actually talk about

him, just about Lucia, repositioning and websites). She even told me

she wasn't worried as he was a boy. I felt completely stupid and

embarassed to have mentioned it. However, it must have hit home, as

I didn't see her for a few weeks (by which time I had convinced

myself she had actually left the playgroup after I insulted her

son), but she came in and told me she had been in touch with Dr

Blecher, my specialist. In the end she decided with him not to band

as it was moderate, and she repoed him very successfully from about

four and a half months onwards. The last I saw of him, his plagio

was almost unnoticeable- the repo worked great.

So- best to just plough on, put the info out there, and don't look

for thanks- most people would be defensive or upset hearing their

child has a problem. Someone told my friend that her six week old

baby had a genetic disorder at a barbeque. Now in the end she was

glad- she found out about it further and in the main it is

treatable. But she didn't thank them at the time! We are all

precious about our kids- you are doing the right thing by sharing

your story and pointing out to people that there is help out there.

Hannah (mum to Lucia, London, UK)

Cranio grad

> > >

> > > I am aware that it is inappropriate to offer unsolicited

advise

> to

> > > other mothers...but how do you keep your mouth shut when you

see

> a

> > > baby with pretty severe plagio with a clueless mother???!! I

> want

> > to

> > > scream and tell them about all I have been through and make

them

> go

> > > for an evaluation!!! This poor baby girl's whole head was

> shifting

> > > and misshappen. I will be seeing them again. How do I continue

> to

> > > keep my mouth shut and should I keep my mouth shut? The lady

has

> > > twins who are 4 months old and they could still get help. Any

> > advise

> > > on this matter would be greatly appreciated.

> > >

> > > Christy - mom to Kennedy (almost 9 months)

> > > Brachy/plagio/tort

> > > DOC band 11/23/04 to graduate 2/11/05

> > > Tulsa, OK

>

>

>

>

>

> For more plagio info