's Update

[Guest guest]

,

I'm glad the attack was not a big one and you were able to go shopping and

enjoy yourself a little. I'm quite curious as to whether the doctor who

calls these panic attacks gave you anything to take when you are having

these attacks.

I would panic too if I started feeling what you feel and couldn't get any

help. I still think you need to ask your PCP to call Dr Cohen.... even if

it means you pay for the call. Either that, or start searching for a PCP

who will do this for you. Also.. print the information from the links on

this site and take it to the doctor.

I found the hardest thing in all this was dealing with doctors who were so

sure they had the answers and I've seen a few myself. They are totally

unwilling to listen and certainly afraid that you might be trying to teach

them something. If they are not teachable, I'm not interested.

had an experience with a doctor who was only supposed to check her

hearing. The MDA recommended that she see this doctor so she went. He was

ready to diagnose her right there on the spot with excess spinal fluid that

needed to be drained from her spinal column. He doubted the results of the

muscle biopsy that clearly states the Mito. Instead..he said " If it walks

like a duck and looks like a duck, it's not a goose. " She left his office

crying but the MDA doctor was very apologetic and told her he would not ever

send her back to him.

Some doctors are just arrogant. You have to find the right ones. It's a

job, I know.

Alice

[Guest guest]

--Yes the dr. gave me Xanax which I use very sparingly. I've been

thinkjing about changing pcp, but then I would have to explaine my

whole story and insurance code for a new dr. Mostly I would have to

find a dr. willing to take me on. I'm going to do some research for a

good dr. on my plan.

There are some good drs. and many bad ones. It's a process of

elimination to weed out the bad ones. Sometimes I feel like slapping

a doctor upside his head and tell him stop acting like a know it all,

but then I remember I'm a christian and it's not nice so slap anyone

HEE! HEE!

I do have to say that my husband and my daughter called me at 10

oclock to see how I was and that helped too. I've been trying not to

complain these days and I've noticed they are asking about me.

Thanks for all the tips

- In @y..., Alice <cialicea@c...> wrote:

> ,

>

> I'm glad the attack was not a big one and you were able to go

shopping and

> enjoy yourself a little. I'm quite curious as to whether the

doctor who

> calls these panic attacks gave you anything to take when you are

having

> these attacks.

>

> I would panic too if I started feeling what you feel and couldn't

get any

> help. I still think you need to ask your PCP to call Dr Cohen....

even if

> it means you pay for the call. Either that, or start searching for

a PCP

> who will do this for you. Also.. print the information from the

links on

> this site and take it to the doctor.

>

> I found the hardest thing in all this was dealing with doctors who

were so

> sure they had the answers and I've seen a few myself. They are

totally

> unwilling to listen and certainly afraid that you might be trying

to teach

> them something. If they are not teachable, I'm not interested.

>

> had an experience with a doctor who was only supposed to

check her

> hearing. The MDA recommended that she see this doctor so she

went. He was

> ready to diagnose her right there on the spot with excess spinal

fluid that

> needed to be drained from her spinal column. He doubted the

results of the

> muscle biopsy that clearly states the Mito. Instead..he said " If

it walks

> like a duck and looks like a duck, it's not a goose. " She left his

office

> crying but the MDA doctor was very apologetic and told her he would

not ever

> send her back to him.

>

> Some doctors are just arrogant. You have to find the right ones.

It's a

> job, I know.

>

> Alice