Cherubic better word than dysmorthic re: Finally a diagnosis??

[Guest guest]

Dear , and all the rest of us...

Yes, there truly are dysmorphic features in many, many folks with mito.

Even those who are not diagnosed. Our first so. Cal. mito support group

visit was so absolutely wonderful... yet broke off a tiny piece of my heart.

I went home and looked at pictures of Staci's birthmom, aunt, and grandma,

plus remembered the pictures of her great grandma and great

aunts....Oooooooooh shit.

2 years later, Staci's birthmom was officially diagnosed. No lab tests or

anything necessary. One meeting w/ Dr. Boles, family history, his already

knowing her daughter, Staci.... " Partial Complex I " .

Mito doesn't have as easily recognizable/ well publicized look as does Down

Syndrome... Would that we got the publicity and research $$ Down's does.

Our time is coming.

Love,

working on talking into getting another set of luggage for the trip....

In a message dated 05/26/2000 2:30:41 PM Pacific Daylight Time,

sfitzger@... writes:

> Hmmm...are dysmorphic features a part of mito? I didn't think so, but I

> could be wrong.

>

>